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Popular Posts

  • Re: Different respite question

    I have used respite 4 times for stays from 10 days to 21 days with varying results. The 1st respite he returned home in the same condition with no real signs of increase disease symptoms. He was stag…
  • Re: cant do it anymore

    Welcome. My brother has been an unbelievable source of stress when caring for my mom. In the beginning I tried so so hard to work with him. I eventually discovered that was not possible. At this poin…
  • Re: Clinginess

    I am concerned regarding the statement that your DH is still working and, "basically daring them to fire him"….. If you want him to receive unemployment if he does get fired, or if you need…
  • Re: What Is Looking After Yourself

    https://alzconnected.org/discussion/74087/what-is-looking-after-yourself Super easy to tell someone to take care. It is almost impossible to do for those of us who are caring for people with dementia…
  • Re: Whyyyy!!!?????

    YES!! I hate f**king Alzheimer’s too!! This disease is terrifying and heartbreaking. Nobody understands unless they have walked in our shoes. There is an organization called Grief Share that has onli…
  • Re: So instead of carrying grief…carrying my love?

    https://alzconnected.org/discussion/comment/259667#Comment_259667 I too use writing to help me process some of my grief and tell about my dear wife. I use poems and have written poems for her since w…
  • Re: Functional Cognitive Disorder

    Speaking as a person who used to have a diagnosis of cognitive impairment NOS, I have a few comments about trying to get a memory-impaired person to remember. I read the article that HB linked and it…
  • Re: Grief Differences Among Family

    I just had this conversation with my step daughter. She lost her Dad. I lost my husband, partner and soulmate. Losing a parent is hard. Losing a spouse is devastating. I feel like I lost half of me. …
  • Re: Clinginess

    I’ve attached some resources that may be helpful. https://us.v-cdn.net/6037576/uploads/9ADRFPISXDJI/anosognosia-and-dementia-agingcare-com.pdf https://us.v-cdn.net/6037576/uploads/EVYRNERK1HZG/dbat.p…
  • Support Group Cookie Exchange? No!

    Just need to vent about endlessly unreasonable expectations…with the “you need to take care of yourself” heading that list today. You need to (fill in the blank) sleep, meditate, journal, blog, do yo…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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