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Popular Posts

  • Re: What Is Looking After Yourself

    https://alzconnected.org/discussion/74087/what-is-looking-after-yourself Hi Biggles, Based on my own experience, the medical staff have seen the destruction/deterioration of caregivers and is warning…
  • Re: Newly Diagnosed Physician

    Leonard, I forgot to mention APOE. I am heterozygous so I have 1 of my chromosomes with positive. My specialist at University of Pennsylvania told me I had a slightly increased chance of ARIA with tr…
  • Re: Using an agency for respite

    Some skilled nursing facilities and nursing homes offer 5 day respite, paid for by Medicare or VA. If he is on hospice it will covered 100%.
  • Re: Siblings lack of understanding

    If siblings are asking for money, you might gently ask them to return previous money lent because you will need funds for DH's care. This might get their attention. It's the truth, you do n…
  • Re: Clinginess

    All these things sound very typical. The 4pm restlessness could be a form or sundowning. All the rest of it is probably a manifestation of anxiety. Certain medications may help with these behaviors. …
  • Re: Whyyyy!!!?????

    So, so sorry for your loss and your words and rage at Alzheimer have been shouted by so many of us and more yet to come unfortunately. Let it out, yell, cry, rage at this horrible disease. We hold so…
  • Re: Whyyyy!!!?????

    Dear @MarDel0917 I am so so very sorry you are going through your great loss! I/we are glad you are here with us so we can support you. I just glanced at the titles on another of these boards - Suppo…
  • Re: Advocating for my dad

    Hi and welcome. I am sorry for your reason to be here but pleased you found this place. Sadly, your situation is not all that uncommon in late stage dementia. My father's memory has been affecte…
  • Re: Siblings lack of understanding

    I also recommend “Understanding the Dementia Experience”. This is what was recommended here when a friend wanted to know about ALZ before coming to visit.
  • Re: Refusing UTI treatment

    https://alzconnected.org/discussion/74721/refusing-uti-treatment I think you should ask her doctor what will happen if you withhold treatment. I think developing urosepsis is very painful, but I'…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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