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Popular Posts

  • Re: Donepezil

    My DH took his at dinner as directed. He could only tolerate 5mg. 9 mos. later Nemantine was added twice a day. Titrated to 10mg. therapeutic dose. I expected to wait a few weeks before I would see a…
  • Re: Newly Diagnosed Physician

    I am planning on sharing all the highs and lows of my life and treatment. I am hopeful all our input will be long and powerful. I have reconnected with a friend who has fought colon cancer twice and …
  • Newly Diagnosed Physician

    I am a 60 yo newly diagnosed with Alzheimer's. I am a retired Family Physician who noticed issues approximately 18 months ago and was diagnosed with MCI. I stopped practicing medicine and was gi…
  • Re: Kisunla Treatment

    https://alzconnected.org/discussion/comment/228421#Comment_228421 Jack do you have access to a support group? My wife and I attend one online through Duke in NC. You don’t have to be a patient at Duk…
  • Re: Kisunla

    Unfortunately, it seems that those of us on an anti-amyloid drug (I'm on Leqembi) are generaly not participating in AlzConnected, as evidenced by the lack of replies to your comment. I'm in…
  • Re: Leqembi/Kisunla

    https://alzconnected.org/discussion/comment/248305#Comment_248305 hi, that was a time limited support group. There are others that are ongoing if you want to check out the ones offered by Duke Univer…
  • Re: Leqembi/Kisunla

    My husband is on Kisunla and we are looking for a support group for both the patient on Kisunla and/or the caregiver. Can you provide me with the link? Thank you
  • Re: Leqembi/Kisunla

    https://alzconnected.org/discussion/comment/236436#Comment_236436 I’m not sure how to convince someone to accept the treatment if they really don’t want to. These infusions are a big commitment and c…
  • Re: Feeling upset

    I finally spoke to a rep from IL, Medicaid. The spend down works like a deductible there is a certain amount to meet each month. I have to send receipts to Medicaid showing medical expenses from the …
  • Re: Dogs and Alzheimer’s

    Pets are a huge YES, as long as you understand that you will be the caretaker for the puppy. Our cat looks after my wife as much as I do (LOL), and she will meow loudly if I my wife needs my attentio…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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