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Popular Posts
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Let me whine.
Seriously feeling sorry for myself today. Please understand I love DH. What he's going through is worse than what I am. BUT… I'm still feeling sorry for myself. This disease goes on FOREVER…31 -
Re: What Do I Need to Learn?
Patience. Grace, for yourself and others. Boundaries. The ability to ask for help before you need it. Hobbies that get you away from the house and other hobbies you can do at home. A sense of humor. …5 -
Interesting (and untimely) legal lesson about cremation: should I have just lied and told them we w
I hope this might be helpful to someone else, for me it's been a huge headache and unnecessary firedrill on an already fraught Friday afternoon. And importantly, something that neither my memory…10 -
Re: The other shoe has dropped
you can’t imagine what comfort your words bring me on this vigil. It won’t be long, they are keeping her comfortable and don’t think she will wake up at all. I’m grateful we’ve said our goodbyes and …15 -
Re: BIGGEST FEAR, DW MC and what about the whole SEX in MC with others?
There are romances in MC but as mentioned above the staff are good at "supervising" hookups. There is one couple that are together every day and have been since moved my wife in but the sta…5 -
Visiting DH A Huge Success
As some of you may recall, I have only visited DH once since his placement 1-1/2 yrs ago given the very first visit was a huge disaster. With his neurologist telehealth appointment coming up in Decem…8 -
Re: Tonight the sides close in
Your poem is beautiful. And I understand. I’m only okay when my husband is okay, too. Now that he’s in advanced dementia, I feel he is most of the time okay and the disease is no longer controlling h…6 -
Re: Wow, I underestimated the loneliness
https://alzconnected.org/discussion/comment/226783#Comment_226783 I am so glad it is helpful. I wish I could give you a real hug. I know that grief and if I don't fight it, I know it will take m…9 -
10 ways to help caregivers
In no particular order. All of these apply whether the PWD is at home or in a facility. Ask about the PWD. And listen. Ask the caregiver how they are doing. And listen. Give the caregiver flowers, ch…7 -
Re: What Do I Need to Learn?
"Quilting brings calm" offers great advice. After you have learned all there is to know about this condition be prepared for "only some of it" or "none of it" to apply t…5
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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