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Re: Terrified!
One of the hardest parts of caring for my DH was the uncertainty about life expectancy. Sometimes I was struggling so much that it seemed impossible to continue doing it for another day, let alone an…8 -
Terrified!
My 60 yr old husband was diagnosed a bit more than 4 years ago with EOAD/FTD w/ behavioral variant. He is late stage 6 with some components of stage 7. He is at home w/ me and I have part time care t…16 -
Re: STAGE 8 - There is no other side of grief...
Don't be too hard on yourself for things you did or did not do. You do the best you can minute by minute. We're all human and nobody is perfect. I'm sure he would say that to you if he…6 -
Re: No short term memory
DW is similarly without short term memory and her cognitive skills are negligible, although even 8 years after the Alzheimer's diagnosis, she often appears normal outside our home, as long as sh…5 -
Re: Accusations
People with dementia often have anosognosia. This is the inability to recognize their symptoms or limitations. It is very difficult to deal with. Trying to reason with him by pointing out symptoms is…5 -
Re: in stage 8 after a fall
I'm so sorry at the loss of your husband and the whirlwind at the end….no loss is without heartache …sounds like he was physically active fairly close to the end- the driving range etc —I hope t…5 -
Re: Well Meaning Friends
I appreciate your final line of this post. I envy it as well. I am still having a hard time accepting my DH’s disease and the changes because of it.5 -
Re: Changes in vision - info to help communicate
So very, very true and wish I had known this much sooner in our path. I also found my dear wife's ability to control some muscles could limit how she held her head or turned it. I learned to squ…7 -
in stage 8 after a fall
My wonderful husband passed last Thursday near midnight. He had been experiencing some episodes of lashing out toward the staff of his memory care home (utterly unlike any behaviors before) and I had…12 -
Re: Guardian-family angry at my decisions
Is this your family too? Or are you a non-related guardian? In either case, its wise not to give the PWD costly or sentimentally valuable jewelry. Too easy for it to be lost. Does the rest of the fam…5
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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