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Not sure
hello everyone. I’m new here. I thought I would try this site before giving up. I joined another site a few years ago when my husband, the love of my life first showed signs of cognitive decline. There was so much negativity on what will happen and people were very harsh. I just wanted support. I got very depressed and…
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Just need to talk to my friends (203)
It has been a beautiful day, sunny and 75. Meant to check on the daffodils but forgot. The ones I can see from the kitchen window look okay! QVC has started their gardening shows so Spring is near. They had the perennial Gerbera daisies again today. So pretty. I bought them two years ago and had one bloom and they didn't…
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DH in NH pinched another resident km
DH has been in NH for 2 months. He has been wandering into other people's rooms. Last night got a call that he had pinched a woman and caused bruising. Needless to say the female resident was yelling and extremly upset. I feel terrible he did that to her and today he's having a psych evaluation in house. Anyone ever go…
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Waiting for the ER
DH had a complete mental breakdown at his rehab center today, where he was recovering from a fractured tibia. He has been declining for a week now, and I’ve been begging and pleading for help from them which was not forthcoming. They finally decided tonight to send him to the hospital with a diagnosis of “altered mental…
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Question about adult daycare
I went to my support group today. At least three people there sounded like their loved ones could benefit from adult daycare, but they all said that their people were still too early in the disease and too aware to be willing to go without a fight. How might they approach the subject to make their loved ones more amenable…
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Accepting
Hello, This is my first post. My DH just turned 67 and was diagnosed with Alzheimer’s less than a year ago. I am still trying to adjust to this new reality and how quickly he seems to be declining. I found the posts on hallucinations very helpful. In the past several weeks he has awoken in the early morning (usually around…
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From NPR: A piece on "Caregiver Identity Theory"
An interesting read-
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Difficult sibling
I probably already have a post with this title. My brother visits mom once a week and is kind and caring towards her. But! He dumps all his personal problems on her ( she worries constantly). He believes she should be informed and consulted on almost everything. He is obsessed with her “rights” even at the cost of her…
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Should we travel?
My DH has been diagnosed with MCI although I suspect that he is further along in the process. He has always been close to his sister who lives several states away; and her husband passed away recently after a difficult battle with ALS. His sister is hosting a "celebration of life" open house at her home in a few weeks in…
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This journey
It’s been 3.5 years since my dad passed and I became my mom’s caretaker and her dementia took a fast slide. She moved out of state to be close to me 2 years ago. Many of you have been right there with me on this journey. Staging: she was probably stage 3-4 before dad passed, 5 when she moved here. Now she’s in stage 6 in a…
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New to this Group
I am caring for my DH who has had cognitive decline over the past 4 yrs. As I write this, I can't believe it's been that long. I am trying to abide by the rules, however find myself breaking the rules, especially when I am in the middle of something, (like doing taxes today). He has alcohol dependance with a dementia /…
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Need help accepting caregiver
We're trying to hire a caregiver/helper for a few hours a week, but my wife is very private and gets angry at the idea of having someone else in our home. We need some advice on how to resolve this. Thanks.
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Looking for caregivers to share their story
Hi all, my name is Georgia Chen, and I am a journalism student at Georgetown University. I am writing my thesis article on the challenges caregivers who are untrained or unsupported face (ex: family members, young caregivers, etc.). If any of you resonate with this, would you be willing sharing your story with me? My email…
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Mother Passed Away/Car Keys
My mother passed away 3-4-25. Father was diagnosed with Alzheimer’s January 2023. He has been is early stage to date. Still takes care of himself, but can’t manage bills laundry or cook. I have 2 sisters. One lives right beside him & helps a lot, but works FT. One lives within 5 blocks, helps after work. I live 2 hrs away,…
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This may be crazy question.. but has anyone ever heard of someone staying in say Stage 4
has anyone ever heard of this ? I’m curious or hoping has anyone just at a say Stage 4-5 and never going further. ????
