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I Had A Week Respite
Hey all. Most know I was able to take a week’s respite in early June. It’s been a bit over 5 years for me. I was burnt the heck out and had just decided to retire early this December. I needed it and for those able to somehow cobble something together, I am an even more staunch believer it getting whatever respite you can.…
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Forensic Psychiatry
Neurologist suggests my wife suffers from Anosognosia as well as Alzheimer's. Doc is suggesting testing by a Forensic Psychiatrist with an eye toward legal Guardianship. Anyone with this experience care to chat with me?
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Where has my husband gone? Loss…
I find myself asking that question often. He’s here physically, but he is not the man that he was when I married him. I feel so sad today. Yet it doesn’t bother him as much since he doesn’t even realize how much he’s changed. he’s inside the grocery store while I’m waiting in the car because I just don’t have the patience…
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Anyone able to keep alzheimer spouse home until death
I have been trying to find anyone with experience keeping spouse at home with help of hospice until the end. My husband is finishing up stage 6 right now. And so far I have been sole caregiver with no outside help. He is 71 can still walk. Can eat on his own like a 2 year old. I have to shower and dress him. He just had…
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DH won’t let me change him
My DH is in memory care and won’t let the aides or me change his wet Depends. He gets very agitated if I ask him and has punched me. He does the same with the aides. It doesn’t matter what time of day I try. It is always a battle. The Dr put him on depakote to try to help with these behaviors but it hasn’t made a…
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Warning
My BF passed away last night unexpectedly. Her Dh has alz. Stage 6 .She took care of him by herself. Her kids have have no idea of what to do with their dad. They know nothing about his meds.,his sleep habits,how to get him changed or anything. She didnt keep them informed on anything. There is no poa or will or guardians…
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Caregiver who is a nurse
Hi, This is my first post. My mom has dementia that has progressed to moderate. She is very stubborn and becomes belligerent if she does not get her way. She does not realize that she has memory issues and doesn’t understand why we are not allowing her to be alone. She is refusing to shower because she thinks she showers…
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Dementia
Lately, my wife doesn't wash herself or use deodorant and she wears the same clothes for days. Her memory is getting worse, but she maintains a good appetite. I would ask her about her hygiene but she feels as though I'm treating as a child.
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Just need to talk to my friends (208)
HB, thanks for telling me about auto comprehensive paying for rodent damage. I doubt this will be over $1000 which is my deductible. JeriLynn, I would be interested in the device you mentioned that makes a noise to scare rodents. I have those scent packets but don't know how to keep them from falling out but maybe the…
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Paying for MC
we are in the earlier stages but I see so many of you talking about placing your LO in MC. How are you affording it? I am 55 and I can’t see spending all of our investments (which are not huge amounts) on MC because I will need that money to live on for the rest of my life. That sounds cold but I have potentially many…
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Lonliness when caring for a spouse with ALZ/dementia
My DH is not quite in the middle stage of ALZ, and most days he is "normal", but he isn't really. His critical thinking has diminished in most everything except math. We used to have spirited discussions about matters of faith, politics and so on. Now, half the time he can't hold a discussion about a movie that we watching…
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Paradoxical Lucidity
Over the past couple of weeks, my mother has declined rapidly. After another evaluation from a different provider, she qualified for hospice this time. She's incontinent, refusing to eat regularly, and sleeping most of the day now. Her ambulation has become more unstable with the shuffling gait so common with dementia. I…
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Managing care
Hello, first post here. I am my dad's daughter and medical/durable POA. He has mid-stage LBD. He is physically pretty healthy except for chronic UTIs which we finally have managed. He is in a wonderful RCF with a nurse on staff and loving caregivers that adore him. But lately it seems like so many little things are…
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Girlfriend reprise
You may recall last winter my dh had a girlfriend in his MCF. He was moved to the next higher level of care, and because that higher level of care has two separate wings I thought we had solved that problem. Today I find that girlfriend has been moved over as well and is now two doors down from him. I don't know why they…
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Urine smell in pants
Hi yall my bf (46 EOA) Has been fully incontinent for some time. He gets the bed nightly, is there a soap that gets rid of the light urine smell? It's not super bad but I notice it when getting his clothes out of the dryer. Thanks in advance. We are all in this together 💜
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Garbled speech
Curious about garbled speech and wandering. Mom’s in MC, probably stage 6. Miraculously, her moods are good and she’s extremely well taken care of. The past few months I’ve noticed her speech is more garbled. She frequently uses mashed up words, and most sentences don’t make sense. She’ll repeat syllables almost like a…
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Boyfriend with early stage
Does anyone have a boyfriend with dementia, repeating questions and forgets conversations? I could use some support if anyone out there can relate. He is very easygoing and loving, but wonder what this will do to our relationship in the future.
