Have any questions about how to use the community? Check out the Help Discussion.
Popular Posts
-
Do I let go or keep going?
My SO who is 46yo EOA is on hospice but thus far it has been more of palliative care. This last week has taken a HUGE turn. The week prior he was up and walking around during the day and would be res…14 -
Re: general anxiety
You’ve come to the right place for advice, validation or just venting. It’s so overwhelming at first - just take it one day at a time. I found it helped me to cross off each day on the calendar at th…6 -
Re: Do I let go or keep going?
All I can say is that when my mom slept all the time, we would not wake her for meals. She had requested that if she could not feed herself that we do NOT hand feed her…we honored her wishes. AD is a…13 -
Re: Keeping a loved one at home vs nursing care
@Abby627 posted a similar discussion that has 71 responses, you might want to check that one out. Nursing home vs. keeping your LO at home is a very personal decision. In some cases like ours, financ…6 -
Re: I Want To Live With Someone Else
Yes, all of this! me, too! My latest image, in my head, is the See 'n' Say toy from my childhood - pull the string and it repeats one out of a handful of phrases ("the cow says Moooo&q…6 -
Re: What do you to talk about with your LOs?
Back to the original post. I know the feeling. I forget and try to tell him something he'll say who what where they doing exactly so forth. By the time I'm finished he's frustrated and…6 -
Re: What do you to talk about with your LOs?
I get it. My situation is a bit different and not 24/7 ( I can’t even imagine). If I tell mom I’ve been working in my garden, she gets upset because she used to love gardening, but she can’t now ( my…6 -
What do you to talk about with your LOs?
My DH with Alz is in late stage 4, perhaps early stage 5. Most days he's still quite independent in caring for himself and doing household chores. The problem I'm having is that chatting wi…6 -
Re: general anxiety
Hi Nantucket. I agree with Wigo that each of our experiences are going to be different, yet each of us is on a terrible journey to see that our LO’s are cared for until the end. Your primary job is t…7 -
Re: general anxiety
You are heard. Anxiety is my ever constant companion now. There is no experience in my 74 years of this life that has been more challenging than having this dreaded disease take my DH slowly from me …9
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more