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Re: Anyone else taking care of otherwise healthy dementia patient?
@Kibbee I agree with the others that a hospice eval would be a good idea. I would also bring in an SLP to investigate the swallowing issue. Today, if possible. If nothing else, the SLP can give you t…2 -
Re: Anyone else taking care of otherwise healthy dementia patient?
DW age 59 diagnosed EOAD at 53, currently early stage 6. I would say she is 95% physically fit and 90% cognitively impaired. She can still ride a bicycle though we mainly ride a tandem with me always…1 -
Re: Anyone else taking care of otherwise healthy dementia patient?
QBC - You raise a good point. When DH has his neuropsychology testing done the neuropsychologist made a point of saying it was not dementia. The neurosurgeon we consulted at the same time (ruling out…1 -
Re: When or if or why to call ambulance if notable changes in bp and demeanor
Hospice was the best thing that ever happened on this dementia journey. No longer did I have to make all of the decisions, I had an entire team to help me and 24/7 phone support. Add to that visits b…3 -
Re: Caregiver who is a nurse
Hi, my 101 yr old mother lives with me. The past week she has been unable to sleep, walking for 22 hrs. straight. She and I didn't sleep for 4 days and finally was able to get Home Instead to se…1 -
Re: Caregiver who is a nurse
https://alzconnected.org/discussion/73517/caregiver-who-is-a-nurse I’m new here too & I am a nurse who can’t manage her own Mom either. She lashes out to me & tells me I’m a know it all who t…1 -
Re: Caregiver who is a nurse
Hi; I can validate what you are saying. I have been a nurse in dementia care for 20 years and now that my own father has memory issues I can’t handle it and I don’t want to. I just want my dad back. …2 -
Re: Now in stage 8
Such deep sadness can only be known after riding the highs and lows together. My DH and I have been married for 54 years and I cannot bear the thought of being apart. My thoughts are with you.3 -
Re: Just Sad
“Made me feel like I was a terrible person because I got frustrated. 24 hours a day, 7 days a week is a LOT of time to act like a saint!” Boy does this resonate! Newsflash—I am not a saint. I promise…6 -
Re: Now in stage 8
I’m so sorry for your loss. Cherish the memories you made together. I saw this today and it helped me. Praying for your comfort and strength in the coming days. 🙏💜5
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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