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Re: End Stage
https://us.v-cdn.net/6037576/uploads/VNKOKOIGVIZB/tam-cummings-llc-handouts-282-29.pdf At the end of this is an actively dying assessment tool that may be helpful. So sorry.2 -
Re: How do I make this decision
I am so sorry you are going through this. I don’t know if you had discussions with your husband regarding advanced directives for medical care. Think about what he would want. The end stage of this d…2 -
Re: when to stop work
You’ve gotten good advice related to the safety of your spouse. I have a question for you - what’s the reason for you asking the question? To me it sounds as if you thought quitting work would delay …2 -
Re: My Mother's Siblings
I would not leave her with the siblings for the day either. But, after they have been there a short while, I might pop out for a quick errand or have something in another part of the house to attend …2 -
Re: Says he doesn’t have Alzheimer’s
Another thing. If you do not have an online social security account set up, you should consider setting up an account online for DH where you control the email and password. This will make things so …2 -
Re: Says he doesn’t have Alzheimer’s
I am not an expert so please do not rely upon what I say. I have been navigating SSDI under somewhat similar circumstances for DW. Be sure you have clear medical documentation of condition as it rela…1 -
Re: New to this whole thing
welcome. So sorry about your husband’s diagnosis. I found that doctors were not much help. I found more help and support here. Learn all you can about the disease and caregiving. It will help you hel…4 -
Re: New to this whole thing
Welcome Kellybell to the group. You can’t be in a better place to get the support and answers as you and your DH start your journey, as I call it, the Alzheimer’s Roller coaster. I totally agree with…8 -
Re: New to this whole thing
I can maybe help with what stage he may be in. When DW had neuropsych testing, as part of the results were an indication of current stage on the GDS scale. It may be worth trying to look at the resul…2 -
Re: New to this whole thing
For info on stages I like the narrative format of the fisher scale: https://alzconnected.org/home/leaving?allowTrusted=1&target=https%3A%2F%2Fwww.alzinfo.org%2Funderstand-alzheimers%2Fclinical-st…4
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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