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Blood test results - concerned
Received my blood test results last week and they seem concerning to myself and my husband. Haven’t heard from the NP to discuss the results. I called and left a message - feeling frustrated Phospho-Tau(217), P plau217, P 0.313 pg/mL High REFERENCE VALUE Negative: ≤ 0.185 pg/mL Intermediate: 0.186-0.324 pg/mL Positive: ≥…
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I'm feeling a little disturbed
My parent called me upset that she had received notice that a family friend had just passed away unexpectedly. She had this whole elaborate story abut how she received notice via a phone call and was quite upset about this as this is someone she interacts with in the present. Her recollection was so vivid and her emotions…
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Thank you
I have been mainly reading posts on this for two years. It helped. I lost my dear husband this Saturday. It was a peaceful profound and passing. His room was filled with love and music. Having an iron clad molt really helped. When the Er doctors mentioned a respirator, we knew to say no. He had comfort care only. Thank you…
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Need Help w/ Cell Phone Options
My father has dementia and one area where my mom and I are struggling is with his using his cell phone. He likes to play solitaire on the phone but he doesn’t understand that the ads he receives aren’t real messages. He ends up filling out his information and is inundated with spam text messages and phone calls. I try to…
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MCI diagnosis
Hello. I was diagnosed with MCI a few months ago. I'm mid 50's and have shown symptoms for the past year which I initially wrote off as normal aging. My PET scan showed structures in my brain that are interfering with my short term memory. A couple of weeks ago I had a lumbar injection of medication. It's been a long road…
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Just need to talk to my friends (213)
Morning, welcome to December! Carl and Ron, it's 32 here, mostly drizzle but it's icy in Tulsa and snow North of there. Lots of accidents and backups in Tulsa. If you get out today, please be careful. I have no plans to be out, maybe on the front porch to feed the birds. I saw a few on the porch looking for food yesterday.…
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Sundowning
Hello, I’m very new to this group and confused on this newly diagnoses of Dementia for my mother! We are still going through a lot of appointments and tests and we don’t have a actual diagnosis of what type of dementia my mom has but they are leaning more towards Lewy body because she has a tremor on her hand! My question…
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rough day w dad in MC "Get me out of here!"
Hi community, Dad was pretty agitated today during our visit. Redirecting was not working, so I had to cut my visit short. I'm wondering what I am missing or if you all have more ideas for me to consider. Here's some context plus what I'm seeing lately. He tells me that he just has to get out of there. Over and over. I…
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Xmas
Every year we celebrate xmas here. There is 13 people. My Dh didn't do well at Thanksgiving here,there was about 20. So i really don't know what to do. I want to spend xmas with my kids but Thanksgiving was stressful. He was agitated and hateful. I tried keeping him distracted and a place for him to get away,did not work.…
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Intimacy and guilt
My DH (probably late stage 4 or into stage 5?) makes comments and wants to be intimate alot! I on the otherhand have not wanted to for some time, just no desire. I feel guilty for not being intimate with him, but just can not bring myself to. DH has always had a higher drive than me. I keep thinking this will probably get…
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Sticker for vehicle…
I saw this and realized it would help if you have a passenger in your car who has dementia. If there is an accident, this would be important. Also put something in your car or phone in case of emergency so they could contact a secondary caregiver. Anyone have their loved one wear a medical alert bracelet? I’m not sure my…
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Trying to plan ahead
Sorry! I hit a key I shouldn’t have! I run a bed and breakfast in our home. I just love doing this. It’s good for me and it’s good for my husband with AD……so far! He’s probably in Stage 5 or so. He’s still functional but needs guidance. He is able to help me in the kitchen (dishes and clean up) and really wants to! He can…
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Am I a bad person
I wake up every morning and pray that God gives me the strength and patience to get through another day of caring for my DW. She is in late stage 5/ early stage 6 and we have been on this journey a little over 3 years. Lately she has just cried every day wanting to go home and asking for her deceased parents and saying she…
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Dealership sold car to father just before Alzheimer diagnosis
He lived a couple hours away when this occurred, we were still working towards an understanding on what was causing the repetition in conversation. At the same time he had been making his rounds around a few dealerships, picked out a blazer at one to purchase and showed up at a Hyundai dealer with that blazer flyer only…
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Hubby in memory care the nurse?
