The most recent content from our members.
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
My mom with Alzheimer's was prescribed Aricept 5mg. She was doing fine on that. She is progressing more as expected, so nuero upped it to 10 mg. She said to look out for side effects like stomach issues and dizziness. She hasn't had any of those. What I did notice was it seems she has progressed even more in a short time.…
Right away I found that sharing my story online helped me begin to heal. I started a website in her memory that is still around, although it is in need of updating, and I'm trying to work on that as I have time. It's still here: https://www.zarcrom.com/users/yeartorem/ Also, I will be walking this fall for my 29th year in…
Registration is now open for the Alzheimer's Association International Conference special session titled "AAIC For All". This portion of AAIC is free, you can learn from top Alzheimer's & Dementia experts about the latest research/news. There are three key sessions: - AAIC 2026 General Conference Highlights - AAIC 2026 in…
After losing my grandmother to Alzheimer’s, I’ve been thinking a lot about how difficult this journey is for families and caregivers. I’m an engineer and want to use technology to make people’s lives more comfortable and better in this space, but I know I need to understand the real problems first. If you’ve worked in…
Hello, My mom was recently diagnosed with Alzheimer’s. She’s only 63, so we are highly unprepared for this. To make matters worse, she has very little money saved and my family is not a position to help financially. She also lives in CA while I’m in WA state adding more hurdles to finding her adequate help. We’ve set up…
I was recently diagnosed with AD after having MCI for the past 5 years. My neurologist is recommending that I start a monoclonal antibody treatment regimen and has suggested Liqembi. As I do my own research, it looks like Kisunla is considerably more effective. It more aggressively removes existing plaque while preventing…
I just heard about using coconut oil at one of the caregiver's groups. They said 1and 1/2 tsp per day. Has anyone used this and did they see an improvement?
I'm a caregiver for my dad, who has been on Donepezil for a while now for his Alzheimer's. He is doing well for now, but it is only a matter of time before the doctor prescribes him Memantine, too, if I understood correctly. I've seen side effects, dizziness, headaches, confusion, etc. But I'm wondering, what are some…
I understand that a high level of cognitive reserve can make a person show fewer symptoms than others with the same level of brain deterioration. My question is this - does this mean they might be more advanced in the disease progression than their symptoms indicate? Is it possible that you think someone is stage 4 based…
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