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ALZConnected Q&A Thread
Hello all, The ALZConnected team wanted to let you know that we very much appreciate the constructive feedback we've read since the new platform's launch. We're listening and doing what we can to make this platform as positive an experience as possible. As such, we have created this Q&A thread to answer questions and…
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Dementia Resources
This page contains downloadable PDFs about a wide range of topics related to Alzheimer's and all other dementia. For additional help or support, please contact our 24/7 Helpline at 1-800-272-3900 Resources for People Living with Dementia Learn how to live well with Alzheimer's and dementia Take an online education program…
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UTI Test for Incontinent?
Hello. Is there any way a nursing home can test a patient who has Alzheimer's and is incontinent? My mom is 87, and recently, her agitation and combativeness have continued to escalate. She is hitting, biting, scratching, screaming, and, as they said, "speaking in tongues." She sleeps mainly all day and does not eat as…
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What to do in emergency!!
I asked my wife if I collapse and was unresponsive what would you do. She had no idea who to call I told her 911, 15 min later I asked her again had no idea. This does worry me as shit happens. Has issues using phone. ANY IDEAS
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Wants to go home to his parents
My DH has asked off and on over the last few months if his parents are alive, and I’ve said no they are not and he’s been fine with that. Over the last couple of weeks, around 6:00 or so, he mentions he needs to go home. I tell him you live here with me so you can just stay here - again he’s been fine with that. Today at…
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Wants to talk to his parents
I’m posting again on this issue because it came up again but worse. He wants to see his parents again. I said they were staying with his sister for a while. He wants to call them to talk to them. I pretended to call his sister and that she didn’t answer - and I would try again later. Distraction wasn’t helping at all. Then…
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hello I am new to the group
I am asking for help for anyone who would know how I could go about this. My husband has been diagnosed for 6 years but was in a fog for 3 years before that before we go the diagnosis. He is moderate to severe state, cannot drive, dress himself, walks with walker and not good at that, has trouble with speech. He was a…
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Way to long and now he is gone
Hello all, it has been way to long since I have posted or even been on this site. It was just too hard. I enrolled my DH into hospice the end of Sept. basically because of dramatic weight loss. He went from 175lbs in April to 145lbs in Sept. They have a hospice respice center with 10 beds where you loved ones can go for 5…
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Scared to be alone
I don’t know what to say anymore when my mom says ‘I’m lonely. When are you coming back? Promise?’ I see her in MC almost every day. I know that she is scared bc she understands to some degree that she is losing her mind and afraid of what’s to come. Today she said to me ‘I’m really going to miss you. I’m running out of…
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Having a massive attack of guilt
My parent is going to be placed in memory care and it's going to have to involve some fiblets. I didn't expect to feel so guilty about this as ltc has been my goal for several months now. There is no feasible alternative and we selected the very best memory care in the area after a comprehensive search. I also feel guilty…
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Just need to talk to my friends (202)
Iris, cutting ice is a really important chore when it's freezing, otherwise either the cows won't have water or they'll walk out on the ice and break through into the icy water and freeze. I remember Charles cutting ice on the pond and when he would cut a big piece he would slide it under the unbroken ice. Usually would…
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How many caregivers are keeping their spouses at home until the nightmare ends?
I’m absolutely determined to see my DH through this nightmare. I am determined to keep him home until the end. Are there others out there that are doing this and have you managed to keep your sanity through it? My husband is in stage late 4/early 5. He’s always been extremely calm, kind, gentle, helpful, loving. I just…
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Leqembi infusions
We're looking into getting my DW on Leqembi infusions. Can anyone using this Med tell me if it works or causes more harm?
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What is the best way to help
Hi, My mom was officially diagnosed with dementia last spring. I knew she had it before that. She can still manage on her own… mostly. She is incredibly independent and stubborn, she always has been. I find that all of her good and bad personality traits have become more pronounced. Is that familiar to anyone else? My…
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New Here
I am an only child. My mom was diagnosed with Alzheimer's last Friday. I'm not sure how to feel or react still. I am trying to get her with me. That's what the dr has suggested. I live in an apartment. I'm doing my best to buy a home to bring her to. It's heartbreaking. But..I'm doing all I can.
