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ALZConnected Q&A Thread
Hello all, The ALZConnected team wanted to let you know that we very much appreciate the constructive feedback we've read since the new platform's launch. We're listening and doing what we can to make this platform as positive an experience as possible. As such, we have created this Q&A thread to answer questions and…
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Dementia Resources
This page contains downloadable PDFs about a wide range of topics related to Alzheimer's and all other dementia. For additional help or support, please contact our 24/7 Helpline at 1-800-272-3900 Resources for People Living with Dementia Learn how to live well with Alzheimer's and dementia Take an online education program…
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Our Last Mile
Well forum mates - friends, there have been many near-misses and false alarms on this long journey. My beloved DH has fooled us many times, or let's say trickster dementia has. Some of you will recall I saved his life at least a couple of times, knee-jerk reaction and loving instinct. And he was thought for sure to be in…
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Overwhelmed
New to this discussion and hopeful for some assistance/direction, words of wisdom….my husband was recently diagnosed with EOAD, with lvppa variant. Went to 3 neurologists. Told he is in mild stage. Scored 19, 20 on MOCA. Had a silent stroke but don't know when….cognitive and some immediate memory issues prompted PCP visit…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Mom is at peace now
My mom has ended her journey with dementia. She became ill last week at her memory care facility and ended up in the hospital for 5 days. They did as much as they could without going to extreme measures. Probably more than she would have wanted. They made her comfortable and she passed quickly and peacefully. I didn't post…
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Our last mile
*posting in spouse/partner forum too Well forum mates - friends, there have been many near-misses and false alarms on this long journey. My beloved DH has fooled us many times, or let's say trickster dementia has. Some of you will recall I saved his life at least a couple of times, knee-jerk reaction and loving instinct.…
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Dreaming of the future
We spend so much time caring for our demented spouses. Our lives are turned upside down and inside out, being dragged down the rabbit hole with our spouses to "dementia land". Our days look so very different with more work than we can accomplish and little time for ourselves and our needs. My husband is sleeping more these…
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Overwhelmed
My mom 65 is currently in the process of getting diagnosed with dementia. Her current symptoms or confusion she doesn't know who we are ( siblings or cousin) she is also paranoid and always thinks people are in the house she believes that my dad is stealing money and is cheating on her, however in the same breath doesn't…
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Just need to talk to my friends (202)
Iris, cutting ice is a really important chore when it's freezing, otherwise either the cows won't have water or they'll walk out on the ice and break through into the icy water and freeze. I remember Charles cutting ice on the pond and when he would cut a big piece he would slide it under the unbroken ice. Usually would…
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MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
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Revealing diagnosis
How and when does one begin the process of revealing the diagnosis?
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Kisunla
I am interested in hearing from someone who has experience with Kisunla infusions. Thanks! Didi
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Cooking doesn’t get much easier
Super Easy Mexican Chicken 1 can cheddar cheese soup 1 can cream of chicken soup 1 can chicken breast small or large can (I don’t see much difference) 1 can Rotel tomatoes 1 small can diced green chilis Flour tortillas About 4 oz. Mexican cheese Mix first 5 ingredients together Lightly spray PAM in 8X8 or 9X9 baking dish…
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Confusing Wishes
Hello, new here. I've been reading comments on this forum for awhile which have been VERY helpful, and I finally decided it's time to get on here and start asking advice/thoughts and maybe share my experiences on others' posts if I can be helpful as well. My mom is almost 84, moved in with us from her hometown of over 40…
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Journey's end
Fellow travellers on the dementia journey: for most of the last 17 years I have been a sporadic visitor here. Apologies for being out of touch so often. I have always found this place to be a great source of support on my caregiving journey and I am grateful to so many friends whose location and names I will never know.…
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What to Do When My Grandmother Brings Up Her Dead Brother
Hello all. My grandmother has undiagnosed dementia (probably stage 4 or 5). She seems almost fine in the morning, but is a major sundowner and can't hold a conversation after about 6:30 PM. Her brother died in May, but I'm not sure if she remembers. Her long-term is usually fine, but she hasn't brought it up once since the…
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Leqembi infusions
Have your persons been doing Leqembi infusions? Has it helped? What can you tell me about these infusions.
