Facebook and DH _ no way to delete my post??
I had already posted about this in the past, but can't seem to see a way to delete a post?
My DH is in stage 4 going into 5, a year after alz diagnosis. He's still able to care for his daily needs and does many routine chores on his own.
He's been on Facebook since 2019 and enjoys reading posts and posting his own things. He also is part of several political groups on it.
I am noticing that he's been having some issues lately, trying to post, posting the same thing several times, not understanding how to put labels on pictures etc. He seems to figure it out after a while, but there is much frustration/cussing and always, always blaming FB and the engineers.
I've been ignoring it as if didn't really harm anyone. But it gets him riled up and runs my own mood just listening to it. I have to do a lot of self talk to try and stay "happy".
So, do I just continue to ignore it all knowing there will come a day when he just can't do it? Let it take is natural course? I don't really see any other way.
It'smuch like the community game he plays on his phone. He gets frustrated with it lately as he can't keep up with Rule changes etc. Of course it's always others who are too blame.
I suppose I'm mainly here to vent. So thanks for allowing that. And excuse my spelling errors as I told this from my phone. ;)
M
Comments
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I would monitor and correct his FB posts and let him continue. Make sure he isn’t responding to messages. Being scammed is common with PWDs. So monitor his calls and texts or set up protection. Soon he may lose the ability to use any electronic device. When that happens you can “lose” the phone and fib and tell him it’s broken and being repaired. Frustration is common in dementia. It causes anxiety and agitation. Try distraction or redirection. He will blame others because he doesn’t understand why he can’t make it work. His reasoner is broken so you can’t reason with him.
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Is he reaching people you actually know who respond to him when he posts or is it for the world at large- in which case - what's the upside to your family ? My bias leans towards better safe than sorry in these matters. If you have DPOA I'd consider freezing his credit with all bureaus and remove access to all financial accounts on line .
I'd look for easier games for him that don't involve him having to learn new rules until he needs to stop those also. Can you change his passwords and blame his lack of access to the platforms that are causing problems on that "darn AI sucking up the all internet juice" ?
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Long after my DH couldn't use the computer any longer he was still able to put together 300 piece puzzles. A gift of a puzzle table and some puzzles might be enjoyable for him. I'd not ask if he'd like it as he might not be able to answer that. The 300 pieces are large enough that they are not seen as for children but can be finished in a week or later on a month. I like the Charles Wysocki puzzles. Sometimes we worked together on the puzzles and he liked to take a picture of them when they were finished. I'd check to see if he'd put some pieces in the wrong place when he wasn't around and just change them without comment.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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