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Re: Hospice and another fall
Thank you all so much for your comments. It has felt like a circus. They swooped in and took charge and I was overwhelmed with nurses and a social worker, forms to sign and reading materials to look …9 -
Re: Caregiving Rookie
One of the skills you will learn is to deceive your husband when necessary. I talked abut the DPOA issues ahead of time and presented them as each of us getting a DPOA for the other. Then when the ti…6 -
Re: Caregiving Rookie
Welcome. I agree with Rick. Present it as just something you need to do now that you’re getting older. I would not mention the dementia. You should also keep in mind that he is not going to be able t…5 -
Re: Caregiving Rookie
My copy of The 36-Hour Day came early! Woohoo! I will be cramming like I'm in college for the next 48 hours! 🙂 📖7 -
Re: Yin and Yang
“I find i am waiting for a future I don’t want.” This statement hit me like a thunderbolt. How incredibly poignant. One year on my birthday, my DW was about early Stage 6. She had forgotten who I was…10 -
Re: Now in stage 8
I’m so sorry for your loss. Cherish the memories you made together. I saw this today and it helped me. Praying for your comfort and strength in the coming days. 🙏💜5 -
Take your own care seriously…
I met a woman yesterday that was pondering placement of her husband in MC. She was recently diagnosed with breast cancer and is now undergoing chemo - surgeries including a hysterectomy will be follo…15 -
Re: Palliative care
many PWDs say they are not hungry but will eat if presented with food. Try bright red plate and finger foods. Is he drinking protein shakes? I would talk to the Palliative Care team and ask them ques…5 -
Re: I wonder if I am seeing things not there
It’s all so very normal and confusing. The brain is an amazing organ. So much my husband cannot remember or comprehend during different times of the day. Then he seems normal and clear headed and the…6 -
SLUMS got me in a slump
My DM who is my pwd was given the SLUMS test today. She has been diagnosed with mild cognitive impairment/early stage Dementia, in December 2024. After much pleading she got authorized for an MRI. In…5
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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