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Popular Posts
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Re: Siblings lack of understanding
I bought the book “The 36 Hour Day” for family members so they would understand the disease. It helped some. I also updated them with a list of my DH behaviors via email. Monthly at first and then as…3 -
Re: The list
That sounds like a nightmare. Even more complicated when there are siblings who arent on the same page. Hope you can take a breath and a break sometime soon.1 -
Re: Fights about the dumbest things
I'm glad that you've found us. You indeed have ask good questions and received some good answers. I'm wondering why they didn't tell you for a year? Was it fear that you'd le…2 -
Re: Fights about the dumbest things
Welcome. Sorry you need to be here. The number one rule with dementia is NEVER try to reason with them! If it’s something that doesn’t matter, let it go. Try to get used to just being wrong about eve…2 -
Re: Fights about the dumbest things
@tishyo It's important to understand that dementia is a progressive and terminal disease that can have a course of 10 to 15 years. The critical piece here is to ask yourself if you want to be th…3 -
Re: Fights about the dumbest things
I think that if I were in your shoes, I would first determine who is the next of kin and have a conversation with that person. I foresee all kinds of issues that could leave you in a vulnerable posit…2 -
Re: Siblings lack of understanding
To all of you who have given suggestions and shared experiences, thank you. Your input is greatly appreciated. Legal and financial matters are all taken care of. DH no longer has control nor access t…6 -
Re: Focus on the Now, the Positive, the Moments
There is a lot of wisdom and strength in this thread. My DH was diagnosed at 54 & just turned 68. We allowed ourselves several days of "why me / us" time & realized that's not …3 -
Re: Focus on the Now, the Positive, the Moments
https://alzconnected.org/discussion/comment/251020#Comment_251020 Please find a way to impress upon your family that you need to talk about this. I hid my MCI for most of the 5 years I lived with it …2 -
Re: Just need to talk to my friends (212)
@Iris L. Mom and the oxygen. For now, she is meant to be on it 24/7 until we re-evaluate with her pulmo in ~2 weeks. In addition to the COPD and asthma, she's always been a bit of a dysfunctiona…1
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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