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I am new here

Hi everyone! Brand new here. Been caring for my grandmother for 5yrs with alz/dementia. Just def having burnout with no support. Thanks for you all being here

Comments

  • H1235
    H1235 Member Posts: 1,524
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    Member

    Welcome. Glad you found us. Feel free to vent, ask questions or browse for information. Have you contacted your local commission on aging? They will be familiar with what services are offered in your area and what she might qualify for.

  • Damiross
    Damiross Member Posts: 24
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    Member

    I can understand, I've been taking care of my wife for about 3 months. I could se her getting dementia about 3 years ago. Then, in October, it was as though she fell off a cliff.

    I get some support. My mom went through the same thing with her mother. I talk with her daily

    I have friends that say they will help but I don't like asking them. Perhaps I'm wrong but I would like them just to pitch in and help rather than me asking. Just little things like "hey, I can watch Cathy for an hour or so. Why don't you step out and get something to eat?"

    One reason I don't like to ask is that most of my friends work. I don't want to make them feel guilty if I ask for their help and they can't due to work.

    Hospice does send over a companion to watch Cathy but that's only a couple of times a week. The nurse comes three times a week and she is fantastic but it is not her job to watch Cathy while I step out.

  • SDianeL
    SDianeL Member Posts: 2,894
    1,500 Likes 1,000 Insightfuls Reactions 2500 Comments 1,000 Care Reactions
    Member

    welcome. We know how you feel. Sadly many caregivers have no support from family or friends. For many reasons (excuses). Here’s a link to a post that addresses that. The Calvary isn’t coming…

  • harshedbuzz
    harshedbuzz Member Posts: 6,152
    Eighth Anniversary 1,500 Insightfuls Reactions 1,500 Likes 5000 Comments
    Member

    @eurogirl

    Hi and welcome. I am sorry for your reason to be here but pleased you found this place.

    Are you the primary caregiver in this situation? Are you able to provide care without it limiting your ability to work or attend school, build a future for yourself, socialize with peers, etc?

    Where are her adult children in this scenario?

    HB

  • Jgirl57
    Jgirl57 Member Posts: 778
    Fifth Anniversary 250 Likes 500 Comments 100 Care Reactions
    Member

    Welcome; burn out is real. Keep reading and posting here. The days and nights are long and maybe you will discover ways to give yourself some breaks and rest. You are welcome to read and post on the spouse/partner section as well. Lots of help there too. Your grandma is lucky to have you.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more