The most recent content from our members.
Has anything like this happened to anyone else? I am 54 and have been recently diagnosed with Mild Alzheimer's with Mood Disturbance. I've been struggling with cognitive impairment for a few years but it's always been contributed to long covid. I started seeing a new neurologist several months ago and at my first…
So for months (since February 3, 2026) DW (61) has been without treatment due to losing our COBRA. It took Medi-cal five months to get us to UCLA's Rubin (Rudin?) Center for Alz & another month to get an appt with the Doc in the end of December. Now that she is going to receive SSDI in September, we're dropped from…
I got DW (61) registered with UCLA's Easton Center and waiting on a recommended Doc appt. HUGE relief! Sitting up on a recent lengthy insomnia (anxiety induced) bout, she began sharing her fears with me about where this goes, how it goes, then tearfully, please don't leave me (My answer then and always: "Never! This is…
My husband was 58 and just diagnosed July 1 with Alzheimer's. We have been very frustrated with the care and support from doctors. He took a test at he PCP's office and did not do well so they referred him to the first neurologist available, who does not seem to have a lot of clinical experience. He ordered MRI, Flexi…
We're rolling on 7 months now since Dx & probably two more months out from getting actual treatment. How long is too long for a 60 yo YOA patient to go without treatment? Are the infusions going to be too late to be effective? I feel like I can't press providers and health plans harder than I have been. I didn't sleep last…
Kind of a vent/externalize the experience's effect on my insides so I don't crash— —I'm cooling off a little more today after yesterday's appt with DW's (61) new (mediCAL health plan) neuro. Upside: We got the referral to UCLA (or the submission to the health plan for it)—that's a big deal for us so I'm holding onto that…
I didn't see the DBAT form on the Dementia Resources page here or on the Alzheimer's Assoc site. I'm wondering if this tool is outside the scope of AlzConnected? If it's cool for AlzConnected, does anyone have enough experience with it's use to answer some questions about some of the terminology, who fills out such a…
Hi all, I'm new here. My wife was formally diagnosed at the ripe young age of 51 this past December. I, myself, am her 34 year old wife. I just wanted to come in here and say hi and kind of vent to folks who may know. These past 2 years of confusion and emotional and financial upheaval have been incredibly difficult to…
My 60 yr old husband was diagnosed a bit more than 4 years ago with EOAD/FTD w/ behavioral variant. He is late stage 6 with some components of stage 7. He is at home w/ me and I have part time care that comes to help. After an appt w/ his dr treating his symptoms, he tells me that because my husband is so physically…
Tomorrow afternoon is Leqembi infusion #10. You'd think by now I wouldn't be so anxious about it. I've been taking anti-anxiety medication since the beginning, but ANXIOUS I am! I have all these racing thoughts, feel everything and nothing all at the same time. I know how that sounds, but it's the only way to describe it.…
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