Have any questions about how to use the community? Check out the Help Discussion.
Popular Posts
-
No more intervention
So my father is a type 2 diabetic, stage 7 c or d(per hospice), possibly in heart failure and on Hospice for 4 weeks. He is in a memory care facility and eats well(too well, big boy:). They have to w…4 -
Continued follow up after diagnosis
DH was diagnosed with FTD Semantic variant. There is no treatment so is there still a need to be followed by a neurologist? I am unsure what the benefits would be if there is no treatment. What have …2 -
Re: What's the one thing that gets to you the most
My mom was in stage 5 when she passed, so not truly at the worst part yet. It was the anxiety … the calling me repeatedly leaving multiple tearful voicemails if I didn’t answer, the neediness if I wa…3 -
Aphasia
I realised this morning at 6 o’clock when we were having an early cup of tea on the front deck as usual that I can no longer have any conversation with my DH virtually no sensible words and only jibb…11 -
Re: Tired
Vent away! It lets the steam off the pressure cooker of caregiving. My husband was in memory care in a room with another patient who didn't know his name or his wife but could name every puppy t…3 -
Re: What's the one thing that gets to you the most
Diane, you are quite right. I do all of those things to try to determine if there’s pain if she is hungry, etc. and spend lots of time trying to soothe her. Keep things quiet. It pains me to think th…4 -
Re: What's the one thing that gets to you the most
Dad and I didn't share a very warm relationship, but watching him morph from an unusually attractive, articulate and well-groomed man into some sort of yeti with crumbs in his beard wearing a te…6 -
Re: What's the one thing that gets to you the most
at this point it is DH constantly asking me to find brain pills that will fix him. He thinks the doctors are not reliable because they haven’t given him anything that works. He sees the prevagen or n…5 -
Constantly saying Help Me please
I am a daughter with autism age 50 and live with my elderly father age 85. He keeps repeating the phrase Help ME please, very insistently, and then switches to Help me Jesus or praying the Hail Mary.…2 -
Re: 4.5 years in caregiving
It’s been three years for me. It’s so emotionally draining. Like you, I have fallen into a kind of rhythm. I visit mom once a week, but never know what to expect. I think I brace myself for the worst…2
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more