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Brain donation / autopsy

My dad is in the final stages of Alzheimer’s. My siblings and I would like to get an autopsy done to learn more about his specific diagnosis.


The Brain Donor Project rejected us. Have others gotten private autopsies? We’ve been quoted 4000$ for a private autopsy which seems worth it for closure/to see if there is a higher likelihood that west inherit the disease.


Anyone have experience with private autopsies or other routes to get a diagnosis after death? Thank you!

Comments

  • Iris L.
    Iris L. Member Posts: 4,482
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    In addition to whatever responses you receive now, I suggest that you do a search for brain donation, because there have been several threads in the past.

    Iris

  • harshedbuzz
    harshedbuzz Member Posts: 4,585
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    If you're concerned about heritability, I'd get a referral to a genetic counselor and go from there. Blood tests might be sufficient to determine answers to your question for a lot less.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more