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ALZConnected Q&A Thread
Hello all, The ALZConnected team wanted to let you know that we very much appreciate the constructive feedback we've read since the new platform's launch. We're listening and doing what we can to make this platform as positive an experience as possible. As such, we have created this Q&A thread to answer questions and…
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Dementia Resources
This page contains downloadable PDFs about a wide range of topics related to Alzheimer's and all other dementia. For additional help or support, please contact our 24/7 Helpline at 1-800-272-3900 Resources for People Living with Dementia Learn how to live well with Alzheimer's and dementia Take an online education program…
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Just need to talk to my friends(201)
Sorry this took so long, tablets are acting up. Will post more later
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Trazadone for sleep
Hi all, Has anyone had experience with Trazadone for sleep with the PWD. My LO stays up till 4 or 5am and then sleeps till almost 2pm if we don’t get him up and going. The Dr prescribed 50mg of Trazadone for sleep. I’m reluctant because of all the side effects. I have previously trying to wake him earlier and get him on a…
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New Here - 33 looking for support for mother diagnosed with AD
I am not normally one to reach out for support in this format but I feel very isolated in my mother’s recent Alzheimer’s diagnosis. We have seen her condition worsen over the last few years and last year there was a huge red flag for us when she couldn’t remember opening gifts at Christmas. I was 2 weeks postpartum and…
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Anger seems to last longer and longer
Last night, and a couple of nights ago, my DH started again with wanting to go to the "other house" and not understanding how all of our things could have gotten to this house. Of course there is no other house, but he gets angry and tells me that I am horrible and he would never treat me like this. It goes on and on, but…
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Wonder if I have PTSD after my dad died
My dad passed away four months ago. I had moved him and my mom to an ALF approximately four months prior to dad's death. Their conditions at home had become unsafe. For one thing, I keep ruminating about the status of their living conditions at home prior to their move to the ALF. In my mind, I still see the glaring red…
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From the NYT: The Lives They Led
This end-of-year article includes a section on Naomi Feil. You'll need to scroll down quite a bit to find it. https://www.nytimes.com/interactive/2024/12/20/magazine/people-who-died.html?unlocked_article_code=1.jE4.z51J.efbTs9_Va8M0&smid=url-share
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I’m Not OK But It’s All Gonna Be Alright…
song by Jelly Roll for those struggling and especially those in Stage 8 💜
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Daughter helping care of DW
I searched all over for comments about my daughter helping me care for my DW. Most of what I saw were complaints/concerns about lack of help. So is it reasonable for me to think that we can do it? And for how long? DW was diagnosed MCI in 2016 and AD 2018. Age 73. Behaviors don't perfectly fit a stage, but it is probably…
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When is it time…
How do you decide when to seriously consider MC? My DH is okay as long as you don’t say no. Trying to distract or re-direct works sometimes, if not he gets mad…not physically aggressive, but looks angry and says things like ‘you always think your right, this is my house I can do what I want, I’m leaving tomorrow”. I think…
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UTI Test for Incontinent?
Hello. Is there any way a nursing home can test a patient who has Alzheimer's and is incontinent? My mom is 87, and recently, her agitation and combativeness have continued to escalate. She is hitting, biting, scratching, screaming, and, as they said, "speaking in tongues." She sleeps mainly all day and does not eat as…
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From Maybe to Reality
DH in ES thought. Then, several episodes of mis-rememering, including asking our adult son if he remembered a certain episode from his (DH's) youth. For the past 3 weeks he has been just fine, more or less, just the occasional lost word. In my mind I knew he still had Alz, but it just seemed like , well, maybe it will be a…
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Apologies...
I came here today to apologize to this community. I belonged to 3 other groups in addition to this forum. I was asked by the moderator of one of those groups to no longer use the words "terrifying" or "heartbreaking" when I refer to Alzheimer's. The reasoning is that everyone progresses differently and some don't have the…
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I have Covid and DH in MC is on the verge of pneumonia
What a way to end the year! I came down with Covid this week and the Dr. prescribed Paxlovid. Unfortunatley, I am having a reaction to it and have had to stop taking it. Meanwhile, DH has a deep cough and his lungs are filling up. The nurse said he is heading into pneumonia. His oxygen level is still good though so he is…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's disease.
