Have any questions about how to use the community? Check out the
Help Discussion .
Discussion List
Having NO LUCK getting mom an appt with a Neurologist
I am in South Carolina, just south of Charlotte, so not in a rural area or anything like that. I have been attempting to get my mom AN APPOINTMENT with a neurologist for OVER A YEAR, I've had her primary care doctor send in referrals to every neurologist in a 20 mile radius and I've called them myself, only to leave voice…
Mother causing herself ulcers yelling at my dad every day
My mom is at the stage where she is having delusions of my father cheating on her. The only new memories she seems to hold onto these days are the ones she's made up or if something happened that made her angry. He is her primary caregiver and all she does is screen at him all day that he's a horrible husband and doesn't…
Trying to get diagnosis for resistant DH
This is my first post, though I’ve been lurking for a while. I have many questions, but right now I need advice on how to handle the portal message I am sending to our PCP prior to my 69 yo DH's appointment next week. First, some background: My DH is 69 and has been having noticeable issues for 3-4 years (noticeable to me,…
Getting a diagnosis for someone refusing to notify a doctor
New here! My mother doesn't have a diagnosis yet--she's been refusing to address her memory loss issues or tell her doctor what is going on. My stepfather has been helping her with routine tasks and even going with her to doctor's appointments (for unrelated issues), which has masked her loss of cognitive function. Earlier…
Lumbar Puncture?
Good evening everyone. My mom was diagnosed today with Alzheimer's. But she doesn't fit the diagnosis 100%. The part of her brain that should be damaged/shrinking seems to be fine on the MRI. So the doctor suggested a lumbar puncture to 100% confirm the diagnosis. I know the procedure is painful and causes issues, so I'm…
Would a 2013 mini-stroke (misdiagnosed as another medical problem) explain these Dementia symptoms?
Symptoms with start dates below. Some dates are guesses because I only began paying attention to dementia / younger onset Alzheimer's symptoms this year (2023). PWD is 64 years old. 2024 June: A family friend noticed the PWD has hand tremors. 2024 June: Think I've confirmed in my mind that the PWD actually has dementia…
How to get someone diagnosed, person has 20 or so symptoms, getting no help
Hi-- I'm living with someone who I am certain has symptoms of early onset Alzheimer's. The person has always been difficult. One day the person messed up a date by eleven years. I researched and discovered she had nearly all symptoms of Alzheimer's. I spoke to my psychologist and was essentially laughed at (the person is…
Talking to doctors
My mom is the caregiver for my dad. Even with parents permission I have not been able to get his neurologist to tell me any thing and my mom doesn’t ask technical questions about his illness. I do t know what his diagnosis even is.
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more