The most recent content from our members.
Hi, I am new here. I hear because I know my mom has been having some congnitive decline. She has had afib (controlled) for maybe 9 years and sees a cardiologist yearly for a check up. He made an appointment with a doctor to establish her as a new patient and oddly enough she was willing to let me go with her. I wasn’t…
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
Hi, I am looking for support on finding in home care for my dad once or twice a week and how to navigate it financially. He is not on Medicare and early onset. My parents also most likely would not qualify for free services but cannot afford most private pay places. I am trying to find something in the middle near bucks…
Hello. New to the discussion board. I have been reading lots of post and so happy to have found a tribe. My mom lives with me and my husband. She was diagnosed with alz and lbd a year ago. It's heartbreaking, frustrating, difficult, and exhausting. I'm pretty much on my own caring for her as my brother passed away several…
I know people sometimes mean well when they give unsolicited advice. A long time friend has been messaging me videos of cases of elder abuse in nursing homes and telling be how wrong I am to have my mom in a MC AL facility. She says my mom is unhappy (she hasn’t seen my mom in years) and that I’m doing her a disservice. I…
I know that no one can answer this question but me, and I know there probably isn’t a “right” time, but it is so hard to decide when I feel selfish and guilty and all I can do is cry when I think about it. Mom is 96 and physically very healthy. She has dementia and she is legally blind. She has lived with me for over 2…
It's been happening slowly, but in the past month my godmoms keeps wanting to go to her childhood home which doesn't exist anymore. She's not remembering or recognizing her home of 40 years. She's been like this everyday at least 1-2 times a day...but the last 2 days it's been all day. I need suggestions on how to reassure…
My mom was living in an assisted living memory care facility up until she broke her hip and had surgery. The hospital she was at lied and told the rehab facility that my mom has ‘a little confusion’, so the rehab facility accepted her to be transferred there. The hospital did not tell the rehab facility the severity of her…
Hello! I have been on here for about a month or so now and have found everyone so very helpful. I have some thoughts I’d like to share and hopefully someone can give some insight into whether or not it would help my situation. So my dad has VD, or so we have been told. He is in a NH that he hates and he “WANTS TO GO HOME”.…
My mother is 77 years old, living independently, and diagnosed with dementia/mild cognitive impairment, along with anxiety and depression. My father passed 3 years ago, after they were married 50 years. This was followed by the passing of my brother (my mom's youngest son) at 32 just last August. She has lived in the same…
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