Have any questions about how to use the community? Check out the Help Discussion.

Popular Posts

  • Re: So many posts remind me. . .

    Exactly! I feel like the hamster on the wheel, moving but not getting anywhere. I've much to be thankful for even though we are nearing the 11th year from when I first noticed my DH's symptoms. He ha…
  • Re: So many posts remind me. . .

    It's very cruel, unfair and crushing to watch this happening to them and ourselves as their caregivers providing daily life support as we provide less and less for ourselves. It's not fair at all.
  • Re: So many posts remind me. . .

    We are 8 years from diagnosis and 12 years since the onset of symptoms. It seems like it will never end. It is so cruel.
  • 10 things "I've" learned about MC's.

    These are just a few of the things I've seen in the last 6mo. My DW is in a fairly decent facility but there is no perfect place. When you place your LO in an MC facility and walk away, that will be …
  • Re: Cycles of doubt

    My DH was in the Geri-psych unit for two weeks and now has been in Memory Care for almost 1 week. I am second-guessing my MC decision all the time now because I am so lonely! It is so quiet in the ho…
  • Re: So many posts remind me. . .

    Spin-need, hang in there. Time seems to stand still and drag on and on but as caregivers we live day to day, one day at a time, one moment at a time and when you come up for air you realize just how …
  • Re: So many posts remind me. . .

    I am saddened at how very long it takes for people to die from this illness. It seems like it doesn't happen until the last dollar is extracted from the family's pocket and the emotional and physical…
  • Re: So many posts remind me. . .

    Right there also, reading posts and know we are closer to the end but still feel it could go another year or so. Have hospice on board and DH is starting to have issues with swallowing. Has had a cou…
  • Re: So many posts remind me. . .

    reading these posts gives me both comfort and fear. I am already struggling in this middle stage and have to fight to keep on going, knowing you have made it helps in the moment but when I think of w…
  • Re: Burn out

    First thank you all for your kind replies. Just knowing others understand helps. Since I last wrote the facility has given me a vailed threat of kicking my sister out due to her being so hard to deal…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more