The most recent content from our members.
Hello. I just found this group. My father has Alzheimer's, and my mother is his primary caregiver. My sister and I live close and are helping as much as we can. Mom is showing the wear-and-tear of the situation. We are looking for a place where we can benefit from the experiences of others who've already gone further down…
Hi everyone ,My name is Kerry. I’m living with dementia, and like many of you, I’m navigating a lot of feelings and emotions. I’ve reached a point where I’m really craving connection with others who understand this from the inside, not as caregivers, not as observers, but as people living it every day. I’ve noticed that…
My last post disappeared, so I'll try to keep this one brief. Betty is a sweet friend of mine. An ex-school teacher, she is very smart, very kind and upbeat. I've been providing paid "companion care" for her this past year or so, 2 to 4 days a week. Her memory has been getting progressively worse for the last year or two,…
We successfully took my mom on a mini-vacation to the beach this weekend! I certainly had my concerns about taking her out of her AL for that long and bringing her into a completely unfamiliar environment, but overall she did GREAT, and I'm so glad we were able to do this. She definitely had times of great confusion and…
I am struggling trying to keep up with my step-mother, who has been diagnosed with Dementia. In 2024 she went in for knee surgery and had a cardiac arrest. Since then it has been downhill. I feel like I'm living in the movie "Groundhog Day" living the same day over and over. I have three siblings who live closer to her,…
Was recently diagnosed as mci and dr put me on memantime. Further blood tests confirmed alz but I am still on memantime. Should I be getting infusions or is memantime enough???? Trying to get into a special clinic but not accepted yet.
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
My wife has been suffering short term memory loss for a few years and though I tried she would not see a doctor. Earlier this month she had a massive delusion. Forgot who I was after 49 years of marriage or that we have lived in our home for over 20 years. We went to the ER and I am still waiting to get a neurologist…
Hi, new to this community and have many questions, but the one that's top of mind today is that my DH, who was diagnosed with VD but also elevated levels of Alzheimer's last summer, seems to be slipping away faster all the time. He's now very weak and wants to sleep almost all the time. We've been letting him eat breakfast…
After 2 years in ALF my mother is in need of a higher level of care - primary because of her needs at night like toileting and her inability to call for assistance when she needs it. ALF is giving me some time to decide what I will do, but I am having a hard time with the options I am considering - and would love different…
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