Have any questions about how to use the community? Check out the Help Discussion.
Popular Posts
-
Re: Need to say no
I just had to revisit this conversation to assure myself that we're all struggling in similar ways. I know I'm depressed. I'm canceling appointments, coffee with friends…anything that …1 -
Re: Personality changes in caregivers
I used to be an upbeat, funny person…now after 2 yrs of 24/7 caregiving for my husband, I am a depressing, toxic person to be around. I find it hard to have a conversation with anyone as I am always …11 -
Re: Personality changes in caregivers
Last summer we had a very rare family trip with my grandkids to an amusement park. I have ridden roller coasters in many years ago but had alway experienced a bit of fear, thrill and excitement, trep…6 -
Partner to a Caregiver
I am new here and looking for support for myself. I am caregiving my partner who is and has been caring for his wife, diagnosed with FTD in 2016. I have been with him for over 4 years. I would never …2 -
Re: The end is near
Praying for peace for you. Hospice told me that DH likely had weeks. He passed three days later.1 -
Re: What's the one thing that gets to you the most
It's changed as this disease has progressed, but right now it's the shadowing. We live in a small house and my husband watches everything I do, and follows me from room to room. He listens …3 -
Re: Personality changes in caregivers
Normally, I am (was) a joyful person. I bounced back from negative events quickly and anticipated well-meaning and good intentions from others. Even though my DH is only in stage 3-4, I have already …8 -
Re: Tonight
my DH told me this morning "Your the problem." it hurts, I am prepping for a lunch with my brother (stage 4 prostate cancer) and SIL. My DH has retreated to his wood working shop where I ha…6 -
Re: How long survive without fluids
The death rattle came and went for my DH one week before he could no longer swallow fluids. He passed three days later. Praying for peace for you.1 -
Re: I feel so alone and lost at times
my DH is still driving as well. I had to report him to the DMV for an evaluation. That should be done by the doctor not me but it’s not required. DH also seems fine in social settings so people don’t…3
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more