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Popular Posts
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Re: STAGE 8 - There is no other side of grief...
Thanks— that helps to hear. This site has been so important to me to survive this whole journey— I don’t know where I’d be without all of you here.5 -
Re: ‘Me Time’ Confusion
Only you know you so don’t let others dictate something you’re not comfortable with. My DH and I also did everything together (I often wondered if we did too much together 🙂). But as he got worse th…9 -
Re: Atrophy of hands
My DW is now in Stage 7f. Over the years we tried PT and OT twice for loss of muscle control and balance issues. Getting her to do the exercises was difficult, PWD can't be "trained" t…8 -
Re: How many caregivers are keeping their spouses at home until the nightmare ends?
My 'plan" is to have my DW, age 49 with me until the end. I pray that can be so both financially, physically, and emotionally. Full on stage 4, we'll see.5 -
All the "firsts" at once
My DH passed September 27th 2025 and in November was his birthday. Our girls and I went to the cemetary and had cupcakes in his honor. Now there is 2 weeks till Thanksgiving, and 8 days after Thanksg…7 -
Re: Guardian-family angry at my decisions
Thank you. I'm burnt out. 3 phones a day. Constantly worrying about my LO. Now family has turned on me. As a Guardian no one fully understands until you walk a mile. I'm to the point I'…7 -
Re: Home health care
I started with companion care when it reached the point DW could not be left home alone for any length of time. I need an opportunity to leave the house without feeling like I was constantly burdenin…5 -
Scared of the clarity
My bf who is 46yo (eoa/ftd) stage 7, on hospice. No end of life care (morphine, haloperidol, the usual stuff). The last few weeks we have noticed a big decline. He stopped walking a little over 2 wee…11 -
Re: Not eating and losing weight
When he can't eat and is losing weight, it's a good time to call for a hospice evaluation. Even if they don't think he's ready for hospice they will provide some very helpful info…5 -
Re: My plan of action failed
Perhaps you can tell him you have scheduled the surgery and place him "temporarily."6
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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