Have any questions about how to use the community? Check out the Help Discussion.

Popular Posts

  • Please chime in if you know

    My DH, 79 , was diagnosed with moderate cognitive decline, possibly Parkinsons in October 2023. His abilities took a nose dive and all activities of daily living are left to me. I believe it was Jami…
  • Re: Just need to scream

    There has been a couple of hints that that moment is coming for us as well. It will be hard to deal with. I can’t imagine after 50 years
  • Re: Terrible Family

    It’s said, “A guilty conscience needs no accuser”. Sounds like there is a lot of buried guilt spread amongst your DW’s family. And my favorite, “Don’t stoop to their level”. Save yourself. Don’t wast…
  • Re: Terrible Family

    Thank you for tolerating my change in tone. You are right, the disease just made people's true character surface.
  • Re: I'm moving to the new house in two weeks. Feeling lonely but grateful

    Thank you all for sharing. OP, I feel your words so much. We are technically at the beginning of our FTD journey, but for me, it's been over a decade watching his personality change, having no emotio…
  • Re: Just need to scream

    The first time my DH asked who I was one morning, I felt I was in an episode of the “Twilight Zone.” I will never forget that moment. Now when a new bazaar behavior pops up, my mind just start hummin…
  • Re: clueless cashier

    I would make no bones about telling her, in private. Or saying something to the manager. Everybody under the sun gets groceries and many have disabilities, she needs to learn better....teachable mome…
  • Perfect circle, epic fail

    My husband had his welcome to Medicare visit today. When it came time for the clock test, he drew a perfect circle, then nothing. Just a blank look when we reminded him he was supposed to put the num…
  • Re: Perfect circle, epic fail

    Sadly there comes a point when you learn to just not ask. I think for me the episode that stuck was when i realized that even though she built this house, she no longer knew which was the silverware …
  • Support and Help

    Good Morning! First time poster here, who is looking for some support. DH was diagnosed with Mild Cogitive Impairment at the age of 39. He is now 43. He has a neurologist, regular therapist, and neur…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more