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  • Re: New to this whole thing

    Welcome Kellybell to the group. You can’t be in a better place to get the support and answers as you and your DH start your journey, as I call it, the Alzheimer’s Roller coaster. I totally agree with…
  • Re: New to this whole thing

    I can maybe help with what stage he may be in. When DW had neuropsych testing, as part of the results were an indication of current stage on the GDS scale. It may be worth trying to look at the resul…
  • Re: New to this whole thing

    For info on stages I like the narrative format of the fisher scale: https://alzconnected.org/home/leaving?allowTrusted=1&target=https%3A%2F%2Fwww.alzinfo.org%2Funderstand-alzheimers%2Fclinical-st…
  • Re: New to this whole thing

    Welcome. You have been given excellent advice. In addition to legal documents for your husband don’t forget about legal documents for yourself. Your husband will no longer be able manage if something…
  • Re: New to this whole thing

    Welcome to the forum. The situation we find ourselves in is very daunting and it is difficult to know where to start, but you have some good advice already. I would add that the book “36 Hour Day” is…
  • Re: Tracking watches

    https://alzconnected.org/discussion/comment/253273#Comment_253273 https://alzconnected.org/discussion/comment/253273#Comment_253273 Thank you so much!
  • Re: when to stop work

    https://alzconnected.org/discussion/comment/253368#Comment_253368 I would meet with an Elder care Attorney first and then a financial planner.
  • Re: How long can show timing last?

    This phenomena is so amazing to observe from the spouse/caregiver position. My dear wife, gone now for three weeks, was able to do this "showtiming" with the best. I would try to keep famil…
  • Re: How long can show timing last?

    When a person with dementia is in an environment where they are cared for, protected from difficult decisions, complex tasks are made easier by care giver, and the normal worries of life are not on t…
  • Re: pre loss grief

     “People in this study had pre-loss grief at a very high rate after many years. That was shocking, because one might think over time it would get easier. But with Alzheimer’s disease, it can get hard…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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