After losing my father to a long battle with Alzheimer's, I wrote this essay to give a glimpse into this horrific disease, draw attention to the red flags and signs (there are many people at this very moment who have a family member with dementia and still do not realize it), and especially to help people navigate through…
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Where do I get simple help for meds and eating
My mom is still at home. She is doing physically very well. She is active in the community, volunteers, plays bridge, goes to church and drives. However, she has meds for diabetes, memory and high blood pressure that she won't take on a consistent basis, mostly out of defiance. This, along with not eating well, leads to…
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Christmas Cards
In a year filled with bad news, I am sitting here with a box of Christmas cards wondering what to write. I want to send cards; this is the only contact I have with many of the friends and relatives on my list. Caregiving is isolating enough without letting my last few contacts in the outside world slip through my fingers.…
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How to handle long distance Mother
First time poster here. My Mom lives in NV I live in MO. For the last 3 years it seems my Mom has signs and symptoms of dementia. No diagnosis and my Mom will not go to a doctor for anything. She is fit, healthy, active but it is clear her cognitive abilities are intermittently affected by “dementia?” She takes no…
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Forgetting how to get in bed
Anyone dealt with a fairly functiontioning PWD but whom can’t seem to remember how to get herself in bed? My mom is still in AL despite some decline recently. She’s still able to use toilet and bathe herself, feed herself so not quite ready for MC (she doesn’t wander either). Previously she’d get herself in bed like a…
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Aggression and violence-early onset
Hi I have a dear friend that is dealing with her husbands combative, violent aggression. He is an early onset patient and 70 years young. He was placed in MC and they had to transport him to ER because he was harming the staff. The ER sent him to a geriatric psych facility 2 hours away. After 10 days there the psych…
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Eating less & sleeping more
I guess this is “normal” progression, but my DH has been eating half as much for a while and has been sleeping a few extra hours a day for a couple of months now. I put him somewhere in stage 6. Today, he put himself to bed at about 7 pm and ate very little. I guess I’m freaking out a little b/c I’m seeing (maybe a faster)…
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behavioral advice needed
Hi, A few months ago my husband and I joined a state funded Medicaid/Medicare association that provides day care, OT, PT, medical care, etc. So far it's been great for both of us as he is an 85 yr old with ALZ and I am his wife/caretaker, 75 year old with physical disabilities. We go 3 days a week to the daycare to give me…
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DH diagnosed in Moderate Stage
Our first appointment with Geriatric doctor today was good and i was happy with time she spent with my DH. She did some testing and after 3 years with MCI, was not surprised that he was diagnosed in Moderate stage. It is the longest stage, but can move faster with illness or life events. Since he is not displaying any…
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Hi - I really need input about end of life
My sweet husband is nearing the end. I feel so alone. We’ve been married for 24 years. No kids. What family he has walked away when he got diagnosed 6 years ago. He resides in a memory care facility in Los Angeles where they take really good care of him and love him. He was only 59 when he got it and now he’s 65. Had a…
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To all caregivers Merry Christmas....
Oh how the holidays have changed. Blessed are the caregivers like me.
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Zoom or online chats
Is there place to go to be on a live support group chat or zoom call? The posts can be helpful it would be nice to talk to people in real time. I don't have the energy to go through all the posts. Thanks
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sensitivity extremes
Does anyone experience LO being overly sensitive to things like light, noise,temperature? My DH complains when I get a pan out of cupboard that I am making too much noise. He gets upset when lawn guy runs the mower or blower. Everything is too bright, too loud, too hot, too cold when they are not that bad. Thanks for input
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Mom with dementia moved to AL and misses her house. Can she go back and say bye to it?
Hello All. I recently had to put my mother into AL due to her dementia and she never had a chance to day goodbye to her house. We sold the house and I am wondering if I could take her back to it to say "goodbye?" Since she left she was crying daily about missing it and I am scared if I take her back, she will relapse into…
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Mom's ALZ has dropped a level
Hi All, Over the past few weeks we are seeing a drop in her abilities. Mom lives in Assisted Living which is great. We have watched her cognitive ability drop from time to time and most recently about a month ago she started having hallucinations (thinks she is being held somewhere then realizes she is in her bathroom).…
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How to support emotionally who got diagnosed?
My parent got diagnosed with Alzheimer's. She understood the diagnosis because the dr said that the MRI definitively showed it. My parent accepted this as the truth. For her the diagnosis came out of nowhere as she is unaware of her symptoms of cognitive decline. She was sad and expressed not wanting to be a burden to…
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Wants to go home to his parents
My DH has asked off and on over the last few months if his parents are alive, and I’ve said no they are not and he’s been fine with that. Over the last couple of weeks, around 6:00 or so, he mentions he needs to go home. I tell him you live here with me so you can just stay here - again he’s been fine with that. Today at…