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Popular Posts

  • Holidays are the worst

    As a caregiver for my DH who has mixed dementia and is in a mid to late stage of the disease I dread holidays. On July 4th people will be going places and doing things. I will be home but not quite h…
  • Re: Lonliness when caring for a spouse with ALZ/dementia

    This is definitely a lonely road. I miss my DW and what we had so dang much. Hugs.
  • Re: Talking gibberish

    Goodness gracious how strange we are all in the same boat. My DH constantly asks where is the other dog? We only have one so I say the other one was his life-size comforter toy puppy with a beating h…
  • Re: Medications for mood

    https://alzconnected.org/discussion/comment/247096#Comment_247096 Could you tell her the doctor added a second blood pressure pill or something like that?
  • Re: Avoid all types of confrontation?

    People have to advocate for what they want. People with HIV-AIDS and cancer used not to get much support, but now they do. Groups like the Alzheimer's Association and US Against Alzheimer's…
  • Re: Recommendations of Videos to watch

    I highly recommend watching 12 minutes with Alzheimer's from ABC news several years ago. On days when I get frustrated with my mom I try to remember this video so I know why she's acting th…
  • Re: Avoid all types of confrontation?

    The US healthcare model is based entirely on the "identified patient." Back in the day, before "run like a business" was the operating model, you would see much more care for the …
  • Re: Family Visit

    Definitely feel zero guilt about doing what you need to make this visit work. I say this as someone with 2 kids with special needs, 1 with multiple disabilities. My mom loves having a large gathering…
  • Re: Seroquel / Quetiapine Dr. prescribed

    Your situation sounds very scary. I know it is so hard to do this, but you could call 911 when he is having an episode, and they take him to the hospital and admit him until they come up with the rig…
  • Re: Angry

    Burn out, pure and simple. 24/7 caretakingis hard, and draining. You need to find a way to get respite care if at all possible. I have times where I can roll with it, but then stretches where I just …

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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