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A Wife and A Partner
Not sure why I'm posting this……I'm not looking for validation and certainly don't need judgment. I guess just sharing my experience. My wife was diagnosed with early on-set Alzheimer's over 7 years ago. She is currently non-verbal, fully incontinent, and unable to do anything for herself. I am blessed that she is still…
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Exhausted and depressed
I am new to this forum. My mom has alz and vascular. I have been taking care of her since she was diagnosed 4 years ago. My husband retired early so he could help me(last September) Over the past 1 1/2 years she has gotten progressively worse. I had no idea how much harder that it was going to be as time went on. We are…
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Words I never thought I would say
We've all said things to our partner with dementia that we wish we could take back — angry, frustrated, sad, words that they can't begin to understand the reason for. Fortunately they forget quickly. Lately I've said something to friends and family that I never expected to. I'm ready for my husband to die. DH has been home…
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Taking away financial agency and bvFTD
Hi all, My dad is 77 and was diagnosed with bvFTD a few months ago. He always handled all the finances and rarely spoke of money to my mom. When I realized something was terribly wrong about 2 years ago, I started the process and now (thanks largely to advice on this board!) I have DPOA and health care proxy for both my…
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What do you need to provide for a live-in caretaker?
I am considering hiring a live-in caretaker for my father. I am having trouble finding much information about what sort of living environment you need to provide for the caretaker. Any guidance would be appreciated. To provide some context, my father's house is not in good repair. I would not want to live there but my…
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Just when you think thing are doing prettygood
A slight change in a routine about locking the doors while I was at work.He became confused to why we need to.i have grand son I cant quit trust. He knows when I'm gone I I would the doors unlock.dh very upset when just thinks about him. Not quit sure what to do to make him less agitated.
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Just need to talk to my friends (203)
It has been a beautiful day, sunny and 75. Meant to check on the daffodils but forgot. The ones I can see from the kitchen window look okay! QVC has started their gardening shows so Spring is near. They had the perennial Gerbera daisies again today. So pretty. I bought them two years ago and had one bloom and they didn't…
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Accepting
Hello, This is my first post. My DH just turned 67 and was diagnosed with Alzheimer’s less than a year ago. I am still trying to adjust to this new reality and how quickly he seems to be declining. I found the posts on hallucinations very helpful. In the past several weeks he has awoken in the early morning (usually around…
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The weight of the world on my shoulders
Hi - I'm new to this forum. Warning - this is going to be a lengthy post as I just need to let some of this out** Thank you for being kind. I finally sat down and joined because I am at a breaking point with being a caregiver to my mother, a mother of two teen girls, a wife and the primary (and only) income earner in my…
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Experience with Caplyta
Hospice is recommending Caplyta for my DH with EO. Has anyone had experience with this drug?
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Auditory Hallucinations
My DH has been having memory issues about 3 years now. He is definitely in mid stage of this disease. I noticed about a month ago he seems to be having auditory hallucinations. He would ask me to repeat what I had just said to him when I had not said anything. He is 63 yo and i will be 62 yo tomorrow. I still work full…
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Falling Apart Caring for my Mom
Hello. I am not doing well. My dad had Alzheimers in the last 7 years of his life, and I cared for him. I thought that was all over when he died in 2017. Then in 2020, it started all over again with my mom. It's been 5 years now, and I'm going absolutely bonkers. My life is falling apart caring for her. Almost everything…
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Seizure
My DW (EOAD) had a seizure this morning while we were having breakfast. I had never witnessed a seizure before and it was very scary. Luckily I was with my MIL and she was able to call 911. She had a large contusion and we had a CT which found no bleeding in the brain. She is home now. My question is does having a seizure…
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State Law Regarding Patient to Employee ratio at Memory Care Facilities
Did you know that the State of Florida allows the same ratio of staffing for Assisted Living residents as it does for Memory Care! How is this possible when many of those in Memory Care required much more daily support? As individuals we are helpless without the support of organizations like the ALZ Association and…
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Questions: Cleaning up poop with shaving cream
* Does it matter what kind of shaving cream I use to clean up poop? * Does shaving gel also work to clean up poop? * Should anything menthol be avoided? * Do I just slather the shaving cream on, then wipe it off? * Do I rinse DH after wiping off the shaving cream? * Can shaving cream also be used for the bathroom clean-up,…
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Kinsula treatment
Is anyone in this group being treated with Kinsula? If yes what has been your experience. I would like to know more about it before making a decision to start treatment.
