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In my early 60s. At the beginning of this ..
Hi, Are any of you out there going through what I am? Very mild symptoms, waiting for complete diagnosis. Anxious and frustrated.
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First experience with DH hallucination
Hi all, after his typical afternoon nap my husband awoke saying, “ I just saw someone laying right here next to me. “ My DH looked surprised but happy. He then said it was “pretty cool”. And …”I think it was you”- which it was not. Is this what a hallucination can be like? First time so no scary stories please.
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DH hallucinating that he's going to have an affair
I am going to post this, because I haven't seen anything quite like our story. My husband is in Stage 5-6 of This Crappy Disease, and he is now telling me that he would like to start a new relationship. The woman he's interested in is a neighbor whose name we don't know. He has been irritated with me because I am the…
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Early sign of dementia is loss of Executive Function
From Speaking Dementia: “One of the earliest signs of dementia is the loss of executive function , not memory. Executive function is the brain’s ability to: • plan • organise • make decisions • manage risk • cope with complexity When this starts to fail, people may still sound intelligent and hold conversations. Even their…
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Taking control of medication management - early stage
Long story - mostly venting but all suggestions welcome. Mom 85 has unspecified dementia; cognitive tests indicate Alz but amyloid PET scan was negative so could be vascular or other type. Mom has taken the negative PET result to mean Alz was "misdiagnosed" and therefore she is "well". Short term memory is in obvious…
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Just need to talk to my friends (214)
Happy 2026 to all our front porch friends. Hopefully this new year will be a better year for each of us and for our Country. Everyone is probably sound asleep right now and I will be in a few minutes, too. Stormy needed to go outside for a minute and I just thought I would get 214 started. See you later.
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Will my dh ever understand he has dementia?
Is there ever a time my husband will realize and accept that he has dementia? After at least 10 years of a slow decline, I’m just worn out from it, and incredulous that he’s still adamant he has no issues with memory. He screams that it’s ME who has the problem. To the outside world, he can seem pretty normal. And he’s not…
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Recent passing of my mother
My mother, diagnosed with early-onset Alzheimer’s in 2020, passed away on December 20th at 64 after a long battle. COVID worsened her condition in March 2020, leading to paranoia and violence. Due to state restrictions, we moved her to Florida to an assisted living home. Months later, she contracted COVID and lost her…
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Counting the days
A recent comment by @Jo124c on another thread prompted me to share this poem I recently wrote. The commenter wrote about counting the number of days since their husband died and posting it on a whiteboard as a way of maintaining connection. ********** Sunday, December 21, 2025 Eleven months today (Will I ever stop marking…
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Startled / not able to identify common noises?
Hello everyone. My DH shows signs of being in stage 5, but is able to do most daily care tasks on his own. He is aware he has Alz and often talks about how he's been reading about all the Alz research and how they are coming up with cures. Anyway, I'm curious to know if others experience their person having issues…
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Taking it away
Mom is in an amazing Alf. Over the last 4 months, I notice a "progression " in her memory, which before we had half hour before she would forget conversation, now it's immediate. She used to come to my house every Sunday to spend the day, now after 30 45 min she wants to ho home. Even on holidays. Beyond that she has been…
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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Quiet Cracking - So many of us suffer from this
Quiet Cracking: The Caregiver Struggle Nobody Talks About By Ellen Samson Not all caregivers burn out loudly. Some don’t quit. Some don’t collapse. Some don’t cry in front of anyone. They just… crack quietly. Quiet cracking is when you keep showing up, doing the work, and taking care of everyone else while slowly falling…
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A big Ouchy for New Year’s Eve
First, Happy New Year. After being in the kitchen all day cooking up a storm, I spilled a pot of boiling water on my arm and foot. My skin started disintegrating before my eyes. So so scary. As I’m screaming in pain DH starts hitting me in the head. Thankfully my phone was near and had to call 911. It was an unbelievable…
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New Year Prayer
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Getting lost while driving
Husband got lost for 2.5 hours the other day while driving to a nearbypark that hes been to a thousand times. Since then I have discouraged him from driving and now hes just really mad at me. I just don't know how to handle this.
