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My mama passed
On June 29, 2023 my mama passed away at 8:22 pm. I had been her full-time caregiver for almost 7 years. During that time I was also a college student. I saw my mama everyday during her illness. I didn’t want her to go on the journey alone. She was on in-home hospice for almost 2 years. The hospice my mama was with I feel…
Brain donation / autopsy
My dad is in the final stages of Alzheimer’s. My siblings and I would like to get an autopsy done to learn more about his specific diagnosis. The Brain Donor Project rejected us. Have others gotten private autopsies? We’ve been quoted 4000$ for a private autopsy which seems worth it for closure/to see if there is a higher…
How to cope with loss of grandmother.
My 93 yr old grandmother passed away on 6/10/23. She lived with us for around 7yrs and was in hospice care for 6 months before she was moved into a facility right after Easter. Her dementia had gotten worse and she needed 24hr care, which we couldnt provide any longer. I know what we had to do what was in her best interest…
Hospice nurse and AL nurses clashing
Who has dealt with this situation? My mom, 94, dementia and bedridden, began hospice a few months ago. The territorialism of the AL nurses didn't come to the forefront till now. My mom moans and complains whenever she is turned, diaper changed, or otherwise moved. Otherwise, she rests peacefully due in part to her fentanyl…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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