Advocacy

Discussion List

  • Having NO LUCK getting mom an appt with a Neurologist

    I am in South Carolina, just south of Charlotte, so not in a rural area or anything like that. I have been attempting to get my mom AN APPOINTMENT with a neurologist for OVER A YEAR, I've had her primary care doctor send in referrals to every neurologist in a 20 mile radius and I've called them myself, only to leave voice…

  • Today's Win

    After some conversations with my state senator (and her super nice aide) the state of Delaware passed a resolution today naming September 22-29, 2024 FTD Awareness Week. It was oddly emotional to be there to see it pass.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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