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Popular Posts
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Re: The Stage 8 Club
I'm a little over a year out from the loss. All you said rings true to me. I was stunned by the physical pain of the loss, it was a depth of pain I'd never felt. Unbearable but you bear it.…1 -
Re: Hospice opinions
Sounds like you need to come to an understanding just what the goals are - cures aren't happening , just comfort and assistance. What tasks can they perform during visits? What treatments do the…3 -
Re: Hospice opinions
Hi, Persevere, after reading your post, I got curious and looked up some things on line. This is what I learned: If you are not happy with the nurse, you can call the agency and talk to them about yo…5 -
Re: Hope or Cope?
I think everything in moderation. Do what you can with diet, memory games etc., but keep your expectations low. Dont let an extreme treatment regiment interfere with enjoyment of the time you have wi…5 -
Re: Asking for tips on how to get LO to drink lots of water for radiation
If you haven't already suggest you discuss how quickly the Doctors think the prostate cancer will spread . Then discuss , maybe with his primary or a medical ethicist what end of life issue issu…8 -
Re: Facebook and DH _ no way to delete my post??
I would monitor and correct his FB posts and let him continue. Make sure he isn’t responding to messages. Being scammed is common with PWDs. So monitor his calls and texts or set up protection. Soon …5 -
Re: Hope or Cope?
I would focus on managing and enjoying the time you have together. We all hope for a cure for this terrible disease, but meanwhile you must learn how to care for your LO and cope with the day to day …8 -
Re: Hope or Cope?
I could have written your post. When we got the diagnosis of MCI, we spent a month getting financials in order and planned for the future. This is what appears to be working for us and keeping my hus…5 -
Re: Companionship for the caregiver
Caregiving for a LO with dementia is very lonely. We know how you feel. Some memory care facilities have support groups open to the public. You could look there.2 -
Re: Neuro Pyscological Testing
Im glad you have found a good pcp. That’s so important. I hope your mom continues to accept the situation. My moms two hour evaluation gave a very detailed report of exactly where she had deficits. T…2
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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