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ALZConnected Q&A Thread
Hello all, The ALZConnected team wanted to let you know that we very much appreciate the constructive feedback we've read since the new platform's launch. We're listening and doing what we can to make this platform as positive an experience as possible. As such, we have created this Q&A thread to answer questions and…
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Dementia Resources
This page contains downloadable PDFs about a wide range of topics related to Alzheimer's and all other dementia. For additional help or support, please contact our 24/7 Helpline at 1-800-272-3900 Resources for People Living with Dementia Learn how to live well with Alzheimer's and dementia Take an online education program…
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Advice on auditory hallucinations?
I've been searching and reading the forums for a while, looking for my situation but I've not quite found it. I'm a caregiver for my aunt. She's diagnosed with Dementia, but doing quite well, able to clothe herself, eat, walk around, etc. The biggest problem is hearing voices, as she has been for a year. For the most part…
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Another reason to watch the PWD's finances: the IRS
It is hard, messy and sometimes relationship impacting to step in to take control of your loved ones finances -using DPOA or guardianship. People say things like " want them to be independent as long as possible " etc. Heard a caller on a radio show -grandmother with dementia lost 500k to a phone scammer who said her…
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Just need to talk to my friends (200)
Well, we made it to 200. Took a while. Still chilly here. Had to find some fleece to wear. Time to change out summer gowns and dresses for fleece and flannel. I don't change clothes in closet, just things in the chests. HB, hope your mother is doing much better. Mint, how is your mother? Haven't seen you mention it lately.…
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How long does it take for a loved one to adjust to memory care
It has been 5 weeks since my DH was placed in memory care. Every time I go, he says things like, "when can I go home, I want to be with you, I want you to take care of me." I hate this. I say things like, "the doctor says you need to be here to feel better." It breaks my heart so much I don't want to go. I go home…
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Cleaning their bunn?
Is it easier to clean their bottom with them standing or sitting? Sitting, meaning still on the commode. Thanks
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Incontinence Underwear….Depends v/s Always
Not knowing of any other brand I got my LW to use Depends at the onset which was 7 months ago. I recently found out about Always. My question is which one is better or are they basically the same.
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What to do?
Last few days DH has taken $600 out of his bank account, answered a phone call at 8:15 am from some scam place asking for his Medicare # because they will pay for a back and knee brace. Thank goodness I intervened as he was looking for his Medicare card! He woke up and called the house phone at 5 am! Not sure what to do .…
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Nonstop Singing
Hello I am new to the group. Been caring for my DH with vascular dementia for about 3 years. Recently he has started singing and humming non stop. Sometimes I can drown it out but other times it is very un-nerving. He attends an adult day service program twice a week where he has also started the nonstop singing. Any…
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Slipped right into Stage 7
At the beginning of October my husband lived in a memory care, could walk on his own, feed himself, and say several words, sometimes even a whole sentence. He was partially incontinent. His agitation/aggression landed him in a Geri-psych unit, and during his time there, he had aspiration pneumonia. After that, he gradually…
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Any luck with caregivers?
My DH is in early stage 6. I’ve tried 4 caregivers. Every time he starts off positive with their visits and by the 4th or 5th time he’s agitated that they are there. Follows me everywhere to get away from them. Granted not one of them has done what I expected to bond with him. They start off very conversational etc and…
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Visiting a stage 7 patient
DW has not had the slightest cognitive reaction for 3-4 years. She can still swallow but reacts to nothing else. She has excellent care. So why do I visit? It is no practical use to her and emotionally very trying for me. But I do.
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long distance - Mom refuses to be evaluated & Dad isn't taking action
My parents live in a different city, and we are deeply concerned about my mom’s health. She is 78 and has been showing signs of memory loss for the last couple of years, which are progressively worsening. She refuses to acknowledge the issue, won’t allow herself to be formally diagnosed, and has made my dad promise not to…
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What is wrong with me? Or is there?
Mom is most likely a few days or a couple weeks away from death. Yet I just feel numb…. Or I just don’t feel at all? Yes, she’s 86, with pulmonary fibrosis, on oxygen for 7 months now. And having had dementia for several years, and looking back, cognitive issues for a couple years before that We lost our son in April of…
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Microaspirations
Anyone know much about microaspirations in late stage Alzheimer’s? Dad developed a wet cough a few weeks ago. Doctors said it was microaspirations, which is the next phase in decline, but now the caregiver is saying his cough is gone. Do the coughs come and go? I kinda figured once they started, they just continued?
