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Hired companions to supplement MC.
I’m new here. I started writing a long backstory and decided to cut it down to the immediate situation. Mom has been in MC for about a year after being diagnosed with dementia. She went from living independently and walking regularly to MC in a matter of weeks. She has been unhappy depressed and angry about her situation.…
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What do you to talk about with your LOs?
My DH with Alz is in late stage 4, perhaps early stage 5. Most days he's still quite independent in caring for himself and doing household chores. The problem I'm having is that chatting with him has become such a mentally exhausting task. I find myself thinking "oh, I'll just tell him about this" and then I realize I…
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I Want To Live With Someone Else
My spouse with nearly complete aphasia has managed to pull out that full sentence for a couple of weeks now. She is soooooo sick of me being her caregiver. I now represent the person controlling her life and keeping her from driving to go see friends, etc. Which I am, though I'm providing her a safe, loving and comfortable…
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Her Sun Has Risen...
I know the discussion title is a little unusual, but I chose to title it that way to reflect her freedom from the disease on this side of life. That's how I like to think of it anyway in order to retain some sort of sanity. My mom, diagnosed with Alzheimer's in 2018, transitioned in late-August of this year. I am her only…
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Just got the scan results - now what?
Hi — we just received the results of the PET‑CT amyloid, and they are not good. My mom is 76 and has some memory issues, but nothing severe. To be honest, we saw the neurologist mainly to check whether she had any problems; I had no idea she might really have Alzheimer’s disease. Now she has to take a psychoneurological…
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Book: The 36 Hr Day
Greetings all. If you have read this book, what things seemed to stand out or "jump off the page" to you? I have been cherry picking my way through the book and know I have so much to learn. Thank you. Take care.
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Just need to talk to my friends (212)
Time to go to bed and watch tv a while. It's been a long day. Hope all of you have a good nights sleep. Thought I would start 212 while I thought about it. Good night.
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Tired and Sad
I thought I was handling things quite well. But short of sleep for the last couple of nights then this morning started at 5.30 with DH saying come on get up, I mumble back, 6 o’clock is get up time and then we’ll have a cup of tea. DH was agitated thinking we had a doctors appointment and we had to get ready. It’s Saturday…
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general anxiety
hello-I am new to this group and discussion forum as my husband is now in a group home/assisted living facility and I am on my own. The more time away from each other, the more memories pop up that now seem 'weird' and signs of the dementia beginning, but I had no idea and just shrugged it off. Over and over agin, doctors…
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Keeping a loved one at home vs nursing care
My husband has early onset Alzheimer's, do many people going thru this same thing, keep there loved ones at home vs nursing home??
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Travel With Alzheimer’s
My wife has Alzheimer’s, and she really wants to move back to her hometown, which is 2500 miles from where we live now. We can either fly or drive (money is not a concern), but I can see potential problems for either. Driving will mean many hours in the car each day, and she doesn’t like that idea. Flying presents other…
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Just as my DH is forgetting who I am, I am also forgetting who he is.
It is so hard to remember the old DH - the one who made me laugh, who took care of my car, the finances, and the heavy-to-lift things. He is quiet now, very suspicious of my "boyfriends" who seem to be everywhere, and rarely smiles. He has to be fed and has a hard time swallowing, and most meals have at least one incident…
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I am living with a mild form of Alzheimers
The mild form of Alzheimers I've been diagnosed with is not very noticable. I am able to answer questions which are readily posed to me
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Memory Care + Aide - Make it make sense
I'm trying so hard not to vent, not to be angry. But my mom's MC is asking me to pay for a person to be with her 12 hours a day because of the falling. We literally can't afford this full time, so I'll be doing it on weekends. I get that they can't be with her 1:1 all day, but it's just incredible. The cost seems…
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Anyone Using Tack GPS device?
