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Popular Posts
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How to handle being accused of not sharing information
Hi Everyone, What a start to the new year. I'm seeing signs of progression in my DH, diagnosed over a year ago with Alz. I saw signs about 3 years prior to that. I believe he's at the early…5 -
Re: People just don’t understand
I shouldn't but I still ask why are we the chosen ones? …4 -
Re: Showering
Sorry I have no solutions. It was WWIII every time—shower, wash up, brush teeth, change out of soaked to the gill diapers and soiled clothing, denying the stench … it was a nightmare, claiming he had…6 -
Re: Kinsula treatment
DH has Kisunla infusion #7 at the end if the month. So far no adverse affects. Is it helping? I don't expect a miracle recovery. He's not any worse, and if that is all it does, that is fine…2 -
Re: Kinsula treatment
I am considering it but it is difficult to know even when to start. I am on Aricept and although I don't like the side effects, I think it is helping. I inherited one copy of the APOE-e4 gene so…1 -
Re: Comparing Clinical Care in Boston
Welcome. When my mom was diagnosed she continued to see the neurologist every 6 months for just over a year, in addition to her pcp. When I asked about the purpose of the appointments the neurologist…1 -
Re: Last Infusion and Encouraging PET Scan
I am taking Lequembi infusions and have been for about two years. I am still quite forgetful. I also have pain in my body. I am not sure this really helps.1 -
Re: Getting lost while driving
I remember the absolute terror when I realized my partner had gone out to do an errand IN THE MORNING and had not been home all day; it was 8pm, I had gone straight from work to a volunteer thing and…2 -
Re: A big Ouchy for New Year’s Eve
To be honest @harshedbuzz, it’s been pure hell these past 6 days. The dementia continues full blast thru excruciating pain. I have to change the dressing 4 times a day but no pain medicine. It’s awfu…6 -
Re: You have to laugh sometimes
Thanks, all! I needed a laugh!2
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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