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Advice on changing living arrangements
Hi, I’m new to this forum and have recently taken on a role as caregiver for my MIL who was diagnosed with FTD about 4 years ago. My husband and I have temporarily moved into her home while we prepare our own home with some improvements with the goal of moving her in with us upon completion. Up to this point she had been…
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New here
Today broke me down. Nothing about today so out of the ordinary but it’s been a slow build. My mom hasn’t officially been diagnosed yet but her short term memory is going. She lives with a friend and I take her to all of her appointments, manage her finances, set up her meds, communicate with all the doctors, wash and…
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The angry phone calls but good news
Well despite the angry phone calls I get from Dad each night, 9 pm sharp, the staff assures me he is going to activities, and classes, is social and friendly. Those phone calls are so hard. Anyone else have a coping strategy for the anger? I moved him from his home he misses his garage, lawn mower etc.
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How to help my mom: she forgets that she went to the bathroom (#2) only a few hours after going
Hi everyone! My mom is almost 83, and in great health, but her memory is not the same over the past year. Over the past few weeks, my mom keeps on thinking that she is constipated, and that she hasn't passed a bowel movement in two days. I explain to her that she did so earlier, and it still doesn't register. She continues…
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Holiday celebrations
Hello Friends, My DH is moderate - late stage ALZ. He is not oriented to date/place/time, he is basically non-verbal. He is very unsteady on his feet. He requires help in the bathroom. He recognizes family when he sees faces, but I’m not sure if he knows our names. I am struggling with depression and dread the upcoming…
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Mom is consumed with sadness...
My 58-year old mom with early-onset Alzheimers lives with me. She has been with me now for a year and a half. Her type of dementia effects her visual comprehension first and foremost, which prevents her from doing any of the things she enjoys. She can see, but she doesn't understand what she is looking at. Lately, she has…
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Alzheimer's Progression is not Linear...
So anticipating what might be needed or how to respond/care is so difficult. My husband has been diagnosed since 5/2023 with Alzheimer's which was certainly happening well before that. In all the research, and support groups, and meetings, and readings, and doctor's visits, and clinical trials, I've been navigating dizzily…
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Hope we can make this board more active
Hello, fellow travelers. DH left this world one month ago, and I am struggling. Both the speed of his departure (seven weeks from first hospital admission to death) and the unexpectedness of it (just over three years since diagnosis) have really leveled me. I have heard from other members of speedy departures after…
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New to forum just diagnosed with Amnestic MCI due to Alzheimers
After 7 months of testing, starting with Parkinson’s, which came back negative I have been diagnosed with MCI due to Alzheimer’s. I have had multiple cognitive tests, neuropsychological testing, blood work for Alzheimer’s bio markers (strongly positve for tau and amyloid) and now 2 positive Pet Scans I started Kisunla last…
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Just Diagnosed with AD
Good Morning, New to this group. I was just diagnosed with AD (early stage). I am 60 and I still function at a high level. Because I can function at a high level, it is very difficult to accept this. My biggest fear is that of the unknown. How long am I going to be able function at this level? When will the debilitating…
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Care Givers and Spouse Online Communication
Looking for an easy way for our two care givers and myself to share daily information regarding the experiences with my wife. Would like to be able to privately post information such as meals consumed, surprises, issues, helpful tips, questions among the group, etc. Has anyone used an app or program they might suggest?
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Lecanemab 3 year data
We listened to a presentation the other day by doctor at Duke University. He mentioned there is 3 year data now on lecanemab. He presented the info in a support group for those who are getting lecanemab or who may be interested in getting it. Open Label Extension Data Shows Lecanemab’s Continued Effect on Alzheimer Disease…
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Seloquel
I am new here. My mother was diagnosed with ES VD in August. She has been prescribed Seloquel which is very concerning to me. Based on the info I have been able to gather, she does not have any behavior issues that would warrant being prescribed this drug. She is docile, but has had some anxiety and sadness in the…
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Activities for Mom, middle stage alzheimers
My mom gets bored and starts roaming around the house. We are trying to find some activities, but it's difficult. She doesn't comprehend games real well, like solitaire or anything like that on phones/tablets/computers, she doesn't like puzzles, and she is showing signs that she can't comprehend things like words and…
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Three Years in Memory Care
Today marks 3 years since I placed DW in Memory Care. I have been blessed as DW acclimated immediately to MC & has been happy and well cared for there. This morning I made her blueberry pancakes and brought them to her for breakfast. At this point she needs to be hand fed and no longer communicates but since she cleaned…
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Alzheimer’s-Posterior Cortical Atrophy
I also posted this on Caring for Spouse page. Don’t remember if I posted this already but I recently realized symptoms my husband had early on several years way before diagnosis. He complained of dry eyes but I think he just couldn’t describe what he was seeing. He also had difficulty spelling common words and doing simple…