The most recent content from our members.
We've qualified for 24 hours of help from a home health aid paid by our insurance but I don't know what to ask of this person (if we can find one!). We are both ambulatory, ride bikes together and I manage household chores. My DH is easy going, polite, charming but needs to ask questions all the time and repeats himself…
Compassion fatigue TED Talk [https://youtu.be/ZsaorjIo1Yc?si=L07hszirRcCX-mXP]
Our father has been going for extended periods (40 days at a time) without showering or changing his clothes, which has led to skin lesions. He also has incontinence issues on top of it. We are limited in our ability to intervene due to legal restrictions making these challenges difficult to address, especially when faced…
I don’t even know where to begin. I’m just looking to vent and feel seen as I feel most of my friends do not understand and I have no family. My dad is 84 and was diagnosed with frontotemporal dementia about 4 years ago. My parents divorced when I was young and I have 1 younger sister. When dad was no longer able to live…
Last summer I was stuck at home caring for my DH who has mixed dementia. It was just about impossible to do anything except take care of him. Some days he stayed awake all day with no naps. Last August I found some knitting needles. I was taught how to knit as a child and stopped knitting more than 50 years ago. I…
Today dad goes in for surgery. He has severely unmanaged type 2 diabetes and his last surgery advanced his dementia so much that he has gone from stage 3 to stage 5 quickly. He is having yet another digit removed from his foot and the hospital is acting like it is no big deal… I feel it is a bigger deal than they are…
Hi, all I found the video below just yesterday; and in my case it was quite timely. The video is a little over 10 minutes, but I think it is worthwhile for those of you who feel like you’ve lost who you used to be through all this physical, emotional and mental stress of caregiving. And if you feel like sharing with others…
Just a vent… I made the tragic error today of forgetting that my mom is not really the same person anymore, the mom I used to be able to have meaningful talks and heart-to-hearts with. … We were having such a nice visit today. I took her my old baby book and we had such a fun time reading it together. Things took a turn…
I live in Oklahoma and my mother and stepdad live in Maryland. My stepdad is currently in a memory care facility with advanced Alzheimer's. My mother has a severe physical disability and has also recently been diagnosed with early stages of Alzheimer's. My sister and her husband moved into my mother's home to care for her,…
I would like to hear from anyone who is dealing with a spouse or LO who has this dx. My husband has been diagnosed with cerebral amyloid angiopathy—which seems to be the cause of this vascular dementia. We have been married since 1994. He is 79. This dx has turned him into basically a different person. He is 6'10" and has…
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