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Bad day
Sitting here reading through some of the post/discussions, hoping to find someone to connect with. I just feel so alone. Even when I'm with family and friends. I'm anxious about an upcoming appointment with my Neurologist (Thursday)even though Leqembi infusion treatments have been going well. Every morning, I wake up and…
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Planning first visit to memory care
I'm planning my first visit to see my parent in memory care. I'm out of state so it's a big endeavor. I'm traveling by myself without my family. Besides visiting with my mom, The purpose of the trip is to check out the memory care facility, meet the staff and then check out the surrounding area to plan excursions with a…
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Grief and Guilt
My Dad was diagnosed with dementia in 2019. He moved into an ALF when it was no longer safe to drive. He was living there for 3 month then Covid hit, they were basically locked down and he was kept in his apt with no outside stimulation. That's when he began to really decline. At that time he was living an hour away and I…
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Frail Elderly Waiver
If your loved one has a frail and elderly waiver, please tell us what services they get through this program. (Bonus points for Massachusetts). Thank you.
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60 minutes interview
This was posted by a neighbor. Can you imagine being worried about retaliation for speaking about Alzheimer’s research?
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When do you know it's time for a facility?
Hello. My name is Maria and I'm new to this forum. My mother will be 83 in July and is still living independently in a 2 story townhome with laundry in the basement. She has a companion that comes from 11:30 - 4:30 on weekdays. My sister and I spend time with her every Wednesday evening and on weekends when we can. We are…
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Moment of Being Overwhelmed with WHY?
Please no advice! Just a listening ear is what I need. I am sitting at a Panera alone with an iced tea. I fled our home—literally—-a bit ago because I could not take another moment of being in the presence of DH with mild cognitive impairment from ALZ. I feel utterly alone in this moment and overwhelmed. I have no one to…
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Worried about Mom
My parents have different stages of dementia. My dad, 89, is well situated in a care home under hospice care. He is very easy to take care of since he is totally bed bound at stage 7. My Mom, 84, on the other hand, is going to be a challenge. She has realization that her memory is getting worse and she knows she has…
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Medications?
My husband is starting to show signs of paranoia and hallucinations. He’s currently in a long term care facility. He’s in palliative care. I’d like to bring him home, but he has wandered in the past and sundowns. Does he need to see a neurologist for a diagnosis? How do I find out if he needs medication? I can talk with…
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State Law Regarding Patient to Employee ratio at Memory Care Facilities
Did you know that the State of Florida allows the same ratio of staffing for Assisted Living residents as it does for Memory Care! How is this possible when many of those in Memory Care required much more daily support? As individuals we are helpless without the support of organizations like the ALZ Association and…
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how to update neurologist
I have not seen my neurologist in a year and have declined frighteningly in last 12 months. How do I explain all the changes?
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Dad won't get out of bed
He has stage 6 Alzheimers, and I received a call that my dad will not get out of bed and refuses to eat anything. Here are a few bullet points describing our situation: He is in an excellent facility. He has 2-3 family visits a week from myself and my brother. Last week I visited him 4 days in a row, including taking him…
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Filing for Long Term Care Insurance too early?
Hi, I am posting for the first time regarding my 83 year old Grandma. She has had cognitive and memory issues for years, but in the past month she was properly diagnosed with dementia. I had previously lived with her 3 years ago after she was a scam victim, but after about a half of year, I moved back home. I am now…
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Seroquel use in Alzheimer’s patients
DH is very agitated and having hallucinations. Doc prescribed Seroquel. Researching Mayo Clinic said it should not be used for Alzheimer’s patients. I am confused as it is often recommended. Thanks ! !
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Spouse prone to anger if I disagree
My spouse might be angry about a person or incident and insist that I give her a simple yes or no as to whether I agree with her. I cannot in good conscience agree but if I don’t I know she will be very agitated and angry at me. Or she might be demanding that I tell her I will do something very important to her when I’m…