-
Just need to talk to my friends ,(206) June 2025
Thanks for reminding me. Just now started to read. Been waiting for Bryon to come to mow but he hasn't. I'm worried that something may have happened to.him because he is always so dependable. Maybe he was mowing somewhere else and hasn't finished. Thanks, Carl, I'm pretty well today but not up to par. Something has…
-
Doesn’t want to go anywhere
My DW doesn’t want to visit family or friends both locally and long distance anymore. I’m thinking it because maybe she doesn’t remember them. Half the time she asks me what my name is. Should I just not worry and take her anyway. I’ve read that changes aren’t good. Maybe I should just accept that our days staying home are…
-
Alzheimer's Disease: The Steps to a Solution
The key to the treatment of Alzheimer's disease is likely the following: "The inflammatory mediator peroxynitrite, when generated in excess, may damage cells by oxidizing and nitrating cellular components. Defense against this reactive species may be at the level of prevention of the formation of peroxynitrite, at the…
-
National Plan to Address Alzheimer’s Disease: 2022 Update
https://aspe.hhs.gov/sites/default/files/documents/59cefdd628581b48b2e389891a675af0/napa-national-plan-2022-update.pdf The 2022 Update includes several notable recent actions to address disparities in ADRD care. Earlier this year, the Indian Health Service (IHS) established the Alzheimer’s Grant Program, a first-of-its…
-
Stabilizing Mild Cognitive Impairment and Mild Alzheimer's Disease with Panax Ginseng
There are multiple articles suggesting the positive impact of panax ginseng on various aspects of Alzheimer's disease pathology and at least three clinical trials/studies suggesting that it can at least stabilize mild cognitive impairment and mild Alzheimer's disease for at least two years if not more and slow down the…
-
Understanding Alzheimer's Disease
I have been studying Alzheimer's disease for almost twenty years now. When I started in 2004, my aunt and cousin were in the late stages of the disease and my mother was in the early stages of the disease. This is an extraordinarily complicted disease, but its underlying basis is fairly simple and can be summarized in the…
-
Leqembi does not help most women with Alzheimer's Disease
The latest news (actual old news that has resurfaced) is that most women with Alzheimer's disease do not benefit from Leqembi: "Third, the most troubling aspect was no statistically significant result – let alone clinically meaningful outcome – in women on the primary outcome or any clinical secondary outcome…
-
FINALLY MY ALZ JOURNEY ARE OVER
I struggled with Alzheimer's for five years. It started with small memory lapses and gradually took over my life. My family and I tried everything: medications, therapy, diet changes but nothing helped. Then I discovered Earth Cure Herbal Clinic (www.earthcureherbalclinic.com). I was skeptical at first, but their…
-
An Important Week in Alzheimer's Disease Research
This week there were three important findings regarding Alzheimer's disease: The first found that Alzheimer's disease is primarily caused by oxidative stress and that it potentially can be treated with a series of antioxidants. The editor for this group concluded that: "I anticipate that the OS (oxidative stress)…
-
Peroxynitrite scavengers for the treatment of Alzheimer's disease
This new study "confirms" what I have been saying for years: "The elevated levels of ROS (reactive oxygen species) are among the major pathological alterations in AD. Among them, peroxynitrite (ONOO-) exhibits a greater impact compared to other reactive oxygen species and plays an important role in AD, but the role…
-
Will There Ever Be A Succesful Treatment for Alzheimer's Disease
Some important findings about Alzheimer's disease came out from MIT and Harvard scientists recently that can be encapsulated in the following quotes: “One possibility is that maybe there’s more than one cause of Alzheimer’s, and that even in a single person, there could be multiple contributing factors,” Fraenkel said.…
-
causes of Alzheimers
My wife has recently died of Alzheimers. Over the past 3 years I have read a ton of information on Alzheimers and time and time again I have read that if you have certain things like high blood pressure or diabetes or you don't exercise or you smoke or drink or you don't socialize or you don't have an extended education…
-
MC 1 week and major decline
I did finally place DH in MC. The building up to it was gut wrenching, however, after I felt a sense of relief knowing he has 24/7 and me some freedom. The first few days went well. Evenings somewhat challenging but not too bad. Suddenly everything changed. DH angry outbursts early afternoon. He goes in and out of every…
-
Caring For Parent
Both my Maternal Great Grandmother and Grandmother had Alzheimer's. And now, I am seeing more obvious changes in my own Mother who is now in her 70s. I live out of state. I am in CT and my Mother is in FL. The most challenging part is dealing with my Father, her spouse, who is in denial. He has been trying to shield my…
-
He's forgetting how to eat
and even what food is…at least that is how it seems. I eat lunch with him on Sundays at the MC. For the last two weeks, when they bring his tray he just sits there and looks at it until I tell him to eat it. Then he looks at me and asks what he is supposed to do. This Sunday, I picked up his fork and put a piece of chicken…
-
It is the little things
As a caregiver for my DH, who has mixed dementia, I can no longer work full-time, and I haven't been in a restaurant for over a year. I mostly get out of the house when I can bring my husband with which is a challenge and can be exhausting. Recently, I have been sneaking out of the house early in the morning or late at…
-
OBSERVATIONS & FEEDBACK
Caring for my DW at home. Early stage AD, complicated by recent stroke. Largely recovered from stroke and now eligible to resume donanemab infusions. DW in denial & angrily resistant to medical help, OT/PT, meds and any caregiver advice and acts. Lotsa verbal abuse & defiance. Observations: 1. We caregivers share similar…
-
From NYT: When They Don't Recognize You
This should be a gifted link- https://www.nytimes.com/2025/04/20/health/dementia-family-recognition.html?unlocked_article_code=1.BE8.G3Pn.ikjbW50YMnR2&smid=url-share
-
Give me your dollar!
