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Popular Posts

  • Re: What Is Looking After Yourself

    https://alzconnected.org/discussion/74087/what-is-looking-after-yourself Super easy to tell someone to take care. It is almost impossible to do for those of us who are caring for people with dementia…
  • Re: Whyyyy!!!?????

    YES!! I hate f**king Alzheimer’s too!! This disease is terrifying and heartbreaking. Nobody understands unless they have walked in our shoes. There is an organization called Grief Share that has onli…
  • Re: So instead of carrying grief…carrying my love?

    https://alzconnected.org/discussion/comment/259667#Comment_259667 I too use writing to help me process some of my grief and tell about my dear wife. I use poems and have written poems for her since w…
  • Re: Functional Cognitive Disorder

    Speaking as a person who used to have a diagnosis of cognitive impairment NOS, I have a few comments about trying to get a memory-impaired person to remember. I read the article that HB linked and it…
  • Re: Grief Differences Among Family

    I just had this conversation with my step daughter. She lost her Dad. I lost my husband, partner and soulmate. Losing a parent is hard. Losing a spouse is devastating. I feel like I lost half of me. …
  • Re: Clinginess

    I’ve attached some resources that may be helpful. https://us.v-cdn.net/6037576/uploads/9ADRFPISXDJI/anosognosia-and-dementia-agingcare-com.pdf https://us.v-cdn.net/6037576/uploads/EVYRNERK1HZG/dbat.p…
  • Support Group Cookie Exchange? No!

    Just need to vent about endlessly unreasonable expectations…with the “you need to take care of yourself” heading that list today. You need to (fill in the blank) sleep, meditate, journal, blog, do yo…
  • Re: Using an agency for respite

    The memory care facility where we where living in the assisted living section offered 3 weeks of respite care which would allow me a trip back to the east coast to visit my sisters.
  • Re: Different respite question

    I would have a serious talk with the hospice nurse about it. We just started hospice about a month ago and my nurse was honest enough to tell me that sometimes it is worse when you do this. Each pati…
  • Re: Clinginess

    I also think it’s a form of shadowing due to anxiety and is common. His world is falling apart and you are his primary caregiver and lifeline. He’s afraid you will leave him. Based on your descriptio…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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