Have any questions about how to use the community? Check out the Help Discussion.

Popular Posts

  • Resentful and guilty

    Hi all, I'm a newbie here. I cared for my dad when he had dementia and "lucky" for me he was a sweet warm wonderful person who always knew his family right til the end (died from other…
  • I am new here

    Hi everyone! Brand new here. Been caring for my grandmother for 5yrs with alz/dementia. Just def having burnout with no support. Thanks for you all being here
  • Re: How to handle being accused of not sharing information

    I am where you are right now with my DH. He is beginning stage 5 I think and his short term memory is completely gone. I like a lot of others that have posted wait until just before to tell him anyth…
  • Re: Anyone RV Camping?

    I believe you should make memories as long as you can. We RVd for 25 yrs and I cherish those memories. DH has had several strokes, VD and now has mobility issues. Our last big trip was a year ago up …
  • Re: Anyone RV Camping?

    I hope you can go. Personally…….I love camping w/ my husband who has Alzheimers. I find it is still an activity that he enjoys . I just had to learn to go SLOWER and realize that he still wants to be…
  • Re: Anyone RV Camping?

    my husband and I lived in our RV full time when he was diagnosed. I decided to sell it because I was 72 years old and not able to do everything myself. Had I been younger I may have tried. I would wo…
  • Re: People just don’t understand

    My DW of 40 years has total aphasia. So if she’s thinking something, anything - she can’t say it. It reminds me at times of someone who’s thought to be in a coma but isn’t and is listening to everyth…
  • Re: People just don’t understand

    I’ve had as good a marriage as I could hope to. She was a wonderful woman before the disease took her. We can only hope we can at least have the good memories when this journey is over.
  • Re: People just don’t understand

    I know the disease has changed my DW so much. It’s like I don’t really know her. Even what she will and won’t eat.
  • Re: People just don’t understand

    Family definitely doesn’t understand the day to day. My DW hasn’t ever really talked about her past. She doesn’t talk much at all. I have to start the conversation and her response is almost always y…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more