hubby in MC one month and 12 days. His reasoning skills are impaired. He cannot understand he can come home sometimes but has to go back there. Today he cried about going home and I cried too. I just couldn’t stand seeing him this way. One of the nurses or maybe she’s an aide said he’s cries all the time. That I should…
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Trying to plan ag
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Not dementia but an aging game changer being tested
https://news.stanford.edu/stories/2025/11/joint-cartilage-aging-osteoarthritis-therapy-research "A new study suggests it may be possible to regenerate cartilage lost to aging or arthritis with an oral drug or local injection, rendering knee and hip replacement unnecessary." Years away most likely but good news .
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Different respite question
Because my husband is on Hospice, I can get a three day respite. He would go to a Hospice house that is secure. My question is this: What would things be like once he came back to our home? Would he be more confused? Would it make things worse with his behaviors? Can anyone comment on their own experiences with their LO…
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What Is Looking After Yourself
This might seem a bit silly but it’s said to me often by medical staff “look after yourself” Could I ask what does everyone do to look after themselves. Apart from getting enough sleep which is hard, is it a frame of mind, time out on your own once or twice a week and then where do you go. When you have a baby you never…
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How to have patience and not start resenting your spouse.
Hi: My DW has had VD for 3 years and I'm the sole care giver. It's 24/7 year-round. Today she woke me screaming to come wipe her bottom. Yes, I have had to do many times, but to get woke up out of a deep sleep to her screaming clean my bottom. I almost lost my temper; how does someone not get up start resenting your…
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Caregiver, What It Means
I was very lucky to find several people to assist me as caregivers to care for my dear wife over the last 8-10 months of her life. Caregivers for loved ones with this horrible disease that brings us all here are quite special in my opinion. To be a successful caregiver for one with this disease requires more of the…
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Is anyone in the Denver area?
I was diagnosed with EO AD last week. Would love to connect with others in the area. Maybe meet for coffee or walk.
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Speech Therapy
I am just wondering what are the thoughts on speech therapy. My DH has VD about stage 6 and advanced aphasia. I am beginning to feel like a bad person because I have not taken him to a Speech Therapist. It was brought up in conversation with a Dementia Support worker. He can’t remember instructions and definitely finds…
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Anyone experiencing body pains
hi am am newly diagnosed early onset dementia, My doctor is still finding out what kind dementia I have My understanding is I have Alzheimer’s in my blood but not reached my brain yet , what the heck does that mean ? I am having a Pet scan next , I kind feel like my doc just dumped me or put me on hold , I don’t know if…
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Anyone using Paxil for severe agitation?
My mom is 94 - diagnosed 11 years ago with Alz dementia. She has been in an advanced stage requiring full care for almost 10 years. Her neurologist advised us to try Paxil to help with her severe agitation. She is taking seroquel as well. She's starting throwing plates of food lately. Things are rough but I'm nervous about…
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both parents with dementia, cost of care very high
Both parents with ALZ, different presentations (ie agitated v. calm) and we have been getting by with paid caregiver 4 days a week and the rest done by myself, sibling occasionally helps out. Care needs are escalating and a tour of local senior livings has been cost-sobering. One place that had AL with solid cognitive…
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Clinginess
Hello all- I was going to reply to another post from a few days ago because she specifically mentioned the increase in unwanted opinions from her DH and so this is related, but also I am kind of thinking perhaps a precursor to shadowing maybe? Want to see what you guys think and what your experience has been. Anyway, my DH…
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It's been four months since DW died
I am hanging in , mostly.
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My Mom Passed
Hello All Been a tough few days… my Mom passed away on Wednesday. Hospice gave me a call and said it would be a good idea to gather the family. My husband and I picked up by Aunt, and met my son there at my mom's bedside. We put a phone by her ear and my daughter was able to call and talk to my mom. We stayed for the…
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Support Group Cookie Exchange? No!
Just need to vent about endlessly unreasonable expectations…with the “you need to take care of yourself” heading that list today. You need to (fill in the blank) sleep, meditate, journal, blog, do yoga, do cardio, take a break, take a walk, join a support group…while being sure to show up at work fully present, care for…