The most recent content from our members.
My DW has mild symptoms and will begin infusions soon. We are both anxious and would appreciate any information from others who may be able to tell us about their experiences with this treatment or where we may be able to find personal stories. Many thanks!
My 87 y/o mother is in the early stages of Alzheimer's and lives in an apartment building that has stairs to get to her apartment. We have been looking at a smaller apartment that she could purchase that has no stairs for entry. At this point she is still able to do everything except more executive function type things…
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
As the title states, I’m wanting to know the wheres, whats, whens, whos, hows, and whys do you utilize the most? Not getting much help from my dad’s (newly diagnosed early onset Alzheimer’s) doctor. When I asked for some recommendations (medicine management, in home care, support groups, etc.), all I got was checkout the…
My oldest sister told me she was diagnosed with Alzheimer's a month ago. I know she's had mild memory loss for years, but she hid it well. It still seems mild to me, but I've never known anyone with this disease. She calls me to tell me that I never call her, although we speak frequently. When the conversation starts, she…
Hi, My mom's dr confirmed that she has Alzheimer's. She had some early memory problems on and off for about a year now. My parents are in their late 70's and my dad and I will be her primary caregivers for now. But I'm a wife and parent of two children, 7 and 15...I also work full time. I'm just exploring support for all…
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
I'm new here. I tried searching discussions & not much new—the uncertainty of everything is getting to me. My Mate (DW) 61 was diagnosed with EO (gene, fam history, 6 months of testing with long delays between, PET scans etc) in early February '26 (after getting a neurologist back in August. They referred her to an one of…
My Dad was originally diagnosed with MCI Stage 3 and then the doctor upgraded him to Stage 4. He just had his MRI & blood work done. No proteins found in his blood and the MRI was not bad at all. He had Mild changes consistent with his age & Hypertension history. The doctor wants to give him another cognitive test to…
I’m 63 and have had phantom smells for almost 2 years. My primary care doc dismissed them 1+ years ago as Covid-related. Since then I’ve begun having memory problems, definitely a personality change (much crying/depression), and difficulty problem-solving. My mom had EO and my dad some form of dementia. I had a PET scan…
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