Have any questions about how to use the community? Check out the Help Discussion.
Popular Posts
-
Re: Loved one is too restless, won't sleep or rest
My DH is under hospice care. He is taking Seroquel and we have increased the amount to 100 mg, three times a day for a total of 300mg. For the past several months it had helped with afternoon agitati…5 -
Re: Loved one is too restless, won't sleep or rest
I’m so sorry you’re going through this, but glad you found this place. My grandmother exhibited this behavior a few weeks before she died. Her doctor was also very resistant to having her “snowed”(hi…5 -
Re: Loved one is too restless, won't sleep or rest
How much Seroquel is she taking? It sounds like she needs a higher dose. My DW, who was a small woman, needed 75 mg three times a day. There is one study that shows 100 mg/day is no better than place…5 -
Re: Tired and Sad
Biggest, I get you. Lack of sleep is the hardest. No patience, no empathy, frustration is magnified and normally kind people become the opposite. I'm sorry you are experiencing this but i/we tru…5 -
Re: Approved for hospice
My DW has been on hospice for two years. I have seen no downside to hospice. Hospice provides much more help than palliative care. It is true that with hospice you agree to forego curative treatment,…6 -
Approved for hospice
DH has had palliative care since early this year. At the last visit 10/29/25, the nurse told me he is at 6e on the FAST scale. She called me the following day and said he now qualifies for hospice. I…6 -
Re: Hospice and new strategies
@persevere Managing medications is something of a dark art made all the more challenging when our LO is unable to participate in the discussion. A couple of thoughts. While it is typical to discontin…5 -
Re: Approved for hospice
We are all ‘terminal’. You can decide whether to extend his suffering or not. That is the way I look at it.6 -
Re: Approved for hospice
Thank you for your post. I already have a DNR signed by his PCP. I'm shocked at how much he has deteriorated in just the past year, how feeble he has become. I guess it's time for hospice.7 -
Re: Keeping a loved one at home vs nursing care
One of my very early questions here was about keeping my spouse home through it all. However, the realities of early onset hit. I needed to keep working and he could no longer remain home, and walkin…6
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more