I came home from burying my wife today to find a recorded phone message dunning me for payment of an ambulance bill that is on my desk and due two weeks from now, June 16. The provider is the Sisters of Mercy, an order of Catholic nuns who purport to be a nonprofit faith-based organization. This is what the USA has instead…
-
Sleep pattern is a mess
my DH spent 3 nights in the hospital and returned home yesterday. While there, they gave him Seroquel at bedtime and it helped a lot with sleep. I could tell he had slept because when I saw him each day he was alert, upbeat, and didn’t nap at all during the day. A great relief because he wasn’t sleeping much at night when…
-
Short term memory gone now what?
Curious if there is stage where short term memory is just gone? DH has been declining with his short term memory but the past week it’s just not there! The verbal cues aren’t working, or verbal suggestions. Thought I’d have him literally write a list of 3 to-do’s , read it with him, asked what he will do first, got a reply…
-
GUIDE Program - Medicare & Medicaid
starts July 2025
-
New to Alzheimer's
I'm 58 years old and have been diagnosed with early onset Alzheimer's. I would like to talk with those who have early onset also.
-
Worsening Cognitive impairment with Borderline CSF -- When to Retest?
In early 2022, when I was 58, my neurologist ordered several tests due to my having worsening short-term memory and other cognitive issues. A brain MRI showed "marked cortical atrophy", and a CSF test conducted by the Mayo Clinic showed abnormally low Abeta42 (679 pg/ml, normal range is above 1026 pg/ml), although my…
-
Things can change quickly
A short while back, my DW was enrolled in Hospice Care. But, 3 months later it was determined she was not declining fast enough, so she "graduated" out of Hospice Care. 5 short weeks later... Today, she was enrolled back into Hospice Care. During those 5 weeks, she lost 16 pounds. As of today, she has had almost no food…
-
Morally Conflicted about Nursing Home
My 75-year-old grandmother was diagnosed a year ago with moderate dementia, which has now later turned into an Alzheimer's diagnosis. She is starting to slowly have "out-of-mind" episodes, confusing a very close family member with their parent (her son), etc. while these are infrequent as of now, they are suddenly onset…
-
The Caregiver’s Brain
Greetings Friends, I have not posted here in six months. My wife’s dementia has been moving at a snail’s pace. The days, weeks, and months have melded into a fuzzy blob of time, and one day is exactly like all the others. I am nine and a half years into care giving, and the word “decade” will soon be added to the divisions…
-
Does Detailed Diagnosis Really Make a Difference?
I am struggling with some issues related to my DH, who was diagnosed with "amnestic mild cognitive impairment" late last year (72 years old with a lot of chronic health issues). I don't really have any prognosis beyond this umbrella term, but I'm beginning to think that maybe it's enough for now. His regimen of medications…
-
Executive functions
my DW has lost a lot of her executive functions. It is my care responsibilities to take care of all decisions. She sometimes demands to know what is going on and i try to explain even though she won’t remember. I use DARE everyday as much as i can and also redirect, but it is a struggle. DARE is Do not ARGUE,REACT or…
-
I want to scream and cry
DH is 61. I am 55. We started this journey of finding out what is happening in 2019. We have been through so much testing. Lab work, CSF (borderline for AD) we have even driven to Cleveland Clinic several times for testing. MRI’s 2 years apart showed progression of atrophy in the left temporal lobe. Recent Amyloid PET was…