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Popular Posts

  • Re: NIH Research cuts?

    This is going to turn into another political thread, I recommend you delete it. I have a friend who works for the NIH, is high up and has first hand info and you should be very, very worried about sc…
  • Re: They really have no idea!!

    This is a tough one, on many levels. You are speaking the truth blacksparky, your family & friends have absolutely no idea what you are going through or dealing with. That is the key to remember,…
  • Cereal ..... Again

    HWD is reaching the stage where he will wander off during a meal, and he is starting to lose weight. So foods that hold up (no cereal for him) to long meals and high calorie snacks are prominent in o…
  • Federal Alzheimer's Research Defunded

    The Roy Blunt Alzheimer's research center at the National Institutes of Health has had its budget slashed as part of the ongoing random cost-cutting program. The center does research on what now…
  • Re: They really have no idea!!

    https://alzconnected.org/discussion/comment/237118#Comment_237118 I was exactly where u are 3 weeks ago. I have since toured 2 other facilities and it’s gotten better each time. Not easier but better…
  • Re: They really have no idea!!

    I understand what you are going through. My wife has early on-set and was diagnosed 7 years ago. She is at home and I have been the primary care giver with some assistance from private care CNA'…
  • Re: They really have no idea!!

    I am literally sitting in the parking lot of an MC, crying my eyes out. My first tour of such a place and the enormity of all of the decisions we must make and the care we all give and the heartache …
  • Re: NIH funding update- the truth…

    https://alzconnected.org/discussion/72371/nih-funding-update-the-truth I would challenge the following statement: "There were other cuts but only for INDIRECT costs such as administrative & …
  • Re: Learning to be patient.

    I'm in about the same boat. All I can do is breathe deeply and try to relax and be patient. When she says she wants to go to bed and I turn down the bed for her, and she starts remaking the bed,…
  • Re: Long term concerns

    let’s stop please. This is not the forum to start discussing ‘ the fake media’ or shaming other members. etc. The members here come from all walks of life and from over the political spectrum. All of…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more