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Getting better, wants to come home??!
We moved my mom (75) into memory care assisted living in September. At that time she was wandering often, trying to hurt herself, not sleeping, and needed to be watched 24/7 to stay safe. The first 3 months in MC she was confused and generally accepted where she was living. She was depressed and not eating so was started…
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But what if it's something that could be treated?
My mother has always been afraid of ALZ because as her own mother aged, as soon as she became moody and forgetful, her sisters insisted this was ALZ and sent her to live in a gross, smelly facility (my mother's words, but not untrue). Now as she is in her mid-80s, my mother is showing signs of memory loss and potentially…
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Taking away financial agency and bvFTD
Hi all, My dad is 77 and was diagnosed with bvFTD a few months ago. He always handled all the finances and rarely spoke of money to my mom. When I realized something was terribly wrong about 2 years ago, I started the process and now (thanks largely to advice on this board!) I have DPOA and health care proxy for both my…
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Just need to talk to my friends (203)
It has been a beautiful day, sunny and 75. Meant to check on the daffodils but forgot. The ones I can see from the kitchen window look okay! QVC has started their gardening shows so Spring is near. They had the perennial Gerbera daisies again today. So pretty. I bought them two years ago and had one bloom and they didn't…
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What do you need to provide for a live-in caretaker?
I am considering hiring a live-in caretaker for my father. I am having trouble finding much information about what sort of living environment you need to provide for the caretaker. Any guidance would be appreciated. To provide some context, my father's house is not in good repair. I would not want to live there but my…
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Legal Repercussions
Hello, I am new to this site. My mom was recently diagnosed with Alzheimer’s. She was previously diagnosed with Mild Cognitive Impairment. For 5 years I have been paying her bills for her because she asked for help and could no longer do it herself. She still has access to all of her funds and we have only had a couple…
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Not sure
hello everyone. I’m new here. I thought I would try this site before giving up. I joined another site a few years ago when my husband, the love of my life first showed signs of cognitive decline. There was so much negativity on what will happen and people were very harsh. I just wanted support. I got very depressed and…
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DW Waking up 3 AM
First time on this Forum. Some background my wife was diagnosed with EO Alzheimer when she was 58. Now 6 years later she has lost her ability to communicate, self care, and starting to have trouble walking. I am her sole caregiver (married 38 yr) and basically have to do everything like feeding, bathing, dressing.and…
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Urinary urgency
My sister is now in an assisted living community. She was diagnosed with Alzheimer’s a year and aMy sister is now in an assisted living community. She was diagnosed with Alzheimer’s a year and a half ago. She has always had problems with urgency, but now she wants to go every five minutes. She had a number of falls so now…
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Am I being unreasonable?
I’m 81, my DW is 82. I have been her primary caregiver since she was diagnosed three years ago. We live in rural Western PA. Between our prior marriages we have 8 kids. They all live far away, the closest is her daughter who lives fours away. She is in stage 5. I have had to take over all the finances, medications, meal…
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Lumbar puncture?
I have read multiple posts in which loved ones mention their PWD getting a lumbar puncture as a diagnostic procedure for Alzheimer's. My question is this? Isn't that terribly painful and is it worth putting my LO through for a definitive diagnosis?
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Auditory Hallucinations
My DH has been having memory issues about 3 years now. He is definitely in mid stage of this disease. I noticed about a month ago he seems to be having auditory hallucinations. He would ask me to repeat what I had just said to him when I had not said anything. He is 63 yo and i will be 62 yo tomorrow. I still work full…
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Planning first visit to memory care
I'm planning my first visit to see my parent in memory care. I'm out of state so it's a big endeavor. I'm traveling by myself without my family. Besides visiting with my mom, The purpose of the trip is to check out the memory care facility, meet the staff and then check out the surrounding area to plan excursions with a…
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Questions: Cleaning up poop with shaving cream
* Does it matter what kind of shaving cream I use to clean up poop? * Does shaving gel also work to clean up poop? * Should anything menthol be avoided? * Do I just slather the shaving cream on, then wipe it off? * Do I rinse DH after wiping off the shaving cream? * Can shaving cream also be used for the bathroom clean-up,…
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Spouse prone to anger if I disagree
My spouse might be angry about a person or incident and insist that I give her a simple yes or no as to whether I agree with her. I cannot in good conscience agree but if I don’t I know she will be very agitated and angry at me. Or she might be demanding that I tell her I will do something very important to her when I’m…
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Feeling Conflicted and Guilty about moving on…
My wife is in the mid to later stages of AZ and is struggling to communicate, she sits quietly most of the time. In addition to AZ she has a genetic eye defect that is incurable, she is legally blind and needs help with everything. I am her caregiver and have given up most of my exercise and outdoor activities to support…
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Experience with Rallies or burst of energy prior to death
Hello! My mother was diagnosed with early onset Alzheimer's 15 years ago and to say the least its been a long road! She lost the ability to walk and eat on her own about 2 years ago and has been very steadily declining since then. Last week she got very bad and was bed ridden and unconscious for a full day with fluid in…
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Seizure
My DW (EOAD) had a seizure this morning while we were having breakfast. I had never witnessed a seizure before and it was very scary. Luckily I was with my MIL and she was able to call 911. She had a large contusion and we had a CT which found no bleeding in the brain. She is home now. My question is does having a seizure…
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Filing for Long Term Care Insurance too early?