Hi, Just got a Tack for my dad, pretty good, but it kicks my husband off if I'm on and vice versa. I also only want to see where he is, not share my location but it keep wanting my location and drains my phone battery. Any ideas?
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Caregivers Dealing With Menopause
Hello, Dad is in a care home, but I do all the $$, medical, have moved him 2x, sold his house, etc. I'm 54, menopause has drained so much of my energy and brain fog is real. Was on HRT which fixed these things, but had to go off bc of other side effects (inner ear problems- vertigo, dizzy, motion sick). The fatigue some…
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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What next?
My wife is somewhere in stage 7 and still at home with me. I tried her in a memory care facility 6 months ago for a short time. She suffered a bad fall so I brought her home. Her condition continues to deteriorate. She is able to walk with me assisting, but she cannot get out of bed or a chair. She is barely staying awake…
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If missing them didn't have to hurt...
I've been hurting mentally & physically since my husband was diagnosed with Alzheimer's. The hurting became worse after he passed in August 2024. I recently saw an article about "Thought Stopping" to cope with grief. You can search for the Thought Stopping techniques online. It is helping but it takes practice. The…
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Life after diagnosis
I’d be interested to hear how you’re dealing with life after dx- like your personality has changed. I feel super sensitive and just different.
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Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
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What can I do?
My DH is somewhere around stage 6 and we’re dealing with a repetitive behavior which I can’t seem to break. He goes through hours long periods at different times of the day where he constantly gets up to pee. Usually he just goes through the motions and doesn’t go. This happens every 2 to 5 minutes. He’s has other…
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Just need to talk to my friends (211)
Carl. I remember George Gobel but hadn't thought of him.in years. My sister had a fig tree in her back yard and she really enjoyed them At the VA Hospital there was a big fig tree between two.of the.buildings across from the main hospital. We called them the quarters where Doctors used to live. Eventually the doctors moved…
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Newly Diagnosed, starting Leqembi
I was just diagnosed with MCI AD at the age of 59. My mother (81) has AD although she does not have a definitive diagnosis since she lies to her doctors and cancels doctor appts. Because of her, I soke with my Neurologist who I see for a Benign Essential tremor (since age 16) and mentioned my mom. So we did the blood test…
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COVID Vaccine Side Effects
Is anyone else’s LO’s dementia adversely affected by the COVID vaccine? My DH becomes even foggier than usual, falls a lot & becomes more hostile for about 2 days, then returns to baseline. Trying to avoid hospitalization this time.🤞
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recommendations for elder law attorney in Minneapolis/St. Paul?
I've looked at the links that could help me locate an elder law attorney, but I'm curious if anyone has worked with, and can recommend, an elder law attorney in the Minneapolis/St. Paul area? I always like getting referrals from real people who have "been there and done that". 😉 Thanks in advance for any ideas!
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Roadtrip from hell - vent
We went out of state for an event. Going wasn't too bad. My pwd only complained about the length of time the trip was taking. When plans were made, knowledge that it was going to be a 10-12 hour journey, was well known. Our return home became "Hell On the Highway, Homeward Bound." For no less than FIVE HOURS, she insisted…
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My mother won't see a doctor and she is not okay
My mom has always been incredibly independent and strong. She is 82 now and the last couple years she has steadily declined and has every last symptom of dementia or Alzheimer's. I live 4 hours away and my sister is close to her and keeps me updated ( I'm in the process of trying to move closer). Mom refuses to see a…
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The morning after....
Good morning all. It is the morning after my first Leqembi infusion. I had worked myself into a tizzy of fear that by the time I got to the infusion center I was trembling so uncontrollably I was almost unable to speak. But... All went well. I had been told that since this was my first infusion that I would have to wait up…
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progression question
Hi all- I have a question for those of you that have spouses who have advanced from early/mid to mid/end stages and this may sound dumb. Can you share how that change happened? Currently, my DH is in early/mid where he is still driving and technically still working even though the walls are closing in and he will be let go…