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Popular Posts

  • Re: Continual Grief: I Miss My Mom

    It's hard. The body is still there, but we're grieving the loss of the person they were. We have ambiguous grief—we're grieving, but our grief doesn't come with finality or healin…
  • Respite

    As my DW keeps moving more into Stage 6, I've been thinking about how I have fought to get respite this past year and how much I am changed by it…in the best ways. I retired early, after crashin…
  • Re: Stages

    Welcome to this forum. So sorry you have to be here though. Dementia is a general term for a group of symptoms that affect memory, thinking, and social abilities severely enough to interfere with dai…
  • Re: Take a cruise?

    The thing that I would consider is are you going to be willing (and able) to cut the trip short wherever you are? IMO he is not very compliant if he wont use a wheelchair. I would be concerned that h…
  • How To Find Purpose Again?

    I knew where the path ended, the outcome never in doubt, but after so many years with my purpose being to care for my dear wife how do I find any purpose in going on? After 60 years together, with th…
  • Re: When the marriage was not good.

    Thank you for starting this thread. I feel the same way. My wife (40 years) has mid stage dementia and she has no interest in acknowledging it. I spend all my time making sure she's fed and cont…
  • Re: Terrified!

    One of the hardest parts of caring for my DH was the uncertainty about life expectancy. Sometimes I was struggling so much that it seemed impossible to continue doing it for another day, let alone an…
  • Terrified!

    My 60 yr old husband was diagnosed a bit more than 4 years ago with EOAD/FTD w/ behavioral variant. He is late stage 6 with some components of stage 7. He is at home w/ me and I have part time care t…
  • Re: STAGE 8 - There is no other side of grief...

    Don't be too hard on yourself for things you did or did not do. You do the best you can minute by minute. We're all human and nobody is perfect. I'm sure he would say that to you if he…
  • Re: No short term memory

    DW is similarly without short term memory and her cognitive skills are negligible, although even 8 years after the Alzheimer's diagnosis, she often appears normal outside our home, as long as sh…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more