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VD 93 yr old mom
just found you guys a couple of days ago. Thank you God for this support. I’ve known for quite a few years her mind was bad. Her old PC was not a very compassionate doctor so I finally switched her to a new one. CScan came back as vascular dementia. Her chronic UTI’s are a result of poor hygiene. She’s been on 6 rounds of…
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Sad caregiver
I am sure blue. I work so hard to stay cheerful, keep my spouse occupied and happy. I can never meet his needs, I am always a step behind.
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Caring for my grandmother and my family
Hello! New here and wanted to share my situation, and hopefully get some feedback. My wife and I and our two girls are live-in caregivers for my 93 year old grandmother. My kids are 5 and 6, and we have another on the way. When we moved in with her almost 4 years ago, we realized she wasn't getting the support she needed…
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Do some MCFs accept those who can no longer transfer?
The one I toured told me no, once they get to the stage of not being able to transfer themselves out of bed to a walker for example, they won’t accept them. And if they are already in their MC when they get to this stage, they put them in their SNF, which is like a hospital. No private rooms. Can you all tell me your…
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Waiting
Why do I always feel like I'm waiting on something? My DH has VD and alz. Plus multiple other problems copd cad ect. . Now he almost seems normal. I keep waiting for something to happen. WHY? WHY CANT I JUST ENJOY THE PLATUE HE IS ON?. What is wrong with me?
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Xmas decorations everywhere...
Just need to vent - my DH was diagnosed recently with MCI although I believe that he is further along and we will be getting further evaluation. In the meantime, I am really struggling with his "organization" skills and insistence that he does not need help. DH has always taken great pride each year in setting up full size…
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New to the group, any advice helps!
My mom got diagnosed in September of this year with Alzheimer's. Right now, it is mild where she needs things explained to her a few times or gets confused about dates. She still has her memory and wits about her and luckily her and my father retired earlier this year so he's taking care of her. She can still function on…
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Navigating emotions and getting help
Hello, I'm new to this group. My mom has alzheimer's. She was diagnosed 1.5 years ago. Since then I have put her home in a trust, Found private care for 2 hrs in the morning M-F, and was sending her to an adult program 3 days a week. She's been to the neurologist and had a psych eval. Believe she's in the middle range of…
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Constant phone calls
Hi everyone, my mother is in MC. She constantly calls me, and gets upset if I don’t pick up the phone. I have blocked her number. I call her most days to check on her. She is now talking other residents and an aide to call my number from their phones. Do I need to figure out each new number and block that? I also don’t…
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Dreaming of the future
We spend so much time caring for our demented spouses. Our lives are turned upside down and inside out, being dragged down the rabbit hole with our spouses to "dementia land". Our days look so very different with more work than we can accomplish and little time for ourselves and our needs. My husband is sleeping more these…
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DH says he feels worthless
It breaks my heart when he told me he feels worthless because he can’t do the things he used to do. I reaffirmed the things he’s doing right but that’s not enough. He still says he feels useless and good for nothing.🥲
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How to help loved one adapt to memory care
My parent went into memory care a couple of days ago. How can family assist in her adapting to memory care? I live out of state but my sibling is nearby as are my parent's siblings. I would like her siblings involved in her care as much as they want to be because it's such a big job for just one person. Right now she is…
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projecting future costs and availability of funds
Today I learned that your investment person, or financial advisor, or ??? can put your information into a spreadsheet that projects how long someone's funds will last if they enter memory care at a given date. Intuitively I knew this could be done but it had never been suggested to me in a "you ought to do this now" sort…
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Why so hard to get diagnosed?!?
:/ I am so infuriated as to why it is so hard to get doctors to take me seriously!! Why does being highly educated, very intelligent and a health professional make doctors think I am "just stressed out." I would not be ruining my career if I did not know that something is happening to my brain!!
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Being Alz”hammered”
Anyone been Alzhammered? Allow me to explain. So there you are finally taking time out, you go for a few hours out to relax and some of your acquaintances happen to be there. Mine happens to be the local Moose Lodge. Not so much friends but people you hang out with when you're there. Everyone asks you how your LO is… how…
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New Here: Dad still driving, working, making treatment decisions, but also raging....
Hi Everyone, I am new here and just looking for support to help my brain from melting. My dad a 78, in good general health. An Engineer/Scientist who is still working in his field. Lives with wife, drives, manages finances, invests, travels, etc. He has been diagnosed with either early dementia or Alzeheimer's (depending…
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Talking with others in early stage dementia
Talking with others in early stage dementia