The most recent content from our members.
After losing my grandmother to Alzheimer’s, I’ve been thinking a lot about how difficult this journey is for families and caregivers. I’m an engineer and want to use technology to make people’s lives more comfortable and better in this space, but I know I need to understand the real problems first. If you’ve worked in…
Hello, My mom was recently diagnosed with Alzheimer’s. She’s only 63, so we are highly unprepared for this. To make matters worse, she has very little money saved and my family is not a position to help financially. She also lives in CA while I’m in WA state adding more hurdles to finding her adequate help. We’ve set up…
I was recently diagnosed with AD after having MCI for the past 5 years. My neurologist is recommending that I start a monoclonal antibody treatment regimen and has suggested Liqembi. As I do my own research, it looks like Kisunla is considerably more effective. It more aggressively removes existing plaque while preventing…
I just heard about using coconut oil at one of the caregiver's groups. They said 1and 1/2 tsp per day. Has anyone used this and did they see an improvement?
I'm a caregiver for my dad, who has been on Donepezil for a while now for his Alzheimer's. He is doing well for now, but it is only a matter of time before the doctor prescribes him Memantine, too, if I understood correctly. I've seen side effects, dizziness, headaches, confusion, etc. But I'm wondering, what are some…
I understand that a high level of cognitive reserve can make a person show fewer symptoms than others with the same level of brain deterioration. My question is this - does this mean they might be more advanced in the disease progression than their symptoms indicate? Is it possible that you think someone is stage 4 based…
Is anyone getting any therapies through Compassionate Use or Expanded Access programs? I saw a comment from someone in a Facebook group who was considering TB006 a compound being developed by True Binding. So it made me wonder if anyone here has considered it or other experimental options that are in development.
Has anyone's doctor mentioned Montelukast as treatment for AD. I have read some studies showing it has a positive effect on the inflammation reaction in the brain?
Gene therapy shows promise for Alzheimer’s disease San Diego VA researchers demonstrated in mouse models that targeting specific brain neurons through gene therapy in early-stage Alzheimer’s disease may help preserve memory and stimulate neuron growth. The researchers focused on the protein Cav-1, which promotes the growth…
I am new to all this. I worked in a dementia care unit as a companion but it is nothing compared to feeling so helpless when it comes to my grandma. My dad wants to put her in a home and I gave her my word I would not let that happen. It breaks my heart seeing her decline and not know who I am. I had never even heard of…
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