Have any questions about how to use the community? Check out the Help Discussion.

New Caregiver Help

A place to find posts, documents, links, etc., to help caregivers who are new to the dementia journey and need a place to start. Meant to supplement (not replace) information provided by the Alzheimer's Association or medical professionals.

If you have specific questions or comments, please continue to use the regular message boards where your post is likely to be seen and responded to by the many generous members of this community.

Owner: Jeanne C.Leaders: Jeanne C.Created on December 29, 2023610 membersPrivacy: Public

Announcements

Staging tools
Here are a couple that I've found. A Google search will help you find many more. From the Fisher Center (has detailed descriptions and a link to a downloadable PDF if you want): https://www.alzinfo.org/understand-alzheimers/clinical-stages-of-alzheimers/ From a hospice company (I find this one useful bc it maps to mental…
Article: Understanding the Dementia Experience
https://www.smashwords.com/extreader/read/210580/1/understanding-the-dementia-experience#hlangandcommun
Tam Cummings LLC Handouts
Updated DBAT: From https://www.tamcummings.com/tools
Naomi Fiel's Validation Therapy
Link to National Elder Law Foundation
https://nelf.org/
American Council on Aging state Medicaid information
https://www.medicaidplanningassistance.org/state-specific-medicaid-eligibility/

Posts

I’m new to all this, am as lost as my DW
My DW is between stages 4 & 5. First it was her knees that hurt, then stomach and now back. Her psychiatrist fired her saying she can’t help her if she has lost her will to get better. The doctor told her if she decides she wants to live her life and enjoy each day as it comes, to call her back to come see her but until…
New to being caregiver
8 months into new diagnosis of dementia for dw. This journey is new every day and finding with each new answer to a question comes new questions. I was part of a video support group and that helped. Now hoping to find a new group for me and one for her. Maybe she could learn more from others like i did.
test
test alzheimers
boyfriend with dementia
I thought I posted yesterday, but didn't see anything. I have been dating a wonderful man for 2 years and found out he has early stage dementia. He has been repeating questions and forgetting our conversations. I am so sad, I am new at this and really need support, thank you.
A guide to managing someone’s money
This was posted by V3(thank you). It is a great resource for those with guardianship or a DPOA. https://www.consumerfinance.gov/consumer-tools/managing-someone-elses-money/
Veteran's Resources
first time caregiver in regard to dementia
To start out with my husband and I are married in name only, the marriage died long ago, I do care for him, and we live in the same house, but different floors. My husband was diagnosed with dementia 2 years ago, but within the past 3 months I've seen some decline. I was in denial until he couldn't check the fluids in the…
family and friends too afraid of anger to help- what to do?
Hi, My stepmom has recently been diagnosed with "moderate dementia likely due to Alzheimer's". We had been seeing changes in her memory for a couple of years and it took some real "gymnastics", including a friend of hers who is a nurse literally making the appointment with the neuropsychologist for her and practically…
Placement discussion
Link to thread about placement: https://alzconnected.org/discussion/68050/an-old-question-with-many-answers#latest
10 absolutes in dementia care

Upcoming Events

Aw snap, no events are coming up.

Members

Jeanne C.

sheak

Evan S

JeriLynn66

vcjohn01

bobbieclark71

jscott

alsteiger

Mimi50

vjmrnmph

carteruva

reallymeanmom

djackson

sanmc

rachelj28

Cflong

JoMcT

LanaClark

DCCEPEK

nsglobe

JamieWattier

Ragfoot

fishingmanandy

slhammack

glajha

JoelSC02

WIGO23

Happy25

Jbknuke

Daisy52

dukemommy