Have any questions about how to use the community? Check out the Help Discussion.

Popular Posts

  • Re: What should we be hoping for?

    I have to be honest. I have no hope. This journey we are on has robbed me of any. I just try not to expect anything and stay in the moment dealing with things as best I can. Since I have no idea what…
  • Re: STAGE 8 - There is no other side of grief...

    ==She stated that you should be finished grieving within a year of the death== What the…! I was numb for the entire first year after our 31 year old son died. It’s been the last several months that I…
  • Re: Won’t let me help clean him up

    I know this is such a difficult thing, but have to laugh about the difference in my experience. My DW now asks me multiple times a day to check her hiney for poo. She thinks she's pooping a lot …
  • Re: Anyone With Resentment?

    I am lucky to have had a great marriage for almost 46 years yet I still resent having lost a decade of my life to my DW's dementia. I don't resent her. She was a great companion. I resent t…
  • Home care hopefully will help ?

    After struggling with the thought of bringing in help only because so far my DW has made it clear that no one but no one was going to come in and help . She has stuck to she just wants me and her . W…
  • Re: visit with PCP

    https://alzconnected.org/discussion/comment/241067#Comment_241067 My DW's PCP gave her a standard "check-up" but was able to judge disease progression based upon how she followed (or f…
  • Re: Anyone With Resentment?

    I can't thank y'all (Southern gal here) enough for sharing your stories and experiences with me. I appreciate knowing that I'm not alone in how I feel. I share what I'm going thro…
  • Re: Anyone With Resentment?

    I agree with the above and retired teacher. Don’t feel guilty. The amount of work a caregiver does is enormous and exhausting. I had a great marriage of 50 years before this rotten disease took over.…
  • Re: Anyone With Resentment?

    welcome. No judgment here. Your feelings are understandable and common. Even some caregivers who had wonderful marriages have bitterness and resentment that this terrible disease robbed them of their…
  • visit with PCP

    We had a regular visit with our PCP today. As is often the case, our loved ones are further along than we recognize or admit. I have my DW in early stage 6. The PCP evaluated both of us and said I sh…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more