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Popular Posts
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Re: Showtiming Is Fascinating
It is great that you supervise the doctor visits, my DH showtimes also at the visit. But, LGB, are there benefits that could be useful for DH if he was to retire or take medical disability? Maybe con…4 -
Re: Using AI
What a great topic. I use ChatGPT for writing especially when I am particularly emotionally spent, I sent the best Christmas letter last year beautifully explaining our current challenges. It took a …5 -
In pain, exhausted, and resentful
There is no one thing that I need to get off my chest. I'm just super annoyed and emotional. No matter how many of mom's doctors I give MY number to, they invariably or intentionally call h…6 -
Last Infusion and Encouraging PET Scan
Today I get my final Leqembi infusion, completing the course of 40. Last week, I saw my neurologist to go over my final PET scan. It was negative. No detectable Amyloid plaque. Amazing. <Bob gives…5 -
Using AI
I was curious as to how many of you may be using an AI platform like ChtGPT to converse about your LO. I have found this to be a very useful tool for several aspects: understanding observations, unde…4 -
Re: In pain, exhausted, and resentful
I know how you feel. You are at a difficult stage right now with her and you will need to find little ways to make caring for her more manageable for YOU until you are able to get her full time care.…3 -
Re: Not Sure Where to Turn
we also went through a few years chasing a diagnosis. It is frustrating and makes you want to give up. DH is 62 now and I am 55. We began seeing neurologist 4 years ago and finally got a diagnosis of…2 -
Re: Any Heterozygotes on Donanemab?
Excellent question, but I have no idea what my centiloid level was when I started, nor my current CL level, as I have never had an amyloid PET scan. For confirmation of amyloid pathology needed for a…1 -
Re: New here~~~~
I'm not understanding your comment that you were "placed in a clinical trial." Participants must sign paper to volunteer for clinical trials in the U.S., nobody can "place" a…1 -
Re: New here~~~~
Notify the people running the study now! It might well be that you would be elimsted from the study. ARIA is nothing to fool around with.2
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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