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Need some word tracks
My Mom has been in MC for about 5 weeks. She’s not happy to be there but is slowly settling in. I live 6 hours away so most of my interactions with her are over the phone. I struggle with coming up with good answers to the same questions she asks me over and over again. “How long do I have to be here”? “Who do I talk to…
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Having NO LUCK getting mom an appt with a Neurologist
I am in South Carolina, just south of Charlotte, so not in a rural area or anything like that. I have been attempting to get my mom AN APPOINTMENT with a neurologist for OVER A YEAR, I've had her primary care doctor send in referrals to every neurologist in a 20 mile radius and I've called them myself, only to leave voice…
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Struggling to get mother diagnosed
I have Medical POA thank goodness, but for last 6 weeks her dementia became worse very rapidly daily. I tried to get her to see her doctor, but she refused. I obtained mental health warrant and she was taken to a psychiatric hospital. My mom denied being suicidal, confused, and said I was trying to force her into a nursing…
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New person, first post - Trying to be the rock
To say I'm frustrated would be an understatement - my dad was finally diagnosed with dementia/alzheimers along with anxiety, depression, and OCD/fixation. We could sort of see signs of something not being quite right with him a year or so ago and I had to push my mom to get testing done. The first specialist they were…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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Parent with Early Onset Alzheimer's
Hi, I'm looking for a support group specifically for adult children of parents with early onset alzheimers. My mother is in her mid-60s and was diagnosed a couple years ago. As she is beginning to decline more and more I want to connect with others in a similar set of circumstances. Most people I speak with are dealing…
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Following our Request
Mom moved in Sept 8th, she has moderate dementia, almost no short term memory, long term is pretty good, last 11 years or so are fuzzy. She was mild to moderate until she got a UTI and low sodium and was hospitalized for 3 weeks, now she's fully moderate. It's difficult because she can remember how to use the chair to get…
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looking for some hearts and souls that understand
Hello Dear Community, Dad and I went to a neurologist appointment today to get him established with someone here after his move closer to me. You all have supported me through so much already. I thank you. It was our first time out together since his move here in late June. It was good to be out with him. I was so nervous…
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reframe my thinking?
Hello community, I think I need a reframe for my thinking. Taking some time away from visiting my dad due to his anxiety and agitation. He has been in MC here closer to me for about a month. I've stayed away for a week and half previously and am currently in the midst of another week away. I keep thinking that he is…
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Struggling Only Child
Hi ya'll, I've recently become a caregiver at the age of 29 as an only child for my father with dementia who is 74. He was diagnosed back in December 2023 with very little notice and had to be moved into a memory care close to my home - I work a full time job and am unable to stop working. It's just him and myself in our…
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Painful Delusions
For about 7-8 years my step dad and I were the main caregivers (we luckily eventually had in home care almost 24/7, but we still managed a lot) for my grandma with dementia, my mom completely checked out and couldn’t face it. It’s been about 8 years since my grandma passed and now my mom is showing signs. We are still…
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Challenges over Loss of Control
Good afternoon! I'm a brand-new poster and am an only child to my 79-year-old mom with VD. She's in memory care and has been in decline for years, with bigger deficits after stroke-type symptoms and multiple falls. Over the past year, she's become more paranoid and accusatory about my not visiting enough, the management of…
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Feeling guilty
We’re moving my mom into a smaller apartment in Independent Living this weekend since I’ve had to up her caregiver hours recently and the cost of her 1-bedroom has recently gone up significantly. My hope is to give her more time where she is happy before making a bigger move. But of course she’s just annoyed and unhappy…
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Sad and caring formy mom 4 years
I'm new here. I've been caring for my 85 year old mom who was diagnosed with dementia/alzheimers in 2021. She just started asking about her mom, my grandmother every night, who I also cared for when I was a teenager right out of high school when my mom was working back in the early 1980's. My grandmother passed away in…
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feeling frustrated, alone with problematic family