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Took part in Alzheimers Research study
My father clearly had some form of dementia but didn't get an actual diagnosis, it was just described as senile dementia. I have never had a great memory, but it was getting worse. I recently participated in a research study looking for the biomarker for Alzheimers. Blood tests showed I have the biomarker for Alzheimers.…
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New to this Group
I am caring for my DH who has had cognitive decline over the past 4 yrs. As I write this, I can't believe it's been that long. I am trying to abide by the rules, however find myself breaking the rules, especially when I am in the middle of something, (like doing taxes today). He has alcohol dependance with a dementia /…
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What to do in an emergency??
it’s me again haha. I play a game with my wife that I’m feeling ill and become unconscious I ask her what do yo do , by the time she even says I don’t know I could be gone. My question is what to do ? Has trouble using phone or remembering numbers or even where those numbers are , even 911 is an issue. She’s very bad with…
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An ugly discussion about poop!
Sorry, everyone, but I have a question about poop. My husband is in a memory care facility. Lately, his bowel movements have been very soft, and impossible for him to pass all of it while he is on the toilet. He is unable to wipe himself, so he ends up with poop everywhere. He doesn't tell staff when he has to go, so they…
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Medications?
My husband is starting to show signs of paranoia and hallucinations. He’s currently in a long term care facility. He’s in palliative care. I’d like to bring him home, but he has wandered in the past and sundowns. Does he need to see a neurologist for a diagnosis? How do I find out if he needs medication? I can talk with…
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Am I being unreasonable?
I’m 81, my DW is 82. I have been her primary caregiver since she was diagnosed three years ago. We live in rural Western PA. Between our prior marriages we have 8 kids. They all live far away, the closest is her daughter who lives fours away. She is in stage 5. I have had to take over all the finances, medications, meal…
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From NPR: A piece on "Caregiver Identity Theory"
An interesting read-
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DH in NH pinched another resident km
DH has been in NH for 2 months. He has been wandering into other people's rooms. Last night got a call that he had pinched a woman and caused bruising. Needless to say the female resident was yelling and extremly upset. I feel terrible he did that to her and today he's having a psych evaluation in house. Anyone ever go…
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Waiting for the ER
DH had a complete mental breakdown at his rehab center today, where he was recovering from a fractured tibia. He has been declining for a week now, and I’ve been begging and pleading for help from them which was not forthcoming. They finally decided tonight to send him to the hospital with a diagnosis of “altered mental…
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Question about adult daycare
I went to my support group today. At least three people there sounded like their loved ones could benefit from adult daycare, but they all said that their people were still too early in the disease and too aware to be willing to go without a fight. How might they approach the subject to make their loved ones more amenable…
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Not sure
hello everyone. I’m new here. I thought I would try this site before giving up. I joined another site a few years ago when my husband, the love of my life first showed signs of cognitive decline. There was so much negativity on what will happen and people were very harsh. I just wanted support. I got very depressed and…
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Difficult sibling
I probably already have a post with this title. My brother visits mom once a week and is kind and caring towards her. But! He dumps all his personal problems on her ( she worries constantly). He believes she should be informed and consulted on almost everything. He is obsessed with her “rights” even at the cost of her…
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Should we travel?
My DH has been diagnosed with MCI although I suspect that he is further along in the process. He has always been close to his sister who lives several states away; and her husband passed away recently after a difficult battle with ALS. His sister is hosting a "celebration of life" open house at her home in a few weeks in…
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This journey
It’s been 3.5 years since my dad passed and I became my mom’s caretaker and her dementia took a fast slide. She moved out of state to be close to me 2 years ago. Many of you have been right there with me on this journey. Staging: she was probably stage 3-4 before dad passed, 5 when she moved here. Now she’s in stage 6 in a…