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Popular Posts

  • Re: Counseling for Mom

    @katmcgee In a similar situation, I got mom connected with a psychiatrist in a large practice who prescribed much needed medication and assigned her a talk therapist. I also brought her to the local …
  • Re: Mom was newly diagnosed

    Hi - I had the same situation. We shifted from calendars where we would write appts, events etc and started using Rhe Memory Board. You can update at any time with messages, pictures and also have fr…
  • Re: Mom was newly diagnosed

    welcome. You have received good advice from H1235. I would also recommend the book “The 36 Hour Day” which helped me after my husband’s diagnosis. Online videos by Teepa Snow or Tam Cummings are also…
  • Re: Mom was newly diagnosed

    All of that sounds very familiar from my experience with my mother. My mother could read her calendar out loud to me but have no comprehension of the words at all. At some point, a calendar causes mo…
  • Re: Kisunla infusions- treatment side effects

    Hello, Thank you so much for your response. I am glad to hear your DH didn't experience any side effects. Have you or he noticed any cognitive changes since starting (as in continued progression…
  • Re: Kisunla infusions- treatment side effects

    DH here just finished infusion #12 with no side effects. Since he is somewhat claustrophobic, the hardest part for him was the required MRI scans. He took some anxiety meds before the exam and did fi…
  • Re: Kisunla infusions- treatment side effects

    welcome. FYI: You can search the entire online forum for Kisunla and read all the posts. The search thingy is at the top of the page.
  • Caregiver - Therapy

    I've been primary caregiver for my mom for nearly two years. She's still living at home but no longer driving. Moods are hard, depression is a thing. My SO and daughter help with check ins …
  • Re: Need help with confirming stages

    My mom is about this stage. She is in a nursing home. Every person with dementia is a bit different. So concerns one family may have will be different than another. The dbat give a rough age equivale…
  • Re: Need help with confirming stages

    Although it was important that my mom's neurologist was able to give a diagnosis, they did not offer any additional support or info. We also found that her PCP had very limited knowledge and exp…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more