To start; I'm 44, currently living in Colorado. My mom was diagnosed in 2016 at the age of 63 with early onset. I signed her up for medical trials, the first round did really well and was helping until it was de-funded. Tried again with another one, that treatment didn't take at all. She has obviously gotten worse as there…
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what is my aim? I still feel like I'm missing something
Hello dear community, I did take a break from visiting Dad. Mainly because it seemed to be upsetting for him. I've applied your advice (shorter visits, take someone with me, bring a treat to eat, stay in common area spaces) and it helped a lot. I do not go as often and I apply the wise advice given here when I do go. I…
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Emotional Abuse
Hi there, This is my first post and, I'm really desperate for help or advice. I am moving cross country to care for and support my mother who was just diagnosed with Alzheimer's (though, I think this has been progressing over the last several years). I am doing everything I can to help her and it never seems like enough or…
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Mom With EOAD Lacks Motivation
Hi, I’m grateful to have come across this resource. Last year, my mother (60 years old at the time) was diagnosed with EOAD. While the diagnosis came as a shock for someone of her age, we were noticing a decline in her cognitive functions, particular with regards to time (not knowing what day it is, showing up to to…
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Overwhelmed with guilt & grief
It was a long road but my father in law has been living in a memory care facility close to us for about 6 weeks. Even though I know that my husband and I would be unable to care for him safely in our home because he would mostly be alone, I still feel so guilty for this major decision. When family and friends ask about my…
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New behaviors from mom
Hi all I am new here. I live 5 hours away from my mom. She recently threw away her wedding rings including her beautiful 50 year wedding anniversary diamond rings my dad gave her. He passed away 12 years ago. She said since he won't come home and doesn't care about her she doesn't care either....the entire family is…
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Dad's anger and my mental well-being
Hello, I am beginning to wonder if my visits with dad do more harm than good. He really wants to go home. The demands increase and intensify. I end up just having to figure out ways to excuse myself so he doesn't escalate more. Agitation and pacing have already been concerns for the nurse practitioner at his memory care…
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How to Parent a Parent: When They Need Help But Think They Are Fine
Hi, all, My mother has always been a huge extravert. But as her Alzheimer's progresses, she's starting to become more socially isolated and doesn't like meeting new people. She's also kind of "moody" at times and sometimes doesn't even want to talk with her friends. We're no longer comfortable with her being home by…
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Losing my mom...
Hello. I'm 100% new around these parts, but I was encouraged by the counselor I spoke with at the Alzheimer's Association to post my story here in search of those with shared experiences. I (53) live in Texas with my wife, and my mom (83) lives in Miami, FL. Since moving to Texas in late 2012, I've traveled back to Miami…
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Dad is closer to me now and in a memory care community - we are new to this
Hello dear community, I know that I am not alone. I think hearing from others on this journey will help me cope and understand that some of what I am going through with Dad is part of the disease process. My heart is breaking. So here I am seeking camaradarie and support. My Dad was living independently with an Alzheimer's…
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Mother-in-law with Alzheimer's diagnosis refusing treatment/diagnosis
Hi all, I am new to this forum. My mother-in-law was diagnosed with early stages of Alzheimer's about nine months ago. Since then, it has been an uphill (upmountain?) battle. She has refused to accept the diagnosis and will not return to see her neurologist despite MRI and cognitive confirmation of the disease. She has…
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Grieving and Planning
Hello All- My first post ever. I am 40 years old and moved in to help my father 78 who was diagnosed with alz in 2020-- but had been declining for over a decade. He has really progressed and is incontinent, very weak, and disoriented. He recently had a fall in the shower and we had to call 911 for a lift assist-- it was…
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What rights do other siblings have that aren’t in charge of guardianship
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Stuck with what to do
This is my first post ever, on any forum whatsoever! The process of trying to care for and protect my parents (one with Alz and the other with vascular dementia- both in total denial) has opened me up to all kinds of new and unpleasant experiences. At least this one feels positive. I don’t know where to go from here- my…