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Popular Posts

  • Re: In pain, exhausted, and resentful

    I know how you feel. You are at a difficult stage right now with her and you will need to find little ways to make caring for her more manageable for YOU until you are able to get her full time care.…
  • Re: Not Sure Where to Turn

    we also went through a few years chasing a diagnosis. It is frustrating and makes you want to give up. DH is 62 now and I am 55. We began seeing neurologist 4 years ago and finally got a diagnosis of…
  • Re: Any Heterozygotes on Donanemab?

    Excellent question, but I have no idea what my centiloid level was when I started, nor my current CL level, as I have never had an amyloid PET scan. For confirmation of amyloid pathology needed for a…
  • Re: New here~~~~

    I'm not understanding your comment that you were "placed in a clinical trial." Participants must sign paper to volunteer for clinical trials in the U.S., nobody can "place" a…
  • Re: New here~~~~

    Notify the people running the study now! It might well be that you would be elimsted from the study. ARIA is nothing to fool around with.
  • Re: More about spitting…

    I would get hospice involved now. Please don’t wait. I don’t think the swallow test is difficult. He probably won’t remember it. It will help them determine if he needs a soft diet or puréed food and…
  • Re: Libre3 insulin system

    I would lock up the sensors. You be the one to retrieve one and place it on him. Then use the enclosed tape to help hold it on. even extra masking or other type of tape over that to keep him from bei…
  • Re: Libre3 insulin system

    I can’t speak to the specific device he is using, but what you are describing doesn’t surprise me. My mom went through bunches of filters for her hearing aides, but she struggled with the hearing aid…
  • Re: Libre3 insulin system

    My dh was in Stage 5 when he could no longer use his fairly new monitoring system. It just wasn't something he could manage any more.
  • Re: Libre3 insulin system

    my DH tried the sensors and they didn’t work. He kept pulling them out of his arm or bending them. Tell the Endocrinologist that they are not working and demand they do something else. We went back t…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more