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Your humor for the day...
I posted a few days ago a question about men's briefs and it was suggested that I purchase male "guards" as a way to combat the beginning urinary issues….several people answered, and then, today, we had this new turn of events. I thought folks might enjoy…. Well, a chuckle for those who answered my initial question…..DH…
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Rx question for the medical folks...
DH has knee arthritis, pain in the knee and back from his back, and now apparently arthritis in both his feet. The foot pain seems to be even worse than the other and sometimes so bad he can barely walk. The ortho doc prescribed a compounded cream for the knee, and several months later the podiatrist has prescribed a…
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Transition to MC Planning
We have had a really tough couple of weeks leading to a MC move decision. I am looking for insights from those who have done the MC placement. I think I have a fiblet that could work for the transition - I am not well, too fatigued and I have to go in for tests and likely TCU and the medical folks arranged for him to be at…
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Toured a few memory care facilities
My DH is in moderate stage and I plan to take care of him as long as possible, but been told to have a Plan B. I never realize the memory facilities are so competitive with each other. And, they are a little pushy at when to admit him. They told me they would not be able take him if I wait too long. My DH is doing good and…
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Dementia discussion
Hi All, I am new to this site and wondered if my experience resembles anyone else's. So far, I have had the following tests, which all came out ok. CT Angiogram, EEG Brainwave, Echo Cardiogram, PET Scan, Ankle Brachial, and Heart Monitor. The initial discussion with the doctor is Dementia. Also, what are the common…
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Driving
How do I begin the conversation with my DH who is beginning to show signs of driving incompetence. He rooms over to the lane beside him and straddles the lane lines, he hits the brakes abruptly when he gets in a close situation or even when pulling out of our driveway and sends me forward without my seatbelt on yet even…
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Picking at skin
please help! My husband was diagnosed with Lewy Body dementia. He picks at his arms, face, hands, ears and legs. Today he picked at his hands from morning to night. I can’t keep him preoccupied long enough to stop. I put bandages on him but he takes them off. I’m at a loss and he’s getting more and more open areas…
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Taking the car keys
Hi - I'm new and this is my first post here. My 86 yo dad has been diagnosed with Alzheimer's and dementia and was told not to drive by his Neurologist at the time of diagnosis a couple of weeks ago. I took the key fobs but he found the backup manual keys. I am trying to avoid a confrontation when I take the remaining keys…
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DH put on in home hospice care
The long road is heading towards the end. I am trying to stay strong, but with each passing day, the road becomes more treacherous. Last night DH fell after getting out of bed in the dark. In the process, he lost control of his bowels, in his Depends. Hospice said to call 911 for a non emergency lift assist. This is the…
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Bible Verse to Lift You Up 2/15/25
BE STRONG AND COURAGEOUS! Joshua 1:9 New International Version 9 Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.” Joshua 1:9Amplified Bible, Classic Edition9 Have not I commanded you? Be strong, vigorous, and very…
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Easy website for answering questions about my father's condition
My father has had Alzheimer's Disease for the past 7+ years and has progressed into a later stage. I've had lots of questions along the way and I'm finding it really frustrating to search and visit lots of websites for simple answers. Just discovered pfizer has a new website that answers questions. I put in some questions…
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Feel Lost, Need Advice with Mom's Dementia/Alzheimers, Living and Depression
Mom was diagnosed 3 years ago with dementia. We believe she is about 5 - 6 years into it though. She also has severe depression, diagnosed 30 years ago. She is in an AL, but absolutely hates the place. This is her 4th home in 3 years, and the smallest so far (IL, AL, MC, AL). She is again in a severe depression, they seem…
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Are PWD capable of any kind of understanding of consequences?
My DH is probably in stage 5. Recently he has been accusing me of having a boyfriend and going out on dates when I am not visiting him. He is very crude in his description of what I am doing with this boyfriend, and does not believe any of my assurances that this is not true. I can't seem to get him off the subject and he…
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delusional mother being abusive towards me
I am so worn down by my mother's constant accusations, and although I know its a disease it still hurts so much! She doesnt have anyone else, so I am her main source of care- I get her groceries, do her hair and nails, take care of her finances, manage her meds, take her to all her appointments, and moved her…