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Near the end
Lately, my (66yr old, stage 6, early onset) husband has been taking his penis out and peeing on the floor as he's walking to the bathroom. Two different sources have told me they saw this behavior, "near the end." Does anyone have experience with this? If he truly is "near the end," I'll 1)Ask hospice to assess him again.…
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Treatment with Lecanemab (Leqembi®)?
I have just been diagnosed with mild Alzheimer's dementia. My neurologist has suggested treatment with Leqembi. Please share anything you know about it from personal experience or from others you know who have used it.
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Ready to place hubby in memory care
after 4 years I’m ready to put hubby in memory care I have been in touch with the place for 3 years so familiar with director. talking to hubby about it but he doesn’t want to go. I’m facing what I never wanted to do and that is leave him there. Has anyone gone through this. My hubby is 82 and memory is terrible. Won’t…
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Contesting my mom's will.
My sister told me about how family members fight over the will. I've been naive thinking black and white and that the will is going to be carried out as intended by my mom.
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From the NYT: What to Do When a Loved One was Diagnosed with Dementia
https://www.nytimes.com/2025/06/25/well/family/dementia-diagnosis-advice.html?unlocked_article_code=1.Rk8.WazS.hyIqt9FeloJq&smid=url-share This talks about next steps and how to prepare for them. It's pretty basic, but might be good for someone new to the disease. HB
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Premonition of Memory Care Move
Last year for about 4 months before he went to memory care, my DH talked about being separated from me. He talked about how he didn't want to leave, that he wanted us to be together. He also would take all of his clothes out of his drawers every night and pile them on his bed like he was packing for a trip. There was no…
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How to reduce phone calls and text messages
My mom moved in with us 3 months ago. She has always had problems with confidence and has needed reassurance even before ALZ. Now that she is living here with MCI, it is so much worse. I work from home as a mental health registered nurse and frequently am in virtual meetings on camera where I need to participate. I also…
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ZERO short term memory
My mom is 80 with moderate to severe (per Neuro) ALZ. She has no short term memory at all it’s not even 1 minute it’s just gone. She eats obsessively because she says no one gave her anything to eat. she actually ate 6 donuts and an entire package of large sized cookies and still wanted more. My sister was watching her and…
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Alexa assistance
Good morning! I am new to this community. My father, who lives in Florida, was diagnosed last fall with Mild Cognitive Impairment. Upon further testing, it was determined Alzheimers related. I'm in Wisconsin. He lives independently, but has a partner he spends his days with. He does not live with her. She is 85 and has…
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Angry
I’m not sure why, but all of a sudden I find myself angry at my husband. I snap at him when he asks me the same thing over and over. When he was diagnosed with ALZ I was able to stay calm and compassionate. Now I feel like I’m falling apart. Has anyone else experienced this. He’s in the early stages so he’s not even bad…
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Avoid all types of confrontation?
Hello, My husband is newly diagnosed, and I have so many questions. I'll start with just one today. For background: My husband is 56, and he has had memory issues for about three years, probably longer. He went through many doctor's appointments and tests and received the final diagnosis last month. I attended an…
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First experience with wandering
Woke up at 1:45 this morning with DH missing. First time he’s ever done anything like this. Sheriff’s office had helicopter going, canine units, added bloodhounds, silver alert, the works. So scary! They found him at around 9 about 4 miles away. He used to always carry his wallet which I had an AirTag in, but stopped…
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When to go to memory care
I sense that I will need to consider this for my DW later this year. When that happens, will she have periods of remembering?