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When is a person considered incontinent?
I wouldn't call my husband incontinent but he urinates frequently, like every 15- 20 min. We are home most of the time and he does go to the bathroom himself but every single pr of underwear has urine stains. He only goes a little each time he urinates. When we do go out he uses the urinal in the car 1-3x per outing and…
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Dad calling police in nursing home
Putting my dad in a nursing and getting multiple calls a day was bad enough. Now my dad is calling the police every day from the nursing home. I don't know what to do and I am getting very stressed about it.
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Mom refusing to go to Dr appointments
New here. Mom has ALZ/Dementia and COPD. She is dependent on oxygen concentrator. For years now, Mom has been canceling dr's appointments on the day. Dad, who was her primary caregiver, died in May '25 and my brother and I are trying to care for her in her home. She recently fell and had a gash on her scalp, leading to…
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How to find in-home care
In the last week, my mom's dementia has quickly advanced, and she's having many issues overnight. My dad wants to keep her at home but needs help. Do you have any advice for how to find overnight care, what to look for, etc? We're looking for care in Lake Norman area of NC near Charlotte.
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Wondering What’s in Store For 2036
Thinking about all my friends getting ready to party and bring in the New Year while I sit here sipping a single malt wondering what’s in store for me in 2026. Not a very nice thought considering my LO just “graduated “ to what I think is Stage 6. Happy New Year… Really ?? Maybe someone can relate to my rant … it seems…
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Bible Verse to Lift You Up 1/1/2026
THE LORD'S GOOD PLANS FOR YOU AND ME Jeremiah 29:11 NIV For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. 1 Thessalonians 5:16-18 NIV16 Rejoice always, 17 pray continually, 18 give thanks in all circumstances; for this is God’s will for…
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Kisunla infusions- treatment side effects
Hello, My dad is about to start his Kisunla infusions. I am hoping to hear from people whose loved ones or they themselves have experienced some of the infusions what the possible side effects have been. I am familiar with the listed side effects, but would like to hear from individuals who have experienced the infusions…
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Grief...
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Anyone sold a car with durable POA in CA?
I'm so frustrated. Twice I'm failing to sell my parents car in CA with power of attorney. I'm coming from out of state to sell the car so I'm so frustrated and not to mention in both cases I called in advance to make sure the transaction could take place. I'm off the charts irritated. I have struck out with carmax and the…
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Inappropriate Behavior
How do ytou deal with inappropriate behavior such as: Coming to dinner with no pants on —NO PANTS, peeing in the garbage can, eating with his fingers, alcoholism, I don't know how much longer I can put up with this. What can I do?
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New clinical trial for MCI
https://www.brightfocus.org/resource/the-ahead-study-can-alzheimers-be-prevented-or-slowed-before-symptoms-begin/
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What to expect from neurologist appt?
This is my first post, altho I’m sure not my last. My 69 yo husband saw a neurologist in Aug 2025 for memory loss. At that visit, Dr ordered complete labs, PET and MRI & prescribed donepezil 10mg & memantine 10mg. The labs have been completed. My husband was dissatisfied with the Dr and after talking with our children, it…
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End of Year Musings
I want to wish all the caregivers a Happy New Year. I began reading these message boards seventeen years ago this week, in 2008. I had a diagnosis of cognitive impairment not otherwise specified and I feared that I might have Alzheimer's Disease. I read every thread on the two patient boards and on the one caregiver board.…
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One Way to Ask for Help
I am terrible at asking for help. Asking for advice - easy … asking for help - so hard. I mean, I've always been self-reliant. But self-reliant is not going to cut it when things get real around here. So, I started looking for ways I could take people up on their offers, like when they say… "Let me know if there's anything…