Hi, I am posting for the first time regarding my 83 year old Grandma. She has had cognitive and memory issues for years, but in the past month she was properly diagnosed with dementia. I had previously lived with her 3 years ago after she was a scam victim, but after about a half of year, I moved back home. I am now…
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Medical Marijuana
I am the sole caregiver for my wife. Entering stage 7. RSO, gummies, or even flower. Will be helpful for anxiety of the patient and stress for the caregiver. I my case, the use of medical marijuana has added a dimension; a depth within myself and a enhanced relationship and empathy with my wife. Don't know how my wife or I…
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Caregiver
I started caring for my ex-husband who was diagnosed with Alzheimer’s last August. We have been friends since we got divorced over 30 years ago. I sold my condo that I lived in for 23 years and sold his home and we have a mutual home now. I knew that this was not going to be easy, but I really didn’t know how difficult it…
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6th infusion
Today was # six Leqembi infusion. So far so good! Although I do have a headache and feel exhausted. I'm scheduled for a second MRI this Friday. My husband keeps reassuring me I'm doing so good and how strong I am, but I don't feel strong. I guess I'm just having a bad day. (pity party for one) anyone else out there…
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how to update neurologist
I have not seen my neurologist in a year and have declined frighteningly in last 12 months. How do I explain all the changes?
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Bad day
Sitting here reading through some of the post/discussions, hoping to find someone to connect with. I just feel so alone. Even when I'm with family and friends. I'm anxious about an upcoming appointment with my Neurologist (Thursday)even though Leqembi infusion treatments have been going well. Every morning, I wake up and…
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VENT - Pooping Confusion
DH has been in disposable briefs for quite a while. I watch him like a hawk when he is my eye sight to get him to the bathroom. And he has gotten much better at telling me when he feels the need to go. This morning DH let me know that he needed to go to the bathroom. I got him successfully to the toilet. He later told me…
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A Wife and A Partner
Not sure why I'm posting this……I'm not looking for validation and certainly don't need judgment. I guess just sharing my experience. My wife was diagnosed with early on-set Alzheimer's over 7 years ago. She is currently non-verbal, fully incontinent, and unable to do anything for herself. I am blessed that she is still…
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Never been so exhausted
I am new to this forum. My mom has alz and vascular. I have been taking care of her since she was diagnosed 4 years ago. My husband retired early so he could help me(last September) Over the past 1 1/2 years she has gotten progressively worse. I had no idea how much harder that it was going to be as time went on. I sleep…
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What to do in an emergency??
it’s me again haha. I play a game with my wife that I’m feeling ill and become unconscious I ask her what do yo do , by the time she even says I don’t know I could be gone. My question is what to do ? Has trouble using phone or remembering numbers or even where those numbers are , even 911 is an issue. She’s very bad with…
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Four months
It has been four months since Mom died. I find myself feeling I should call her, I should be going to the AL to see her. By that I mean that I feel guilty that I’m not doing those things any more. It’s not exactly that I miss doing them- it wasn’t as if mom was capable ( for several years) of being someone to carry on a…
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"Going home"
Hi - I'm new. I'm caring for my mom long distance. We had her at home with in-home care, but she just doesn't understand that she has any problems at all and wasn't cooperating with the help and just couldn't be left alone safely. So we moved her against her will into assisted living. She is essentially on the…