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Only advocate and caregiver for grandma
I am new here and posting for the first time. I just returned home from my weekly visit with my 89 y/o grandma at a skilled nursing longterm care facility. She has been there now for 4 years and I have been trying unsuccessfully to move her closer to me for the past 2 years. She is in the late stages,rarely…
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hospice, meds, changes, etc.
Hi y'all. Just checking in and updating on the progression of things. I'm positive my dad (83, general dementia diagnosis) is transitioning to a new stage. Sleeping more, shorter attention span, eating less. He doesn't chit-chat with me like he was before. Things moved quickly with our switch to the new PCP & health group.…
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Adjusting to the decline & hospice
Hi everyone, we have a nurse practitioner coming to the house next Friday and then the week after that we'll be having a virtual visit with his new physician. I've also been in contact with a hospice/homecare group for about the entire time he's been home. She checks in on how he's doing, and she recommended this new…
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Feeling sad, mad, frustrated, and all that goes along with moving LO into an ALF.
Hi. I am new to this forum. I have been on the Dementia / ALZ journey with my Mom since 2019. She was still living at home on her own until this June. Up until then I had taken over managing all of her finances, going to her house every week to buy groceries, setup her pills for the week (and check to make sure she has…
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Mama
On June 29, 2023 my mama passed away at 8:22 pm. I had been her full-time caregiver for almost 7 years. During that time I was also a college student. I saw my mama everyday during her illness. I didn’t want her to go on the journey alone. She was on in-home hospice for almost 2 years. The hospice my mama was with I feel…
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Coping with hospice
Hello everyone, I’m new to this community. I (26 years old) have been a caretaker for my 86 year old grandmother for 6 years since her diagnosis was made (aphasia dementia). She has recently been declining, and just this evening my family had made the decision to begin hospice care for her. It was an emotional decision,…
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My mama passed
On June 29, 2023 my mama passed away at 8:22 pm. I had been her full-time caregiver for almost 7 years. During that time I was also a college student. I saw my mama everyday during her illness. I didn’t want her to go on the journey alone. She was on in-home hospice for almost 2 years. The hospice my mama was with I feel…
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Brain donation / autopsy
My dad is in the final stages of Alzheimer’s. My siblings and I would like to get an autopsy done to learn more about his specific diagnosis. The Brain Donor Project rejected us. Have others gotten private autopsies? We’ve been quoted 4000$ for a private autopsy which seems worth it for closure/to see if there is a higher…
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How to cope with loss of grandmother.
My 93 yr old grandmother passed away on 6/10/23. She lived with us for around 7yrs and was in hospice care for 6 months before she was moved into a facility right after Easter. Her dementia had gotten worse and she needed 24hr care, which we couldnt provide any longer. I know what we had to do what was in her best interest…
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Hospice nurse and AL nurses clashing
Who has dealt with this situation? My mom, 94, dementia and bedridden, began hospice a few months ago. The territorialism of the AL nurses didn't come to the forefront till now. My mom moans and complains whenever she is turned, diaper changed, or otherwise moved. Otherwise, she rests peacefully due in part to her fentanyl…