Have any questions about how to use the community? Check out the Help Discussion.
Popular Posts
-
Re: Tests and medications
Mom decided early on in her diagnosis that she did not want any invasive procedures, wanted a DNR, no feeding tube, etc. Her doctor asked me if I was ok with that. I told him Mom watched my Grandma d…4 -
Re: We Don't Talk Anymore
Yes it’s very common for caregivers to feel lonely. We miss what was and we are grieving for what will never be. If you can get respite help, it helps to take breaks. Come here often for support.2 -
Re: We Don't Talk Anymore
https://alzconnected.org/discussion/73544/we-dont-talk-anymore Sorry you’re here, but we are here to help. Sounds like our life at home. My LW is the same way, stage 4 heading to 5 but after a 2 week…1 -
Re: I want to scream and cry
My DW was diagnosed in October 2020, the pandemic delayed this somewhat. Semantic Dementia (SD) is pretty rare and not well studied. I have read everything I could find on it. The studies that do exi…1 -
Re: I want to scream and cry
So sorry you're going through this. I'm in a slightly different situation where DH seems back to normal with the right combo of meds, so his diagnosis now is "dementia of an unknown etiology but…6 -
Re: SSDI and anosognosia
My DW diagnosed at age 48 was approved for SSDI through her medical records, doctor notes and that ridiculous 4 hour cognitive test. There is no way she could show time through that thing and it was …1 -
Re: “Woozy, Head Feels Heavy”
My father reported feeling dizzy/woozy in the middle stages. He was undiagnosed at the time. He reported it to one of his PCPs who prescribed Rx meclizine. They were splitting their time between MD a…1 -
Re: Tests and medications
We've opted for no life sustaining or extending interventions. Quality of life (i.e. no pain) only. So, for now, he's still on a statin to avoid long-term heart injury that would be either painful or…6 -
Re: Tests and medications
I have a similar issue in caring for my wife (late Stage 4/early Stage 5). After lumbar fusion surgery in 2022 she went through about 4 weeks of delirium and very likely a permanent reduction in cogn…5 -
Re: Tests and medications
It's such a blessing to have this space to discuss these very complicated matters. After years of walking through this awful disease with my DH, I wonder even for myself, how much testing, etc. I wan…5
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more