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Popular Posts
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Scared of the clarity
My bf who is 46yo (eoa/ftd) stage 7, on hospice. No end of life care (morphine, haloperidol, the usual stuff). The last few weeks we have noticed a big decline. He stopped walking a little over 2 wee…11 -
Re: My DH is wanting to spend every minute with me
I understand how you must feel. My DH wants me around him just about all of the time - there are times I need to do other things. I wonder if he really understands why I am not with him all of the ti…1 -
Re: ‘Me Time’ Confusion
Dear Biggles. I am not as far into this awful journey as you, so have no experience to offer. Only to say ‘go with your instincts’. It sounds like one of the Carers you are comfortable with. Are thes…2 -
Anyone experiencing body pains
hi am am newly diagnosed early onset dementia, My doctor is still finding out what kind dementia I have My understanding is I have Alzheimer’s in my blood but not reached my brain yet , what the heck…2 -
Re: personal hygiene
It's a real fight to get my wife to change her wet pants and underwear (diaper). It's taken as long as 1.5 hours to do it. But once I can get the underwear on it goes smoothly. The nurse ha…1 -
Re: Just starting infusions
Hi, My hubby just had his 3rd infusion (3/4 of full dose). Has had no ARIA symptoms yet. He will have MRI again in a little less than 2 weeks. After 2nd one (1/2 of full dose), he was extremely tired…1 -
Re: ‘Me Time’ Confusion
if you do not want to leave for the two hours, is there a project or task you could work on together with the carer? Prep meals maybe? It’s good to hear you will be getting some help for the house ma…2 -
Hoping I’m doing the best for my dad.
Hello all. I’m a new member here. I’ve been caring for my dad for nearly 15 years now. He went from being my rock to depending on me for everything. I am 1 of 6 living children that my dad has. My mo…4 -
Not eating and losing weight
My DH appetite is bad. He has lost so much weight. Yes I've tried the protein shakes they are a hit and miss. I keep snakes around. If I can get him to eat once a day I'm lucky. I've t…3 -
My plan of action failed
In conjunction with a wonderful Care Consultant, #1 on my action plan is safety concerns. If my husband continued hitting himself or struck me, I was to call 911 and ask for him to be taken to the ho…9
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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