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Re: Grief and Guilt
@Ms Meg What you are describing is ambiguous loss. Not for nothing is dementia called The Long Goodbye. The visits in the later stages are hard. At the end my dad had changed even physically in his a…2 -
Re: Unusual Walk
I knew a man who suddenly lost the ability to use his right arm and leg due to AD. The illness spread to that part of his brain and affected him much like a stroke, and one morning he couldn't walk. …1 -
Re: Unusual Walk
Unfortunately, this sounds like another of the sad milestones of dementia progression. My DW and I loved our daily 2-3 mile walks, and for the first three years after her diagnosis these outings were…1 -
Re: Unusual Walk
Gait changes and falls are very common in dementia as it progresses. By end stages, most PWD are no longer ambulatory. You don't describe "strange" but some changes I noticed in PWD I know-…2 -
Re: Just need to talk to my friends (203)
Hey there, Iris — yes, the Space Needle is worth a visit. I'd skip the expensive, not-very-good revolving restaurant at the top though. The Public Market is also worth a stroll. Other places of note:…1 -
Re: Dreaming of the future
I have often wondered about a future when this is over and if I'll still be able to have any type of life at all. I've felt guilty when I tried to imagine my life without DH and the possible relief I…3 -
Re: Just need to talk to my friends (203)
I'm getting ready to get all of my cleaning done. I started out the morning by reading the news and listening to music. For some reason Perfect Day by Lou Reed popped into my head and I remembered a …2 -
Re: Not sure how to feel
so sorry. I know how you feel. It’s exhausting. Talk to the case manager and ask for home health care or other options. I think he should be monitored closely. Maybe explain that you have been sick a…2 -
Re: Not sure how to feel
Do you have a nurse coming in periodically? Ask the physician/provider for a home health referral. They can provide assessment and support to you.1 -
Re: Hi I'm 10 second Louie!!
Every new behavior is a gut punch. Nothing makes sense. It’s a constant challenge to handle the new behaviors. Sometimes they come so fast. You can’t figure out what to do for one when bam another on…2
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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