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Popular Posts
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To My Fellow Warriors
This journey is the worst, yet we all get up, stiffen our spines and get back at taking good care of our LOs. We get irritable, cry, depressed, exhausted, and we still get up and take good care of ou…20 -
Re: Life expectancy
My DH was diagnosed at age 51, when he was heading into stage 5. Doctors refused to diagnose any earlier. He had symptoms in his mid 40s. We're here 10 years later after an official diagnosis, a…7 -
Need advice/support on next steps
DH is Stage 5 moving to 6. He is pretty good in the morning but gets confused and has sun downing in the afternoon/evening along with some delusions and hallucinations. He can be agitated and angry a…8 -
Re: Speech and Language Referral
My DW has a related dementia, Semantic Dementia aka Semantic Variant of Primary Progressive Aphasia. She was also referred to a speech therapist in early Stage 6. We stopped after one “training” sess…6 -
Two weeks in
My husband was diagnosed with dementia two weeks ago. He is on anti-seizure medication. The insurance continues to deny the doctor's request for a special Pet Scan. I am just beginning and with …8 -
Re: This is so damn hard
Thank you all. It helps so much to know I'm not alone, while it also breaks my heart knowing each of you is in this damn dementia boat. I'm stiffening my spine this morning for another day …6 -
Moving Day is tomorrow.
I have been with my loved one since July of 2019. Luis was diagnosed in August of 2023 with early onset alzheimerz stage 4/5 at the age of 44. This has been a long journey. I longed for the days to h…12 -
Re: So over this...
Keep in mind that the person you hate is not the person you married, although the body is the same.7 -
Have no support
Once I reached out to family and friends about DH , they avoid me like a disease. Now I am fully isolated and am constantly apologizing for him or arguing with him.5 -
Re: Speech and Language Referral
My DW is in the same stage as your LO. At this point of her journey I will not introduce any procedure or testing that will possibly slow down or improve her terrible journey. Some people may think I…9
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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