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Re: Palliative care
@howhale thank you so much for sharing your pcp’s advice, it validates my approach. My husband (late 4) seems to be transitioning out of the sweets phase and his likes/dislikes change often. I pick m…5 -
Re: Palliative care
Reach out to the palliative care resource. They can determine qualifications. My dear wife went through several different phases of diet over the course of the disease. It was a challenge to keep up …5 -
Re: In Loving Memory of “Jo C”
Dear Susan, I am late to the news of your Mom's passing. I hope that the healthcare professionals that surrounded your Mom at her time of need were wonderful and supportive, as your Mom was to s…5 -
Re: Am l really losing her now?
Dear Windsock. I have an nearly identical situation as you with MDW of 89, a hometown sweetheart I married 65 years ago. She is mid-stage ALK and I have brought in a live-in caretaker to help me. I&#…9 -
Re: Queen of my Castle ?
Same here…have to do absolutely everything, but still not 'in charge of my castle!'. I feel like my body is rotting from the inside from the constant, unbearable heat (we live in Florida an…7 -
Re: Queen of my Castle ?
I can so relate to what you’ve both shared. My husband typically only showers before doctor appointments, maybe twice a month. He wears a the same clothes day in and out.., sleeps in his daytime clot…6 -
Re: Queen of my Castle ?
Yes so true. In charge of everything but our wants and wishes are no longer important. My DH has been in MC for 3 weeks now. At first I was shocked to realize how many things during the entire day ha…10 -
Re: Am l really losing her now?
I think the 'wanting to go home' in dementia folks is an abstract concept where they are really expressing a desire to go back to what they remember as a normal life. I saw this with both m…5 -
Re: Am l really losing her now?
I like maps too, and there are none for this journey. This sums it up for me too. Hugs6 -
Re: Am l really losing her now?
Dear Windsock, unfortunately, or maybe fortunately, there is no way of knowing what will be next. Each person's journey is different. My DH has been in MC for almost two years and still knows I&…6
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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