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Re: Newly diagnosed with Dementia. Caregiver.
Hi @SvetlanaConstant welcome. So sorry you fund yourself here but you are among friends. I ditto the above recommendations. Teepa Snow and Dr. Natalie Edmonds (Dementia Careblazers) also have informa…3 -
Re: Is There An Organization That Rates Home Care Agencies
The Home Health CAHPS will report for skilled home health agencies. The agencies that provide personal care services only will not be included. Some private duty agencies will voluntarily obtain accr…1 -
Re: Acting out dreams while sleeping
My DH (stage 4ish) went through his earlier. He was so active in his sleep that I had to completely remake his bed from scratch in the morning. He has slept calmly for several months now, but I will …3 -
Re: Acting out dreams while sleeping
yes unfortunately it’s somewhat common and more common in some forms of dementia. this explains it: Dementia can cause vivid dreams, but it also triggers hallucinations (seeing/hearing things not the…5 -
Re: Newly diagnosed with Dementia. Caregiver.
I have read a few books but I think "The 36-Hour Day" By Nancy Mace MA, and Peter Robins MD, MPH is by far the best, especially for people who are caring for spouses rather than parents. I …4 -
Re: Newly diagnosed with Dementia. Caregiver.
Welcome, so sorry you need to be here. I have attached some resources I found helpful. Learning all you can about dementia is very important. The better you understand dementia the better you will be…7 -
Re: Feeling lonely and loosing hope.
I’m sorry, but if you hold onto the idea that there is a way to ‘reorient him to reality’ that you can learn, you are in for a world of frustration. In early stages, before there is much brain damage…3 -
Re: Feeling lonely and loosing hope.
As SDanieL suggested, start a new discussion with your question. My experience with my DH has taught me I will never be able to reorient him to reality. I must join him in his as that’s the only real…3 -
Re: Feeling lonely and loosing hope.
One of the hardest things we all have to deal with is the fact that there is no cure and the people we are caring for are terminally ill. For spouses this is a super long goodbye. I am sorry that you…6 -
Newbie ES
Background and introduction. I am a retired environmental chemistry professor who has experienced memory changes for the past couple years. This included headaches, dizziness and an inability to focu…1
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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