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Elder sibling recently Dx'd; I'm struggling with coordination of relevant professionals
Hi all, I'm new here. I have a much older sister in her mid-70s (one who I hardly knew growing up) who lives in another county, about an hour away—still in her own apartment. The only other family member is our brother, closer in age to her, who lives a bit closer to her, but is rarely involved. As I agreed years ago to be…
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Struggling to find balance
Hi, dad lives with me and has moderate stage Alzheimer's. Despite lots of other health concerns, his progression has been very slow- I've been giving him care (first IADLs like paying bills, now progressing to physical, Hands-On hygiene and such) for a little more than a decade. In addition to this stressor, last summer I…
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New here. Husband (67), to other husbands who understand the 5-year deficit
I am a 68-year-old husband, and my wife is 69. Last June (2025), she was formally diagnosed with mid-stage (Stage 5) Alzheimer's disease June 25'. I am transitioning her into a specialized memory care facility shortly. When I look at the calendar and look back at how we got here, I realize the painful truth that our…
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Difficulty finding ltc for mom with openings in my area.
Hello. New to the discussion board. I have been reading lots of post and so happy to have found a tribe. My mom lives with me and my husband. She was diagnosed with alz and lbd a year ago. It's heartbreaking, frustrating, difficult, and exhausting. I'm pretty much on my own caring for her as my brother passed away several…
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Friend Guilt Tripping Me b/c Mom in AL
I know people sometimes mean well when they give unsolicited advice. A long time friend has been messaging me videos of cases of elder abuse in nursing homes and telling be how wrong I am to have my mom in a MC AL facility. She says my mom is unhappy (she hasn’t seen my mom in years) and that I’m doing her a disservice. I…
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When is the right time to move my mom?
I know that no one can answer this question but me, and I know there probably isn’t a “right” time, but it is so hard to decide when I feel selfish and guilty and all I can do is cry when I think about it. Mom is 96 and physically very healthy. She has dementia and she is legally blind. She has lived with me for over 2…
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Mom’s (61 w/Alzheimers) Sister Died Suddenly Due to Medical Malpractice
Hi everyone! I know the title is,,,a lot. My mom is the youngest of 4, adores her older siblings. One of them unfortunately has passed two days ago, a doctor caused more damage than repair. It was completely sudden, and I am struggling with how to tell my mama. She is extremely emotional, and I’m concerned that telling her…
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Question from new member
Hello. I just found this group. My father has Alzheimer's, and my mother is his primary caregiver. My sister and I live close and are helping as much as we can. Mom is showing the wear-and-tear of the situation. We are looking for a place where we can benefit from the experiences of others who've already gone further down…
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Partner not handling my deterioration well
I'm in Early Stage Alzheimer's and receiving Leqembi infusions. My friends say I don't exhibit much in the way of symptoms. My partner is not one to discuss the situation other than for passing on medical information and does not discuss feelings. He notices every slip and gets angry when I forget, make a mistake, get…
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Is this Alzheimer's or Personality?
My mom is extemely mean to me at times. She has Alzheimer's and I have been taking care of her for 8 years. When I suggest something like for example, "You can put on your pajamas since its night time" She'll respond, "Yeah I'm not stupid, I know what I'm doing" I try to give her as much autonomy as I can, but she is in…